In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Tuesday, 3 June 2014

Wheels for Hope: Can never thanks enough.

27th February 2014.

We were at the Wheels for Hope for an interview. They told us that it's likely that the board will accept our application. In a weeks time they will have a meeting and tell us if we get accepted or not. If we get accepted, they will prepare a van that will suit our family and lend it to us. They will pay it's insurance, registration, service and will repair the car if it got broken. The only things we have to do is take care of it and fill in the fuel.

I ask Allah to give what is best for us. If this gift of mobility benefit us, I ask Allah to put His barakah or blessing in it, ameen. I am so grateful for the motor industry foundation of WA. I really appreciate their community work towards the gift of mobility.

27th March, 2014.

Today was the day we have waited for, especially for my husband, F. It was a day a van with a hoist to lift a wheelchair into it will be presented to us from the Wheels for Hope. It is an organization who lent us their van to use for M. The only thing we have to do is to use it and fill in the petrol. They will repair it if it's broken. It will do the car services. It pays for RAC and insurance. We only use it. Allahu Akbar! How great is that?

On the way to the Wheels for Hope, there was a bit of traffic on the Freeway towards Canning Bridge. F was worried if we didn't get there on time. He was so excited and couldn't wait to receive it. I can understand why he was extra excited because he has been waiting for this too long. It was more than three years ago when we heard about Wheels for Hope through our awesome Local Area Coordinator. Two year ago we decided to apply. F continue asking me when we'll get accepted because he become so frustrated pushing M in and out of the van with his back pain. I told him to be patience because we are not the only one who apply. In sha Allah, our time will come.

I told him that I was not worried about the acception because I love doing what I do and I think that our van has a great barakah. You can read how we get help from our community for this van. Lifting M, pushing M in and out of the car is hardwork that effect my back very bad but all the hardship help me to remember Allah and be near to Him. Alhamdulillah, Allah make our life better but I'm afraid if the easiness will make me remember Him less than before. Hardship makes me closer to Him and I don't want to lose it.

On the way there I was calm. In my mind I kept reciting the ayah I learnt last week, about prophet Yunus alaihi salam. Allah says:

فَاصْبِرْ لِحُكْمِ رَبِّكَ وَلَا تَكُن كَصَاحِبِ الْحُوتِ إِذْ نَادَىٰ وَهُوَ مَكْظُومٌ

"So wait with patience for the Decision of your Lord, and be not like the Companion of the Fish - when he cried out (to Us) while he was in deep sorrow".
(See the Qur'an, Verse 21:87).

I didn't understand why the ayah kept coming in my mind. Maybe the van is the decision that Allah gives to us for our long waited patience. Subhana Allah, I think He was trying to tell me directly through this ayah that He heard our cries to Him like He heard the cries of prophet Yunus alaihi salam, so today is the day He decided to fulfilled our dua.

Subhana Allah, today is the day "when my life met revalation", Muhammad Alshareef new catchpharase. We were the one in deep sorrow and we cried out to our Lord. He decided it for us for our wait with patience.

Today I was in a situation that I didn't even know how am I going to say thank you to Allah and all the people of WA through Telethon who change our life and gift of mobility to M. I felt that my gratitude was meaningless to them.

I remember I kept on saying thank you to each one of them who came at the presentation. F even said to them that he didn't know how to say thank you to them because we are so grateful with this blessing.

I didn't do anything to WA people who donate through telethon to deserve this blessing?

Alhamdulillah, Allah is free from imperfection and I begin with His praise as many times as the number of His creation in accordance with His good pleasure equal to the weigh of His throne and equal to the ink that may be used in recording the words for His praise.

How am I going to thank Him enough for all the blessing He bestow upon my family and me?

Alhamdulillah I feel grateful.

p.s: Check the picture inside the van in my previous post, here.

Sunday, 25 May 2014

How a Muslim mother of a child with disabilities struggles through grief.

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. 

It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caesarean.

At 4 am, 9 years ago, my baby was born with a severe brain injury. She was born without any heart-beat. The medical team did CPR on her. They informed my husband soon after she was born. A few minutes after, a nurse came again and told him that our baby lost her heart beats. “What do you mean?” my confused husband asked the nurse. Alhamdulillah, Allah grant back her heart-beat after the second CPR. Both of us were taken to the ICU. When I woke up, my husband who was by my side uttered the news that no mother would hope to hear. Allahu Akbar! I was shocked and shaking. I felt nothing. “Please tell me that this is not real.” 

