Assalamu alaikum warahmatullahi wabarakatuhu
Sue, from "Sleep Solutions' team at TCCP, came today for Muja sleep review. She came with Muja OT, Emma and a student. From the sleep dairy that I have been recorded we found out that the constipation disturb her sleeping apart from teething and not being well. Needs to refer Muja to the dietician for constipation and paediatrician for sleeping medication.
Sue reviews Muja sleeping position by putting few pillows next to her legs and in between legs. Muja bed needs to be raise on head side for better breathing and I will get the bed raisers from River Abilities in Bentley. The funds will take six months of waiting list so it is better for me to buy it myself.
Other solutions for Muje sleep problems which we already implement including a calming routine before sleep like a warm bath and reading and supplications. We make the night boring and off the light in her room. She has supporting posture which we got from TCCP about 6 moths ago. She also takes melatonin before sleep.
Research has shown that at Muja age of 3 years and 4 months she needs 11 hours of sleep. According to the brochure I received from TCCP about Sleep Solutions for babies and children with Cerebral Palsy, children with cerebral palsy need a good night sleep for:
- growth and development
- general health
- energy for daily activities
- mood and well being
- social and family interaction
- memory and learning
- attention and concentration.
Children with cerebral palsy have sleep disturbance because they have
- pain and discomfort due to muscle spasm, abnormal postures, temperature/perspiration, reflux, intestinal problems and breathing difficulties
- behavioural and learning difficulties related to intellectual disability, autism, AHAD, epilepsy, sensory impairment and health issues
- difficulty managing their sleep environment such as adjusting bedding, lights or changing position in bed