In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Monday, 17 November 2008

Sharing Muja story in AussieMuslims.com forums

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

The AussieMuslims.com forums is a home for Australian Muslims. Currently under Society, Culture & Family thread is discussing about "Any parents of kids with special needs?". It made me send the following story of Muja to the forums.

Alhamdulillah, I also have a special needs daughter who is 4 years and 5 months. She was diagnosed with Cerebral Palsy a month after she was born. She had a severe brain damaged during birth time. She has spasticity CP, which makes all her muscles stiff and tight. She cannot walk because she can’t control her muscles voluntarily. Any movement is difficult for her. Both her arms and legs are affected including her trunk, face and mouth. Insha Allah, it is not impossible that she will walk one day.

She has eating and drinking difficulties because her muscles that open and close her mouth, lips and tongue are affected. She also has trouble chewing and swallowing, so she is feeding through a tube that goes through her nose, throat and ends in her stomach. She cannot say any words because her mouth muscles are affected. But Subhana Allah when she was around 2 years old she smiles. Allahu Akbar. It brings me hopes.

She also has hearing and visual problems. She has a moderate hearing loss but more severe in her right ear. Although she is using hearing aids, it is hard for her to respond because of her physical difficulties. Both of her eyes are squints because her eyes muscles that control its movements are affected as well. She has intellectual disability and learning difficulties because of her physical difficulties. Basically she is in her own world, but she is so much joy to my family and me.

Alhamdulilllah she has mild epilepsy only without violent uncontrollable contractions of muscles. When she has it she appears to be daydreaming, her eyes are blinking rhythmically and her muscles are twitching. She also has unusual, repetitive, uncontrolled movements, such as chewing movements of the lips. Usually it bleeds her tongue and mouth because she bites them.

Alhamdulillah, I treasure the opportunity to care for her and she taught me unconditional love. She is a blessing for my family and me and brings so much happiness.

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