The doctor revealed that I had placental abruption, meaning my placenta separated from my uterus wall before my baby was born. They found bleeding and blood clot in my uterus. There hasn’t been any explanation as to why and how this happen. My pregnancy was normal and I had no complications prior to giving birth. 

I remember the day I met my baby for the very first time. It was a day after she was born. I was still in the ICU when the nurses pushed me on my hospital bed to the NICU. I couldn’t bear my eyes when I saw her. No mother could bear this painful realization that her baby has brain injury. As I touched her, I found myself bargaining, “O Allah, I’ll do anything for You, if You take this away from her.” I remember tears filled my eyes as I grieved when the doctor answered my question that there is no cure for brain injury. The reality hit me when I realize that the injury made my daughter lost her intellect. It was so hard for me to understand because what make us human superior is the gift of intellect Allah bestow on us. I felt distressed when I found out that she also lost her sight and hearing. The reality hit me at full force when she turned three months old, when her eyes wouldn’t follow me and she could not smile at me. At six months old, I felt devastated when she could not even move, roll, crawl or sit. Every time she didn’t hit her milestones, it brings back my grief and made my heart empty just like the heart of Prophet Musa’s mother. When the pain is too much to bear, you fell nothing anymore. All my hopes and desires for her bright future are shattered before they even begin. For more than a year my husband believed that there was nothing wrong with her and she will only get better. He convinced me that the doctor was wrong.

I learnt that this is decreed from Allah only after I understand the true meaning of Inna lillahi wa inna illaihi rajiun. "Truly! To Allah we belong and truly, to Him we shall return. I learnt that Allah, the best of all planners, tests me through my daughter’s brain injury. He tests me if I would still strive hard for His sake by being patient and staying truthful to Him. What more would you want when Allah promised to be with the patient one? He also promises us that the reward of being patient is Jannah. I understand that with this hardship He has something better for us, even if I didn’t see what it is immediately.

The hardest thing I have faced is to digest the fact that she has multiple disabilities. She cannot use her own mouth for eating and let alone for smiling. She cannot see me her own mother who bore her before she was born and cared her until this day. She cannot call me “mama” like the rest of my children call me. She cannot hear me saying “I love you” like me alwayssay to her and her siblings. She will always depend on me to provide constant love, care and support for the rest of her life as she could never take care of herself. Imagine having a baby where you have to do everything for her. Now, imagine taking care of that baby for 9 years and many more to come. La hawla wa la quwwata illaa billah. There is no might or power except with Allah. I admit it that I’m powerless and only Allah can strengthen my heart to get me through all of this.

I learnt that this trial was really a mercy from Allah, the Most Merciful, when I rediscover my purpose of life. This hardship reminds me that my only purpose in life is to worship Allah, alone. He guides me to the right path by making me staying true to Him and not giving up my faith, even in the time of great hardship. Allah guides me to be like Prophet Yaakub alahi salam, as he only complain about his grief and sorrow to Him, the All-Hearing, the All-Knower. I believe that only He can help me get through all of this.

When I saw a little girl like her, playing and running at the park, it made me sad to think that my daughter could never come to me running or hug me, let alone kiss me. I hate it when I can’t help myself from comparing her with other children at her age. What would you feel when you realize that your daughter would be bound in the wheelchair for the rest of her life? My heart hurts when I think about my fear of what my daughter can’t do but others can.

Alhamdulillah, it was a blessing from Allah that I learnt to swallow my anger and fear by allowing myself to be patient with her condition and understand that it was such a great loss only if I don’t pass the test that Allah put me through. I learnt to overlook the worldly dreams I had of my daughter. I dream of her with images of Jannah. I look forward for theday when we are reunited and she will run towards me, hug me and kiss me at thegates of Jannah. I hope I will pass the test. I hope it opens up the way for my entrance to Jannah.

