In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Friday, 31 July 2009

Swine flu at Muja's school

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Yesterday I went to Muja's school to see the school's psychologist. She is suppose to do an IQ test for Muja but her physical disabilities, visual and hearing impairments the task seem impossible. The purpose for the test is for the school to get fund for school resources.

After the appointment I went to Muja's class. They were doing Science concepts of what can roll and what cannot. Masha Allah they were rolling when I came in. Muja didn't joined them because she just had her feeding and her PEG is the one with a long tube that come out from her tummy. Some of the kids enjoyed the rolling.

I stayed there for a while. After the rolling Sarah, the teacher, gave the students a wooden cylinder each and asked if it can roll or nor. The Education Assistants (EA) helped by rollling it all over the students. Masha Allah Muja nodded her head for yes. Then she gave them a book and asked the same question. Guess what Muja said? She turn her head for no. Masha Allah.

I left her class at lunch time and went to Therapy Focus to see Muja's physiotherapist about her standing frame. I told her that I think the width of Muja's standing frame is narrow for her body. She asked me to bring it so she can have a look. Unfortunately she did not have time to look that afternoon. I took it back home from school so Muja can use it during weekend.

When I picked Muja up from school in the afternoon, Natalie, the teacher/conductor, informed me that one of their students in the school has positive swine flu. Masha Allah, in my heart I made du'a to ask Allah to protect us from it, ameen. So today I decided to keep Muja at home.

Thursday, 30 July 2009

Muja's sixth Botox injections at PMH.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

A couple of weeks ago Muja had her pre-Botox appointment at Paediatric Rehabilitation Department in PMH. Actually this appointment was due in April. The Paediatricians, Dr William, we saw that day apologised about the late appointment but didn't explain why we missed it.

In this appointment Dr William and a physiotherapist, Rosalin, examine how tight the muscles in Muja upper legs were. Then they decided which muscles needed Botox and how much is needed on the next appointment. The doctor suggested Botox injection in her vastus muscle to help her bend her knees.

On that day the doctor tried to get the earliest appointment. He made a call to the Botox clinic to get on that afternoon because there was a cancellation. We could not get it because only two beds is allowed in one Botox session. Muja needs a bed because she is managed by a pain relief to reduce her pain and to make her sleepy.

Alhamdulillah soon after I arrived home from PMH, Sue, a CP Liaison Nurses/Officers called about the appointment which was in a week time, which is the next Thursday.

So last Thursday, instead of going to school, Muja went to PMH for her sixth Botox injection. As usual a nurse checked her temperature, blood presure and pulse. The nurse weighed her and put cream on her hamstrings, abductor and vastus muscles to reduces needle pain during Botox administration. She was also given midazolam for pain relief.

At 2:30 Muja was called in for the injection. She looked sleepy but didn't sleep. That day Dr Langdon did the injections and with the helper, Nadine, who is Muja's first physiotherapist. When the doctor insert the needle in her abductor muscle she cried but not loud. At 3:00 we were done and left PMH half and hour after that. Muja slept in the car all the way home.

Wednesday, 29 July 2009

Hadith: How to free oneself

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Syahadah Pictures, Images and Photos

On the authority of Abu Malik al-Harith bin 'Asim al-Ash'ari, radiyallahu 'anhu, who said: The Messenger of Allah, sallallahu 'alayhi wasallam, said:

"Purification is half of iman (faith). Saying 'Al-Hamdulillah' (Praise be to Allah) fills the scales. Saying 'Subhanallah wa al-Hamdulillahi' (Exhalted be Allah and Praise be to Allah) fills the space between the heavens and the earth. Salah (prayer) is a light. Sadaqah (charity) is a proof. Sabr (patience) is a shining glory. The Qur'an is an argument either for you or against you. Everybody goes out in the morning and sell themselves, thereby setting themselves free or destroying themselves."

[Muslim]

Read the explaination of this hadith here.

Friday, 17 July 2009

Monthly accupuncture treatment.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Every month Muja goes to Natureco for accupuncture. Last Monday I took her there to treat the pain in her hips and cold. She had a blocked nose and wheezy breathing that make her unable to sleep at night.

She drools like a waterfall. I wonder what treatment is good to get rid of her drool??? Anyone???

