As a family we do things together. We live, play and pray together. It's not only to keep us close but it's also to keep us care for and love each other. Alhamdulillah we're so grateful that Allah give us love, mercy and tranquility between us.
As a precious gift from our Lord, having Mujhee is not a burden at all for us but it's rather an endless mercy. We learn challenges and do things differently. There are times when it's easy for Mujhee to participate in recreation and social activities with us, like going to the playground that has a Liberty swing. Alhmdulillah, we have a transportation that can transfer Mujhee in her wheelchair so we can take her out often. But most of the time that is not the situation, and that makes us feel frustrated and isolated.
Mujhee teach us patience and to make true sacrifice. For example, we've given up going fishing and camping after we have her. For her sake we surrender our planning on going for trip around Australia in an RV,because with our big family of 7 we can't, as most RVs only have space for 6 and has no wheelchair access. Sometime Mujhee will be left out, when all the children go cycling around the neighbourhood. Even Farhana is starting to be interested in following her big sisters.
There are particular periods when we just don't have time to spend together especially when Mujhee is not well and hospitalised. When Mujhee has sleeping difficulty at night, it makes it hard for us to participate in day activities because she will sleep the whole day through. Sometime we're just tired mentally and physically as having a child like Mujhee demands a lot of commitments for all her medicals and therapies.
We just found out about the Community Living and Participant Grant, http://www.clpg.org.au/ With this funding, insha Allah, I'm hoping we can do something together, with Mujhee.
O Allah, for your mercy I hope, so do not leave in charge of my affairs even for the blink of an eye: rectify all my affairs. There is no God except You. Ameen.