Alhamdulillah, I am pleased with Allah’s decree and accept His divine intervention to have granted me a daughter with a severe brain injury. I accept her multiple disabilities and appreciate her being a person of Jannah. I understand that if I ask Allah to cure her it would mean I will take away her privilege that make her sinless and not be accountable in the Day of Judgement. By Allah’s mercy, I’m able to take the extent of her condition without pain and sadness as I realize that I am blessed with a person of Jannah under my care. I would still revisit my grief but my heart is at peace with what is coming. With Allah’s guidance, I’ve been through an unimaginable hardship by being patient and staying true to Him. I would still experience many challenges but I understand that Allah, the Most Merciful, the Wise, can only tests me according to what I can handle. Maybe you won’t understand it but you will agree that with Allah’s blessing, He has guided me through His designed process of grief. Allahu Akbar! Miraculously, it transformed my life as I rediscover my purpose of life, to worship Him alone. If this is the only way for me to return to Allah, every second and every moment of hardship I was with her is worth it.

Tuesday, 11 February 2014

Action planning to achieve your goals.

"If we don't change, we don't grow.
If we don't grow, we aren't really living."
— Gail Sheehy
Alhamdulillah, I am so grateful to Allah for His guidance. It it so much better when you have a clear vision of what you are trying to achieve before you take the action to reach to goals.

Mujhee on the liberty swing at Carson Street School.

Remember Mujhee wrote about her goals for this year. Here is a quick review of what action she trying to do to achieve her goals.

  • I want to be able to sleep at night between 9 pm to 7 am.
Mujhee is unable to go to sleep at a regular time every night. She needs to change positions up to 4 times each night. Sometime she is very distressed at night with temperature and seizure activities.There are some nights where she will not sleep at all because she was on midalzalom during the day to stop her prolong seizures and make her fall asleep straight away. When her sleeping pattern changes, it takes her couple of days or more to get back to the routine.

Alhamdulillah, she is down to one addministation of midalzolam in a week since her last anti-seizures medications review late last year. Prior to that review she  took up to 5 times of midalzolam during a week. Alhamdulillah her prolong seizures has decrease and I'm hoping for seizure free. Read about the review of her anti seizures medications here. The next review is on the 14th February 2014 in sha Allah.

She is seeing a Sleep Therapist from TCCP - The Center for Cerebral Palsy and decided some changing and trial of the Invacare Softform Premier Active 2 and the mattress overlay to regulate her body temperature when sleeping. Her sleeping has gotten so much better since the trial. Although she still has problems to get to sleep early at a regular time, I don't have to change her position as much as before. Before I would change her position at night up to 4 times but now it has go down to one. Alhamdulillah. Even though I don't mind doing it because it make you feel better once I get of of my bed and change her position then she will go back to sleep. Otherwise she would keep calling me until I come. In sha Allah we're definitely going to get the mattress and overlay for Mujhee. And please remember her in your prayer.

I also do ABR between 8 to 9 at night. I found that it keeps her muscles relaxed and encourages deep breathing to help sleep. I am so happy that she doesn't mind ABR machine on her through out the night. There are so much I would like to write about ABR but I just don't have time. In sha Allah, may be I will write after the ABR training this March.

  • I want to try the Ketogenic diet as a treatment for epilepsy. 
Last year Mujhee's seizures went skyrocket. She was so sick and stayed in bed most of her time. She missed a lot of appointments and her school too. Basically she had no quality time because of the uncontrollable seizures. Her medications was revise every 2 months last year. She's on Midalzolam, Tapomax, Clonazapam and Keppra. Towards the end of last year someone mention about Ketogenic diet, a treatment for epilepsy so I discuss with her Neurologist and he referred us to the Dietetics. She has the appointment with the PMH dietician on the 24th February to discuss the treatment, in sha Allah. I'm so excited for Mujhee about this. I hope her seizures will only get better.

Alhamdulillah,with the help from our Muslim community we managed to secure the training for this year. May Allah bless our community for coming together and help us. It is like a dream come true and I am looking forward to this coming training on the 15th - 19th March, 2014. May Allah give me the strength to make it happen.Now it's time to do the ABR video report for this coming training.

Mujhee will be attending her first Gemstones Youth Group on the 16th February 2014 in sha Allah. The group meeting every third Sunday of the month.

Our community is awesome. They are organizing the fundraising for Mujhee with a family bbq and soccer match and games for the kids on 23th February 2014 at the Thomas Moore Park, Wilson between 10 - 1 pm. Insha Allah Mujhee will be there to meet our wonderful community and I think it is a great way to understand disability and each other. There will be a representative from TCCP- The Center for Cerebral Palsy to answer questions about Cerebral Palsy and what can we do to support people with CP.

