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Muji's Light. The Silent Path

Muji's Light. The Silent Path

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Muji's Light: The Silent Path

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About Nur & Muji
Muji's Light: The Silent Path

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About Nur & Muji
Muji's Light: The Silent Path

Showing posts with the label Muji's Story

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Accessible Travel Made Possible: How Starlight Granted Muji’s Dream

on May 09, 2025

Accessible Travel & Exploration +1 Faith & Gratitude Family & Caregiving Muji's Story

Accessible Travel & Exploration Faith & Gratitude Family & Caregiving Muji's Story

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We're Back! Lighting the Path Anew

on April 09, 2025

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

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Epilepsy Day: Shining A Light On A World We Navigate With Love

on March 26, 2025

Faith & Gratitude Medical & Healthcare Muji's Story + Nutrition & Feeding

Faith & Gratitude Medical & Healthcare Muji's Story Nutrition & Feeding

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The Blessings of Ramadan: Caring for My Daughter with Complex Needs

on March 19, 2025

Faith & Gratitude Family & Caregiving Muji's Story + Nutrition & Feeding

Faith & Gratitude Family & Caregiving Muji's Story Nutrition & Feeding

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Living with Disability: My NDIS Story.

on February 21, 2025

Advocacy & Right Faith & Gratitude Family & Caregiving + Muji's Story

Advocacy & Right Faith & Gratitude Family & Caregiving Muji's Story

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The Silent Path

on February 10, 2025

Advocacy & Right +0 Muji's Story

Advocacy & Right Muji's Story

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Remembering my day of Arafah while at the dental surgery.

on September 08, 2017

Advocacy & Right Faith & Gratitude Medical & Healthcare + Muji's Story

Advocacy & Right Faith & Gratitude Medical & Healthcare Muji's Story

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Special needs with gut dysmotility

on September 04, 2017

Family & Caregiving Medical & Healthcare Muji's Story + Nutrition & Feeding

Family & Caregiving Medical & Healthcare Muji's Story Nutrition & Feeding

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How a Muslim mother of a child with disabilities struggles through grief?

on May 25, 2014

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

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Aromatheraphy Blends: Using your sense of smelling for a better well being

on January 19, 2014

Alternative Medicines Muji's Story + Resources & Tools

Alternative Medicines Muji's Story Resources & Tools

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Topamax: The new anti-convulsive medicine for Mujhee.

on October 21, 2013

Advocacy & Right +0 Muji's Story

Advocacy & Right Muji's Story

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AFOs: Mujhee's fifth fancy footware.

on September 06, 2013

Equipment & Accessibility Services +3 Medical & Healthcare Muji's Story Resources & Tools seizure management Therapies & Rehabilitation

Equipment & Accessibility Services Medical & Healthcare Muji's Story Resources & Tools seizure management Therapies & Rehabilitation

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More seizures: New medication, new hope.

on August 30, 2013

Medical & Healthcare +0 Muji's Story

Medical & Healthcare Muji's Story

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All I want is a hug.

on November 27, 2012

Communication Therapy & AAC Devices +1 Muji's Story Non-Verbal Advocacy Sleeping Management & Monitoring

Communication Therapy & AAC Devices Muji's Story Non-Verbal Advocacy Sleeping Management & Monitoring

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Mujhee thinks her new postural seat is fun.

on May 09, 2012

Accessible Travel & Exploration Muji's Story Non-Verbal Advocacy + Resources & Tools

Accessible Travel & Exploration Muji's Story Non-Verbal Advocacy Resources & Tools

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The return of grief: the hearing test result.

on April 29, 2012

Equipment & Accessibility Services Family & Caregiving + Muji's Story

Equipment & Accessibility Services Family & Caregiving Muji's Story

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A new shoes: He has better plans.

on April 15, 2012

Muji's Story Resources & Tools +1 Sleeping Management & Monitoring Therapies & Rehabilitation

Muji's Story Resources & Tools Sleeping Management & Monitoring Therapies & Rehabilitation

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Accessible Travel & Exploration Advocacy & Right Alternative Medicines Communication Therapy & AAC Devices Education & Learning Equipment & Accessibility Services Faith & Gratitude Family & Caregiving Medical & Healthcare Muji's Story

Non-Verbal Advocacy Nutrition & Feeding Quotes & Reflections Resources & Tools Sleeping Management & Monitoring Supporting Muji's Voice Therapies & Rehabilitation seizure management

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Muji's 2025 Guiding Lights

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Daily walk for 30 minutes.
Hydrotherapy session weekly.

Discover Our Journey

Kalimatan - Two words that are dear to Allah SWT

كَلِمَتَانِ حَبِيْبَتَانِ إِلىَ الرَّحْمن ، خَفِيْفَتَانِ عَلىَ اللِّسَانِ، ثَقِيْلَتَانِ فِي المِيْزَانِ سُبْحَانَ الله وَبِحَمْدِهِ، سُبْحَانَ اللهِ الْعَظِيْمِ There are two phrases which are beloved of the Most Merciful, light on the tongue, yet heavy on the scales (of reward): Glory be to Allah and all praise to Him, glory be to Allah, the Mighty. This nasheed is based on the following hadith: Abu Hurairah reported that the Prophet, peace be upon him, said, "There are two phrases that are light on the tongue but heavy on the scale of rewards and are dear to (Allah) the Gracious One. These are, subhanallahi wa bi-hamdihi (All Glory is to Allah and all Praise to Him), and subhanallah al-azim (Glorified is Allah, the Great).'' (Muslim, Bukhari, and Tirmizhi) Note: For memoir I post the nasheed here because this is one of Muja coping mechanism other than recitation of the Qur'an especially after seizure activity to help her calming. Rea...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

The Silent Path

Muji woke up, it was the typical start to her day. She felt trapped - her mind alert, her senses wide awake, but her body… unresponsive. Her limbs was replaced by stillness. Her body no longer obeyed her. She couldn’t move, couldn’t speak. The world outside her was as it always had been, vibrant and full of life, but she was caught in a cage she could neither see nor touch.

Overcoming Disability Stigma in Muslim Culture

People with disabilities often face unfair treatment in different cultures, including within Muslim communities. Despite the teachings of Islam promoting kindness and fairness, misconceptions and stereotypes about disabilities still exist. It is important to challenge these unfair beliefs and include people with disabilities in Muslim society.

How a Muslim mother of a child with disabilities struggles through grief?

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caes...

Muja needs soft tissue surgery for her dislocated hips.

On Wednesday I took Muja to PMH to see an orthopedic to review her dislocating hips as a result of her tight and stiff muscles. Previously in the hips surveillance clinic she attended on March showed that her right hip migrated to 38%, while her left hip was stable at 28%. Alhamdulillah ala kulli hal - Praise be to Allah in all circumstances. The muscles of people with Cerebral Plasy like Muja can be so stiff or tight. Muja has Spastic cerebral palsy. Spasticity means stiffness or tightness of muscles. The muscles are stiff because the message to the muscles is sent incorrectly through the damaged part of the brain. When people without cerebral palsy perform a movement, some groups of muscles become tighter and some groups of muscles relax. In people with spastic cerebral palsy, both groups of muscles may become tighter. This makes movement difficult or even impossible and also pull her femur away from its hips sockets. Muja receives Botox injection which is a therapeutic muscle-relax...

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