In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته
Since Muja has a PEG on her tummy, her muscles are so relaxed. Last week, Susanne, an Education Assistant at Muja's Carson Street Conductive Education Pre-Primary, asked me if Muja just had her Botox. I said no but actually she was about a month over due for it. She was amazed at her muscles. She was so relaxed when she did the walking and lying task.
Natalie, Muja's Teacher/Conductor, noticed that her eating is so much better without the nasogastric tube. Every day I receive remarks about Muja eating all her lunch. Masha Allah, this is a great news that someone else at Muja's school notices her progress.
Now her alertness is increase. She is holding her head up and looking around by turning her head to the left and right. She also respond well when I call her name. Today, I took her to a school fete, she looked around and respond to each person who greet and touch her with a smile. She was also happy like always on an outing.
Alhamdulillah, I don't have to struggle with brushing her teeth. She would let me put the toothbrush in her mouth and she does not vomit when the tooth brush reaches her molars. She tolerate when I touch around her mouth and face. She like it when I touch her nose and pinch it.
As for her sleeping routine, it gets better. She sleeps at around 10 pm and wakes up at 8 am. For her age she needs more that 10 hours of sleep. My goal is for her to sleep at between 8 and 9 pm.
One more thing that I have discovered is that her tonsils are getting smaller. She might not need to have them removed after all, but we need the doctors to make sure. Her breathing has improved and she does not have to sleep in upright position.
Alhamdulillah I am so please with Muja's changes. The is no power except with Allah.