IEP meeting at Mujhee's school, Carson Street School, will include the discussion on her complex communication needs on the 19th February and a visit to ILC with Mujhee's speech therapist to see what options she has for her communication needs on the 27th February in sha Allah.

  • I want to upgrade my wheelchair.
We'll be looking at it sooner or when needs, insha Allah.

I'm still thinking about what option we can do as doing nothing is not an option. Insha Allah there is a way and we're going to find it out soon.  Any suggestion would be much appreciated. Please leave comments.

In sha Allah with the help from Allah, let's make the reality come true. Always remember it is not what I can do, but what Allah can do for me.

Thursday, 30 January 2014

Lonely: Connecting with the Muslim community.

N: I'm asking you a question - You need to tell me Yes or No - Go to categories -  feelings

Mujhee: not, don't can't, feel, love -No
happy, embarresed, hate - No
worried, confused - No
angry, mad, grumpy, frustrated, sad - No
scared/frightened, upset, jealous - No
proud, lonely - Yes
proud -No
lonely - Yes

N: chat words - help

Mujhee: I want (do an activity) - outside activities - garden

N: I'm asking you a question - What do you think? (garden)

Mujhee: I like this - nice

The other day when Mujhee's sister, N, asked her about her feelings, she told her that she was lonely. N asked how she can help her. Mujhee said that she can help her by taking her to the garden. N took her to the backyard and asked her what she thinks. She thought that it was nice.Sometime a simple thing you do makes a big difference in other people's life. Masha Allah, I'm so proud of you, N, for your unconditional love and care for Mujhee.

I'm so glad and thankful that Mujhee has sisters, family and friends who value and care for her feelings and are also willing to help her in anyway possible. There are some barriers to break but it is possible to open the door of possibility. I'm also grateful for PODD communication book, without it Mujhee's voice could never be heard.

Although it made me upset to know that she was lonely, it helps me to understand her better. It was very wrong for us to think that just because she can't take care of herself, can't communicate verbally and is bound in the wheelchair, she has no feelings and needs. I think many people don't value her because they think she has nothing to say.

The way that people with disabilities are treated in this world is shameful and disgusting because we don't have time to understand how we can help them. We need to be aware of their stories so we can break the barrier and open the doors to inclusive in the mainstream society  .

It happens that the Muslim Youth Group called the Gemstones is finding new members for this year so I decided to ask them if Mujhee can join in so she won't feel left out or alone. Alhamdulillah she got accepted so she could attend the group once every month. Alhamdulillah, I am so thankful that the group are very positive and more than willing to include her. I'm so excited for her and in sha Allah it will give a lot of benefit to her and the group.

Without a doubt, I can see that someone like Mujhee can be very lonely but there are ways to help her like joining the youth group. At the beggining maybe the group don't feel the connection with her because not many of them understand her. Understanding someone takes time. Understanding someone who has multiple and complex support needs like Mujhee usually take longer time. I hope the group will give their time to get to know her better so they could feel the connection.

I believe the equality in all people regardless of their limitation. As human being we all have our limits whether we are a people of disability or not. So Mujhee deserve no less when you realize that we have more in common then any dividing differences.

In sha Allah, Mujhee just need a bit of your TIME to understand her otherwise she could feel lonely and deeply excluded from the society. Is a bit of your time is too much to ask?

Monday, 20 January 2014

My 2014 list to do

Well-being. Connection. Kindness.

These are my goals in three words. With these words in sha Allah, it will be easier for me to focus on my goals everyday in my dua, when I pray to Al Mujeeb, The Responder to Prayer.

Ok, bear with me for a bit, while I dream of what I am going to do this year, in sha Allah.

In sha Allah, I will do it. It's not what I can do but what Allah can do for me.


Sunday, 19 January 2014

Aromatheraphy Blends: Using your sense of smelling for a better well being

Sensory system is a part of nervous system responsible for sensory processing information. Vision, hearing, touch, taste and smell are including in our complex sensory system. Olfaction is the sense of smell.  Sense of smell can effect emotional behaviour. Different scents can stimulate the brain and trigger the pictures and the feeling associated with that particular smell. We all know how the smells of food can stimulate appetite. I cannot smell rendang tok without thinking about my mother who always cook it as a special treat for Hari Raya or Eid.

