In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Sunday, 29 April 2012

The return of grief: the hearing test result.

Last Thursday, I was looking forward to Mujhee's hearing test with positive results. All the time, I was thinking that the result would prove that Mujhee can hear. I was so excited when the audiologist told me that there is a new machine that can test Muhee's hearing. The three weeks wait for the appointment seemed so long for me. I was so impatient and hoping she got the test on that same day.

Sleeping during the hearing test
at Australian Hearing.
I found myself revisiting my grief as the audiologist broke the news about Mujhee's hearing test. Like her vision there is nothing wrong with her ears, but the brain that process her hearing and vision. As my tears filled over, I hated that very moment. I hated that and I bitterly wept. How could I forget the answer that the senior pediatrician gave me, seven years ago, saying that there is no cure for brain damage when I asked him what the cure for it is?

It hit me again, but this time it hit me much harder than before because now I realised the extent of her disability. She has Cerebral Palsy, a motor disorder which cause problems in controlling and coordinating movement due to the brain damaged during birth. She also has dual sensory impairment, blindness and deafness. The reality that she could not see and hear, walk and talk make my heart become empty again just like the heart of Prophet Musa's mother when she learnt that her son was in the hand of Firaun's household, their enemy. And the heart of the mother of Musa (Moses) became empty [from every thought, except the thought of Musa (Moses)]. She was very near to disclose his (case, i.e. the child is her son), had We not strengthened her heart (with Faith), so that she might remain as one of the believers. Quran 28:10) For me, Allah is testing my patience, submission, and strength of character. Only He can give me strength to get over all of this. Lahaula wala quwwata illa billah.

Alhamdulillah, when I remember Allah, He lifted my fear and grief. Subhana Allah! I still grieve but only through my prayer by asking Him for help to get me through this difficult time. Indeed He has spoken truth when He reveal his words in the Quran that, Surely in the remembrance of Allah do hearts find rest. (Quran 13:28)

It made me realized that it is He who has given everything we have. They are not really ours to begin with. He is the true Owner. At anytime He will take them back because at time being He has just lent them to us for a short time anyway. So it is not our place to be upset when the Owner is claiming his belongings back.

If you think about the meaning of Inna lillahi wa inna ilahi rajiun, which has been taught to us to say at the time of difficulty. It is trully make you submit to the will of Allah with an open heart . We will test you with a certain amount of fear and hunger, and loss of wealth, life, and fruits. But give good news to the steadfast. (Quran 2:155) 

So what is the good news? Insha Allah, I'll write about it in the next post.

Mujhee wants to see the tiger and the bear at the zoo.


Me: I am telling you something
It's going to happen
days & times
days of the week
Sunday
more to say, go to categories
places
list
zoo

Muhee: smile

Me: I'm asking a question
You need to tell me Yes or No
What
more to say, go to categories
people
I me Mujhee
more to say, go to categories
action
see look watch
more to say, go to categories 
animals
wild/zoo animals

Mujhee: lion - no (look to the side)
tiger - yes (smile)
elephant - no (look to the side)
hippo - no (look to the side)
giraffe - no (look to the side)
zebra - no (look to the side)
monkey - no (look to the side)
bear - yes (use voice)
bat - no (look to the side)
dinosaur - no (look to the side)




Sunday, 15 April 2012

A new shoes: He has better plans.

Subhana Allah, so many things to make right. I mean, I just realized that my life is so much in mess, so I need a lot of cleaning up to do. I wonder if there is enough time for me. Time is running out, girl!

It's the second week of school holiday here. We're at home, the most perfect place for a great holiday. It's fantastic, relaxing and not having to rush to and from school every morning and afternoon. Alhamdulillah!

Before the school holiday, I met with Mujhee's physio and we discussed about her Piedro boots and AFO's. It has been almost a year since Mujhee's hasn't worn her Ankle and foot Orthosis, AFO's and wearing the boots instead. She's been wearing her Piedro boots for almost 2 years now. She likes the boot. It's comfortable for her. She is quite good with the boots. The boots hold her foot and ankles in the correct position and she is happy standing with them on. We had to think about getting her a new pair of Piedro, because her feet has grown.

She is not an AFO's fan. She hates wearing them. She would only stand for a short while with them on and she easily gets stiff when she wears them. Her physio said that maybe we could get the boots now and then down the track we could get her the AFO's. So I thought we'll just get her a new boots rather than the AFO's right now.

Mean while, I asked around for advice. Most of them didn't really know which one is good for Mujhee. But her peadiatritian said that she needs both of them. The AFO's actually could stretch the calf where the boots couldn't.

Talking about running out of time, last Thursday I planed to take Mujhee to the shoe shop after her 2:30 pm chiropractor appointment. The appointment usually doesn't take long but the waiting does. Alhamdulillah, since we take her here, her hips and muscles improved. Read about Countless blessing, her hips are normal here. That night I made dua, that Allah will make it better so we could have enough time to get the Perth Surgical Shoemakers before it closes at 4 pm.

At the time, I told Mujhee's chiro that she is still struggling with her sleep, he advised us to give her dark chocolate before bed time for snack. He said that dark chocolate contain serotonin, a chemical in the brain that helps keep our mood under control and helps with sleep.

It was 3 pm when we leave the chiropractor clinic. It took us 30 minutes to get to the shoe shop. I was so grateful that my dua was answered when we finally reached at the shop and it was still open. Alhamdulillah! The plan was to do the fitting, then we would have placed an order. Then we would have to wait for 6 weeks to get the shoes. We decided to get the navy blue stability piedro boot in size 28. These boots are really helpful for heel and ankle support. It keeps the feet in a good position.

It was about 4 pm when we got done with the fitting and ordering. On our way to the parking, the lady who served us came and asked if we want to take the black one right away so we don't have to wait for 6 weeks. So I was thinking, subhana Allah, another fantastic plan from Allah for us that day. Alhamdulillah, Mujhee got the new boots that very day.



On our way home we stopped by at a playgroup to reward the girls for the extremely good behaviour and making my day easier.




When we leave our matter to be taken care of to the Almighty God and truly believe that He knows better, it make life so much easier and better.

"Our Lord! Bestow on us mercy from Yourself, and facilitate for us our affair in the right way!" ~ Quran 18:10.

Tuesday, 3 April 2012

A rally to make National Disability Insurance Scheme real

The National Disability Insurance Scheme is about life time care and support for people with disability. For me it is the care and support that would change the struggle we have in the life we live as parents with a child with disability.

There are 10 reasons why we need NDIS listed in Every Australian Counts website which you can read here. More information about NDIS can be found here and the report, The Way Forward - A New Disability Policy Framework for Australia to Parliamentary Secretary is here.

There will be a rally in all capital cities in Australia on Monday, 30th of April, 2012 to make NDIS real.

The NDIS rally details can be downloaded here. I hope we all can participate in this exciting event, to show our support for the campaign.

Perth Rally location and time;

11.40am: Meet in Hay Street Mall (William St End)
12.00pm: March down Mall; Barrack St to Stirling Gardens, Council House Corner of Barrack St and St Georges Terrace
12.30: Rally at Stirling Gardens, Council House