Mujhee's sleeping roller coaster.

Since Mujhee was a baby, she has always had a sleeping problem. The sleeping management team at TCCP said that Mujhee's sleeping disorder has a name, a delayed sleep phase syndrome. She has also became a nocturnal and used to stay up all night and sleep all day. It affected my family life, big time.

I remember, she wanted me to hold her in my arms until she fell asleep and when I try to lay her down on the bed, she wakes up with a loud scream. Big mistake! There is a position that she likes to sleep in which is in the sitting position on our old sofa. Although it was not good for her posture, I let her sleep that way.

A sleep study was done to determine why she has a problem with sleeping.  Read about the sleep study here, here and here. From the study, the doctor said that her tonsils are too big and made her sleep apnea. She certainly has shortness of breathing, wheezy breathing or loud breathing and she also snores. The doctor from respiratory clinic prescribed her melatonin to help regulate her sleeping but that medicine has shown no success. He also recommended the use of CPAP machine. We decided to try the CPAP mechine but could not get the right mask for her as she was small at that time.The doctor from ENT gave us another option which was to remove the tonsils that block the breathing airway.

We also seek alternative medicine for this before we finally decided to remove it after seeking Allah helps first through istikharah. The decision was made, a year before the surgery, whether to remove the tonsils or not. It was a year ago when Mujhee had her tonsils remove. You can read the post about it in the Mujhee's tonsils surgery post. I was so frustrated on how slow the medical system here operates. For me it is not acceptable at all.

Alhamdulillah, after the surgery Mujhee's breathing is much better but her sleeping has not gotten any better and she still has trouble sleeping. She has a lot of rough nights on a regular basis. Now she likes to sleep on her own bed. May be her bed is comfortable because she has a sleeping system to support her posture during sleeping. Mean time, we are applying a funding for an electrical operated bed with an air mattress system. the Invacare softform mettress.

After all that was done this far, I completely accept the fact that she will always have a sleeping problem. Looking at all that has happened, I am more then satisfied with what ever the outcomes Allah destine for her but I'm sure there are ways that could make her sleeping better.  Please remember us in your prayer. Alhamdulillah 'ala kulli hal.

Now, everything pointing at her muscle spasms. May Allah show us what is good for Mujhee, ameen.


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