In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Tuesday, 20 September 2011

Seizure medications: Clobazam, Keppra and Clonazapam.

Things are getting much better with Mujhee. I am so grateful to Allah for providing this relief.

Last time, I wrote a post about her seizures spasticity and sleepings. Praise be to Allah for making her seizures controlable with medications. She's on Clonazapam, Keppra and Clobazam. When she started on Keppra, her stomach got really upset and she vomited after taking it. Her seizures still kept coming. Her teacher and education assistants at school reported her seizure actiivities. One day her whole body shook until she almost fell of the changing table. Her upper body twitched more than before and of course she still did her normal chewing. It tooked a few weeks until she torelate it and her seizures almost disappeared after she was prescribed with Clonazapam.

Mujhee has been on Clonazapam since July 2011. Her pediatrition prescribed it the day she had her Botox injections. I have a feeling that her seizures has improved because of the injections, usually that's the case. As the Botox wear off she is more stiff and her seizures show regularly. I could be wrong. Allah knows. There are some times that her seizures appear when I forget to give her medications. The seizures also happen when she is not well with a tummy infection couple of weeks ago. I am so grateful that the medications can control her seizures. I almost wanted to stop her medications as her condition got to worse.

Insha Allah, If Allah wills, I will post about her sleeping.

Monday, 5 September 2011

Mujhee choose black for her new Eid shoe.

Remember on the previous post about Mujhee wanting to buy a new pair of green shoes at the shop. (You can read it here.) Can you believe it, I went around to all the shoe shops looking for a green shoe for Mujhee but I couldn't find any? I told my mother that I could not find any green shoes and she suggested to ask Mujhee to choose another colour. With my mum, I said to Mujhee using the PODD communication book about not finding the green shoe. I asked her to choose a different colour. She choose black which was not so hard to get.

I like the fact that she recognises her family members and familiar people; and has a strong relationship with them in her life.

Mujhee has no speech and will rely on gestures, facial expression and body language to communicate needs or feelings. Communication systems for people with this level of disability generally rely on photographs or objects to support understanding. For example, a chair or a photograph of a chair may be used with the spoken question: ‘Would you like to sit here?’

Alhamdulillah, before Eid I got her a black flat shoes and she loves it. She gave a big smile when she saw them.