When I did skin care workshop on how to make natural skin care products a while ago I learned aromatherapy. In natural skin care product essential oils are used instead of fragrance oils just because the essential oils are natural while the fragrance oils are synthetic. Although fragrance oils are cheaper than essential oils they are artificially created that contain artificially substance. Essential oils are natural chemicals that are extracted from plants and contains therapeutic benefits.

In aromatherapy, essential oils are used for therapeutic purpose. Some essential oils are used to stimulate or relax the brain frequency. When scents are inhaled, the smell travels into lymbic system, which is a part of brain that controls mood. When lymbic system is stimulated, endorphins are released into your blood stream making your mood lifted and leaving you in the state of calm.

Stress can have negative impact on immune system. It stop our body ability to protect disease. Aromatherapy can boost the immune system by the release of endorphins or mood elevating substances.

Studied has found that good smells lower stress and regulates mood and emotional. The smelling of lavender essential oil calms the nervous system and relaxes the body for better sleep. Click here to read mere about the study.

Citrus essential oils like sweet orange, bergamot, neroli, lemon, petitgrain and grapefruit have an uplifting smells that is helpful for reducing depression and elevate your everyday.

These are the essential oils that I blends and we use at home. Most of these blends I mixed them for Mujhee's aromatheraphy like the Miraculous Mujhee and Mujhee's Muscle Relief.

Miraculous Mujhee

This blend is a special blend to guide an extraordinary, miraculous and outstanding into life. It creates special unimaginable moment that we carry in our hearts and exceptional way to honour others that touch our life.

  • Frankincense
  • Patchouli, 
  • Sandalwood
  • Vetiver

Relaxation Blend

This blend slow brain wave patterns to melt away stress, tension and anxiety. It produce a state of relaxation, calm and peaceful. We use it in the bath, spray it in the car and on the linen before sleeping time to get the children ready for bed.

  • Lavender
  • Sandalwood
  • Bergamot.

Brain Power

This blend can stimulate your brain capability to activate concentration on work and study. We used it when doing therapy sessions with Mujhee and when the children are doing their homework and studying during examination.

  • Lemon myrtle
  • Peppermint
  • Geranium.

Prayer Blend

This blend can be use to help us to see clearly and pay particular attention to your prayer and enhance spiritual. We put 2 to 3 drops on the prayer matt.

  • Frankincense
  • Nutmeg
  • Sweet orange

Energy Blend

We use this blend when we need some motivation to get through the day that wasn't best and keep you moving forward with smiles.

  • Sweet orange
  • Cinnamon
  • Patchouli

Peaceful Sleep

This blend has a calming blend to aid go to sleep and to stay asleep longer.

  • Clary sage
  • Lavender
  • Chamomile.

Breathe Ease Blend

This blend is helpful for respiratory ailments and relieve breathing.

  • Eucalyptus
  • Tea tree
  • Peppermint.

Muscle Relief

This blend will help to ease tight muscles and useful for temporary relief of muscular spasms. We use it in massage oil.

  • Basil
  • Marjoram
  • Lavender
  • Ginger.

Now that you have the essential oils or the blends, in sha Allah, you could use the guide here or here to the best ways of using them safely and effectively.

Insha Allah with the permission of Allah, using the essential oils can effect your emotional behaviour, health and well being.

Note: For food of thought- There are articles about health and medicine, mind and brain in Science Daily.

Thursday, 16 January 2014

Garden Blitz: May Allah grant me Jannah.

Jarrah forrest in Freemantle, Western Australia.
Let me tell you about our home. We moved into this house in January, 2011. I call it "The Green House" as it has green roof tiles. Not only does it have green roof tiles, it's floors and it's walls are all green too. On top of that it has green kitchen cabinets. I felt like it is too green inside but the outside of this house is not so green. Meaning it lacking in green lawn, trees and plants. All I can see is sand, and when the kids entered the house they are covered in dust and dirt from the sand into the house.