Masha Allah, like always she didn't even cry when Lawrance, her acupuncturist, insert the needles. Alhamdulillah, now she is used to the needles. Anyway the needles are very fine so you can't feel any pain. Instead of crying she fell asleep during the session. She had needles on both her hands, legs, neck and head.

The acupuncturist also prepared a Chinese herbal medicine to treat Muja's symptoms and he showed me some exercise to reduce Muja's hips pain.





Alhamdulillah, since Muja had her needles I found her to be more settle and alert. The pain in her hips has reduced tremendously. Usually she complains when we move her around. The other day she didn't cry when I stretch her legs and did cycling exercise. She is happy too when standing on her standing frame.



Alhamdulillah.

Wednesday, 15 July 2009

Conductive Education Centre of WA website.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

This is the website of the Conductive Education Centre of Western Australia. Muja has been attending this centre since she was 3 1/2 years old for School for Parents every Friday and 2 days Conductive Education Kindy. Now she is in the full time five days Pre primary program. The centre is located in Carson Street School.

You can read about What Conductive Education ishere. There is a photo gallery in the site if you would like to see what Muja and her friends can do at the centre.

The following skills are all developed within a fully integrated programme planned by the Conductor:

* Physical skills
* Play skills
* Social, emotional and communication skills
* Academic abilities
* Self-care skills

Alhamdulillah Muja has developing most of the skills mention above in the CECWA site and Insha Allah I hope that Muja will master all the skills in no time.

Monday, 13 July 2009

Uncooked Play Dough Recipe

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



My children just love to play with playdough. When they were little (now they are 17, 15 and 12) I always made it for them because the Play-doh is not cheap.

The benefits of playdough

* Helps to strengthen little fingers, hands and wrists.
* It's fun.
* It is one of the best open ended toys I know - playdough can be anything - food, animals, bowls, shapes etc.
* It helps to foster your child's imagination.
* It helps children develop self esteem -there is no right or wrong and the child has the opportunity to gain mastery over their environment.
* It is a great release for tension or angry feelings - squeezing, punching, poking are all acceptable if done to playdough.

Since morning, Tas, Muja's sister who is turning 8 years old, beg me to make play dough. So she helped me measure all the ingredients and chuck them in the mixing bowl. She mixed it and divided each recipe into half before she add colour. She made two batches and decided to colour them red, blue, yellow and green. We use food colouring and also added fragrance to it for sensory. The fragrances we used were strawberry, orange & chocolate trifle, bubble gum and white tea & ginger.



We use the recipe behind the cream of tartar box. So here is the recipe if you would like to make one.

2 cups of plain flour
4 tablespoons of 'cream of tartar'
2 tablespoons of cooking oil
1 cup of salt
1 1/2 cups of boiling water
food colouring

Just put it all in a mixing bowl and mix. Knead until smooth. I let Tas do all the steps and she is so confidence in mixing and kneading it. Keep it in the airtight container so it won't get dry. We keep ours in the zip lock plastic bag.

Happy play doughing! It can be a calming activity and therapeutic.

Saturday, 11 July 2009

Feeding Muja through her PEG tube

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

This is a video of feeding Muja through her PEG tube. It also shows how I communicate with Muja using her PODD communication book.

Tuesday, 7 July 2009

Want to play bowling anyone?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

I am using the PODD Communication Book to ask Muja if she what to play bowling. Muja is 5 and she can't speak yet.

I show her the bowling pins in front of her.

I also show her the ball in her PODD book to emphasised to her again that we are going to play bowling.

This is how she answers with a huge smile. She is happy to play bowling. Then I go through
her PODD book and telling her what she is going to do. I told her that she is going to throw the ball and aim to hit the pins.

She is so excited and can't wait to throw the ball. She is looking at the handle where she is going to push to release the ball and hit the pins.

Once she hits the ball she looks straight at the pins.


She hits four out of six pins and is eager to hit the rest.

Using the PODD book I asked if she wants to do it again. She answer with a smile. So I told her again that she is going to throw the ball and try to aim at the pins.

She is looking at the pins before throwing the ball.

She hits the handle to release the ball and looks at where the ball goes.

She is so focused at where the ball hits.

Hooray she hits all the pins after few throws. She used her POOD book to tell me that it was a good game. Masha Allah, I was happy for her that she enjoys playing bowling.