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Muji's Light. The Silent Path

Muji's Light. The Silent Path

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About
Story
Cerebral Palsy
Epilepsy
Resources

About
Story
Cerebral Palsy
Epilepsy
Resources

About
Story
Cerebral Palsy
Epilepsy
Resources

Showing posts from May, 2011

Posts

On Keppra for Epilepsy

on May 31, 2011

botox hospital nutrician orthopedic + seizure

botox hospital nutrician orthopedic seizure

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Seizures, spasticity and sleeping.

on May 20, 2011

botox hips surveillance hospital physio therapy + sleeping management

botox hips surveillance hospital physio therapy sleeping management

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The start of term 2

on May 16, 2011

hearing school +0 second skin

hearing school second skin

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The feeling of losing her

on May 15, 2011

hospital +0 reflections

hospital reflections

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Muji's 2025 goals

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Daily walk for 30 minutes.
Hydrotherapy session weekly.

Popular Posts

Download Takbir in MP3 and Listen Takbir in YouTube.

Bismillahir Rahmanir Rahim Allahu Akbar - Allah is the Greatest . Takbir is a phrase commonly recited by Muslims as a form of praise to Allah. It is usually said during various Islamic rituals and celebrations, such as Eid al-Fitr and Eid al-Adha. Takbeer is often recited during the Eid prayers and on other important occasions in the Islamic calendar. It is a powerful declaration of faith and submission to Allah, and serves as a reminder of His greatness and power. The phrase is also used as a call to prayer (Adhan) in Islamic tradition. Takbeer Eid-ul Fitr in Masjidil Haram. Eid Takbeer (Short with English Translation) To download, right click on the link below and save, Eid Takbeer in MP3 - This takbir is recorded in Makkah. The Eid Takbir goes as follows: اللّهُ أكبر اللّهُ أكبر Allahu Akbar, Allahu Akbar Allah is Great, Allah is Great اللّهُ أكبر Allahu Akbar Allah is Great لا إلَهَ الا اللّه La illaha il Allah there is no God, but Allah اللّهُ أكبر ا...

Ciater Hot Spring in Bandung

I went to Ciater Hot Springs in Bandung last summer holiday with my family. The hot springs come from Mount Tangkuban Perahu's active crater and is piped into the private pool in the private bungalow where we stayed. After a hot sweaty weather from Jakarta, I appreciate the cool weather in Ciater. It feels like Autumn or Spring in Perth. I can still remember breathing it's cool mountain air. It was so refreshing and the air is pure. How can I forget the views from the bungalow? Subhana Allah, it is picturesque all around. I can just sit at the veranda watching the green with tea plantation climbing over the hills. There is a beautiful masjid over the hill far away from my sight. The bungalow we stayed at was designed with woods, river stones and bricks. The wooden floor in the top make sound when people walk on. This double story bungalow has 2 rooms with double beds, hot and cold shower and en-suite bathroom. It also has fire wall feature with river stones in the liv...

A new postural suit for Mujhee.

It was suggested by Mujhee's teacher/conductor last year to have a custom made second skin suit for her posture. During June 2010 someone from Second Skin came to Mujhee's school to make an assessment wheater a second skin will benefit Mujhee. Early August 2010 I received a letter from Second Skin recommending Mujhee for a postural suit after that initial assessment. Looking at the qoute I was shocked, and contacted Mujhee's OT for an advise. She suggested me to try apply funding through AARBIC. She helped with the application. Alhamdulillah soon after Eid ul Fitr 2010 we received a great news that the funding was approved. Alhamdulillah we got an appointment right away, other wise the next clinic would be in six months. On the 20th August 2010 we went to Second Skin for measurement. Basically there were a lot of measurering to make. I can't believe that it could take more than an hour. I remember how my mum used to measure me and my sister when she made us dr...

Muja and her wheelchair restraints system

Muja is ready to go out. Remember a couple of weeks ago I wrote about finding a restraints system for Muja's wheelchair. Alhamdulillah, we managed to get enough fund to install it into the van with the support of friends and loved ones. I am so grateful to Allah. Muja's father and I decided to install the AMF Bruns Protektor Restraints System into our vehicle. Alhmdulillah getting Muja in the van is not so hustle and bustle any more. There are some minor things though like pushing and pulling the wheelchair through a ramp, in and out of the van, folding the ramps and not to mention the buckling up of the safety belts. Pushing Muja into the van through a fold able ramp. Muja is almost into the van. Just have to push a little bit harder. Can you believe how many restrains there are? Let's count them together. When Muja on her wheelchair there are six belts to support and control her sitting. There are two pelvic straps, a tight belt and a chest strap with two sh...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

How a Muslim mother of a child with disabilities struggles through grief?

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caesarean. At ...

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