On May last year, Mujhee's Local Area Coordinator from Disability Services Commission asked me if we would like to apply for the Garden Blitz. I thought it was a great idea so we agreed and submitted an application. Alhamdulillah, on August we found out that we were picked for the blitz. I felt so overwhelmed like I received a part of Jannah but on the earth instead. Subhana Allah, I wonder how I would feel if I got to enter Jannah in the hereafter. It would be my goal. I'll tell you why later.

Masha Allah, on the end October and early November last year about ten hardworking and enthusiastic people from NS Projects and my lovely family came together to our humble house to do our garden. I was very grateful. When Allah loves you, He guides and helps you. I feel so blessed and can't thank them enough for their great service to us especially and the community. Now, we have to wait and see the plants growing. Here is the link for the news Canning Times, 26th November, 2013 page 32 or Grass is greener for local family - inMyCommunity - Perth, Western Australia

Our backyard.
I like green so much. Green is usually associated with nature, growth and environment. I guess that explain who I am.  I appreciate looking at the beauty of natural greenery. I respect and care for our environment. I am  passioate about improving myself. I love the green dome on the Prophet's masjid in Madinah.

I wish Allah would grant me Jannah so I could  enter it. Why I would want to enter Jannah so much? One of many reasons I would hope to enter Jannah is that I would love to get Mujhee to smile at me when I smile at her. In Jannah, I'll get Mujhee to hug me back when I hug her. I can get her to give me kisses. I can hear her talking to me and telling me how she loves me. In Jannah, I can see her moving around without her wheelchair. In Jannah, I'll to see her sitting by herself and when she wants to change her position while she was sleeping she can do it herself. In Jannah, I would like to see her walking and running freely. I want to see her able to do whatever activities she likes in Jannah. In sha Allah one day I would see all of these.

I ask the Lord who owns Mujhee soul, to give me Jannah, ameen.

Indeed Allah is Al Wahhab, The Constant Giver of Gifts, who is given out of love and mercy and not in exchange for anything. He is Al Mujeeb, The One Who Responds. He responds to our need or our call. He is Al Ghaniy, He is not in need of anyone or anything but we are in need of Him.

Monday, 21 October 2013

Topamax: The new anti-convulsive medicine for Mujhee.

This is going to be a review of Mujhee seizures. This is a post about her previous review, More seizures: New medication new hope.

Last week Mujhee's seizures got worse because she needs twice the Midazolam in a day to control her prolonged seizure. In the afternoon before Eid day, she has her seizures. Her father gave her Midazolam. Early in the morrning, when I got her ready for Eid prayer, she had more seizures. So I gave her another dose of Midalzolam. Alhamdulillah, she was alright with no prolonged seizures on Eid day but was sleeping all day. That night she could not sleep and her seizures came again. She was laughing continuously until tears came out of her eyes. That night I didn't give her Midazolam, tbecause her seizures were short and not more than 5 minutes although it kept coming. She didn't sleep that night. She fell asleep in the morning. In the afternoon she had another prolonged seizures activity so I gave her Midazolam. At night she had it again. The next day she sleep most of the day and awake at night. She missed school a lot because of this.

I noticed that her seizures got worse every second day now. The day that she was seizure free is the day when she sleeps all day and awake at night. Than early in morning her seizures will come again with another activitiy at night. These are the prolonged seizures that need midalzolam to stop. She could get more that 10 short seizures in a day that last for few seconds.

Basically this year Mujhee has developed more seizures and we have been increasing some dosages of her anti-convulsives medication and trying some new ones. Masha Allah, these medications can't control her seizures. On Friday she had her fifth medications review for this year and scheduled for another one before the end of this year. In this review, her neorologist introduces a new medication called Topamax. I already don't like the sound of Topamax's side effects.

She is on two tablet twice a day of Topamax. She is still with the same dosage of Frisium, one tablet twice a day. The Keppra is increased into 4 mls, twice a day. The Trileptal will be discontinued this Friday.

Insha Allah we're going to try Ketogenic Diet as a treatment for epilepsy.

Studies show that approx 1/3 of children treated with the ketogenic diet have greater than 90% seizure control with half of these becoming seizure free. An additional 1/3 gain a 50% reduction in seizures. The remaining 1/3 discontinue the diet due to its ineffectiveness or its difficulty. Epilepsy Queensland Inc.

When I writing this, there is a bit improvement as her seizures don't last longer. Alhamdulillah for the change and I hope her condition will only gets better.