Waiting for an appointment to do PEG surgery.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

It was early last year when Muja's speech pathologist, lovely Amy, discussed with me about the option of placing a feeding tube directly into her stomach. She referred Muja to a pediatric at The Center of Cerebral Palsy to discuss the matter. At that time Muja's father was not keen of doing the surgery so we decided not to do it yet.

The pediatric referred us to PMH Gastroenterology Clinic to discuss further and get more advise for Muja's father.

On November, Muja had her first appointment to discuss about percutaneous endoscopic gastrostomy (PEG) which is to place a feeding tube into her stomach at PMH Gastroenterology Clinic, but at that time her father was still with his decision to not proceed with any surgery. I told the doctor that I would like to do that for Muja but if her father will not approve, I have to go with him. Anyway he said that this mattar will be reviewed again in future so I can try to convince Muja's father for the meantime.

Currently Muja has a nasogastric tube that goes to her stomach through her nose and throat for feeding. The other end of the tube is hanging off her cheek. Most of her feedings are through this tube. She takes some puree food through her mouth but not enough for nutrition. It is only for her to taste.

On February this year, Muja had another appointment at Gastroenterology Clinic PMH to discuss about PEG. Alhamdulillah this time Muja's father has agreed to do the surgery, so Insha Allah we are waiting for an appointment for the surgery which could take aroung 6 months waiting period.


umelbanat said…
Aslam alikom sister
This in my 1st time on your blog...& really I can only say WOW!!you are doing a wonderful job with your beautiful angel ...masha Allah ...

I noticed that you are interested in Natural Medicine so I thought you might want to consider a very effective intervention & that is "Macrobiotics"
I'm a specialist in Autism & one of the kids I help started a Macrobiotic diet & mash Allah his symptoms are improving!!
Yafaau's daddy said…
Salam, So... I guess you didn't go for surgery huh. Good. My son, Yafaau was also advised to install PEG so that it would ease his wheeze and be easier to do physio.

But we insisted. Instead, we tried more to present food through mouth. Tried, tried and tried. After couple of days, we convinced that Yafaau was having food orally. Masha Allah we didn't. So my personal opinion is that PEG, sometimes is difficult to manage(prone to infections). But anyway, this is a controversial issue with parents. Doctors opinion is different. But I know your decision would be the best for Muja. Take care and have a wonderful day.


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