Skip to main content

Muji's Light

Through a mother's eyes, discover the radiant spirit of a child who shines brightly despite adversity. Explore a journey of care, resilience, and the profound impact of Muji's light on those around her. Learn how fear, hope and love illuminate even the most challenging paths.

Search This Blog

About
Story
Cerebral Palsy

Showing posts from February, 2025

Posts

Living with Disability: My NDIS Story.

on February 21, 2025

Get link
Facebook
X
Pinterest
Email
Other Apps

The Silent Path

on February 10, 2025

disability inclusive

+

Get link
Facebook
X
Pinterest
Email
Other Apps

Archive

2025 2
- February 2025 2
  - Living with Disability: My NDIS Story.
  - The Silent Path

2024 1
- March 2024 1
2023 4
- May 2023 1
- April 2023 3
2020 1
- June 2020 1
2018 3
2017 2
- September 2017 2
2016 1
- December 2016 1
2015 1
- July 2015 1
2014 10
2013 7
2012 15
2011 15
2010 17
2009 57
2008 55
2007 104

Show more Show less

Labels

PEG
alternative medicine
cerebral palsy
conductive education
disability
epilepsy
equipments
hearing
hips surveillance
hospital

hydrotherapy
inclusive
islamic
medical
nutrition
occupational therapy
reflections
school
seizure
sensory challange
sleeping management
special needs
speech therapy
tube feeding
wheelchair

Show more Show less

Report Abuse

Translate

To Subscribe Muji's Light

Posts

Posts

All Comments

All Comments

Muji's 2025 goals

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Taking a walk for 30 minutes daily.
Hydrotherapy session weekly.

Popular Posts

Download Takbir in MP3 and Listen Takbir in YouTube.

Bismillahir Rahmanir Rahim Allahu Akbar - Allah is the Greatest . Takbir is a phrase commonly recited by Muslims as a form of praise to Allah. It is usually said during various Islamic rituals and celebrations, such as Eid al-Fitr and Eid al-Adha. Takbeer is often recited during the Eid prayers and on other important occasions in the Islamic calendar. It is a powerful declaration of faith and submission to Allah, and serves as a reminder of His greatness and power. The phrase is also used as a call to prayer (Adhan) in Islamic tradition. Takbeer Eid-ul Fitr in Masjidil Haram. Eid Takbeer (Short with English Translation) To download, right click on the link below and save, Eid Takbeer in MP3 - This takbir is recorded in Makkah. The Eid Takbir goes as follows: اللّهُ أكبر اللّهُ أكبر Allahu Akbar, Allahu Akbar Allah is Great, Allah is Great اللّهُ أكبر Allahu Akbar Allah is Great لا إلَهَ الا اللّه La illaha il Allah there is no God, but Allah اللّهُ أكبر ا...

Ciater Hot Spring in Bandung

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ I went to Ciater Hot Springs in Bandung last summer holiday with my family. The hot springs come from Mount Tangkuban Perahu's active crater and is piped into the private pool in the private bungalow where we stayed. After a hot sweaty weather from Jakarta, I appreciate the cool weather in Ciater. It feels like Autumn or Spring in Perth. I can still remember breathing it's cool mountain air. It was so refreshing and the air is pure. How can I forget the views from the bungalow? Subhana Allah, it is picturesque all around. I can just sit at the veranda watching the green with tea plantation climbing over the hills. There is a beautiful masjid over the hill far away from my sight. The bungalow we stayed at was designed with woods, river stones and bricks. The wooden floor in the top make sound when people walk on. This double story bungalow has 2 rooms with double beds, hot...

A new postural suit for Mujhee.

It was suggested by Mujhee's teacher/conductor last year to have a custom made second skin suit for her posture. During June 2010 someone from Second Skin came to Mujhee's school to make an assessment wheater a second skin will benefit Mujhee. Early August 2010 I received a letter from Second Skin recommending Mujhee for a postural suit after that initial assessment. Looking at the qoute I was shocked, and contacted Mujhee's OT for an advise. She suggested me to try apply funding through AARBIC. She helped with the application. Alhamdulillah soon after Eid ul Fitr 2010 we received a great news that the funding was approved. Alhamdulillah we got an appointment right away, other wise the next clinic would be in six months. On the 20th August 2010 we went to Second Skin for measurement. Basically there were a lot of measurering to make. I can't believe that it could take more than an hour. I remember how my mum used to measure me and my sister when she made us dr...

Muja and her wheelchair restraints system

Muja is ready to go out. Remember a couple of weeks ago I wrote about finding a restraints system for Muja's wheelchair. Alhamdulillah, we managed to get enough fund to install it into the van with the support of friends and loved ones. I am so grateful to Allah. Muja's father and I decided to install the AMF Bruns Protektor Restraints System into our vehicle. Alhmdulillah getting Muja in the van is not so hustle and bustle any more. There are some minor things though like pushing and pulling the wheelchair through a ramp, in and out of the van, folding the ramps and not to mention the buckling up of the safety belts. Pushing Muja into the van through a fold able ramp. Muja is almost into the van. Just have to push a little bit harder. Can you believe how many restrains there are? Let's count them together. When Muja on her wheelchair there are six belts to support and control her sitting. There are two pelvic straps, a tight belt and a chest strap with two sh...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

How a Muslim mother of a child with disabilities struggles through grief?

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caesarean. At ...

Powered by Blogger

Copyright © lightnur.blogspot.com 2007-2023. All rights reserved.