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Muji's Light. The Silent Path

Muji's Light. The Silent Path

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Muji's Light: The Silent Path

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Muji's Light: The Silent Path

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Muji's Light: The Silent Path

Showing posts with the label Resources & Tools

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Explaining Cerebral Palsy to Kids? Get Your FREE Printable Infographic Here!

on March 10, 2025

Advocacy & Right Family & Caregiving + Resources & Tools

Advocacy & Right Family & Caregiving Resources & Tools

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Overcoming Disability Stigma in Muslim Culture

on March 13, 2024

Advocacy & Right Faith & Gratitude + Resources & Tools

Advocacy & Right Faith & Gratitude Resources & Tools

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The 5 Best Animated Short Films To Raise Awareness About Disability

on May 26, 2023

Advocacy & Right Quotes & Reflections + Resources & Tools

Advocacy & Right Quotes & Reflections Resources & Tools

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Supporting People With Disability in WA Liftout

on July 06, 2015

+0 Resources & Tools

Resources & Tools

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Aromatheraphy Blends: Using your sense of smelling for a better well being

on January 19, 2014

Alternative Medicines Muji's Story + Resources & Tools

Alternative Medicines Muji's Story Resources & Tools

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AFOs: Mujhee's fifth fancy footware.

on September 06, 2013

Equipment & Accessibility Services +3 Medical & Healthcare Muji's Story Resources & Tools seizure management Therapies & Rehabilitation

Equipment & Accessibility Services Medical & Healthcare Muji's Story Resources & Tools seizure management Therapies & Rehabilitation

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Second Skin: Mujhee's third body splint for postural support.

on December 11, 2012

Resources & Tools +0 Therapies & Rehabilitation

Resources & Tools Therapies & Rehabilitation

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Oenanthe Crocata.

on June 20, 2012

Alternative Medicines Medical & Healthcare + Resources & Tools

Alternative Medicines Medical & Healthcare Resources & Tools

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Mujhee thinks her new postural seat is fun.

on May 09, 2012

Accessible Travel & Exploration Muji's Story Non-Verbal Advocacy + Resources & Tools

Accessible Travel & Exploration Muji's Story Non-Verbal Advocacy Resources & Tools

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A new shoes: He has better plans.

on April 15, 2012

Muji's Story Resources & Tools +1 Sleeping Management & Monitoring Therapies & Rehabilitation

Muji's Story Resources & Tools Sleeping Management & Monitoring Therapies & Rehabilitation

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Hips and spine reviews.

on November 13, 2011

Advocacy & Resilience Muji's Story Resources & Tools + Therapies & Rehabilitation

Advocacy & Resilience Muji's Story Resources & Tools Therapies & Rehabilitation

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Seizure medications: Clobazam, Keppra and Clonazapam.

on September 20, 2011

Medical & Healthcare Muji's Story Resources & Tools + seizure management

Medical & Healthcare Muji's Story Resources & Tools seizure management

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Mujhee choose black for her new Eid shoe.

on September 05, 2011

Communication Therapy & AAC Devices +1 Family & Caregiving Non-Verbal Advocacy Resources & Tools

Communication Therapy & AAC Devices Family & Caregiving Non-Verbal Advocacy Resources & Tools

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Botox: From wrinkle reduction to treating muscle spasticity.

on July 08, 2011

Medical & Healthcare Muji's Story Resources & Tools + Therapies & Rehabilitation

Medical & Healthcare Muji's Story Resources & Tools Therapies & Rehabilitation

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The start of term 2

on May 16, 2011

Education & Learning Muji's Story + Resources & Tools

Education & Learning Muji's Story Resources & Tools

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Mujhee's fourth AFOs

on October 29, 2010

Muji's Story +0 Resources & Tools

Muji's Story Resources & Tools

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Great videos of CECWA - Conductive Education Centre of WA

on September 26, 2010

Education & Learning +0 Resources & Tools

Education & Learning Resources & Tools

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Award Ceremony Day

on December 13, 2009

Advocacy & Right +3 Communication Therapy & AAC Devices Education & Learning Muji's Story Resources & Tools

Advocacy & Right Communication Therapy & AAC Devices Education & Learning Muji's Story Resources & Tools

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Summer is here and Muja needs an air conditioner to regulate her body heat.

on November 14, 2009

Advocacy & Right equipments + Resources & Tools

Advocacy & Right equipments Resources & Tools

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How can I fight urinary tract infections naturally?

on September 08, 2009

alternative medicine +0 Resources & Tools

alternative medicine Resources & Tools

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Muji's 2025 Guiding Lights

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Daily walk for 30 minutes.
Hydrotherapy session weekly.

Discover Our Journey

Kalimatan - Two words that are dear to Allah SWT

كَلِمَتَانِ حَبِيْبَتَانِ إِلىَ الرَّحْمن ، خَفِيْفَتَانِ عَلىَ اللِّسَانِ، ثَقِيْلَتَانِ فِي المِيْزَانِ سُبْحَانَ الله وَبِحَمْدِهِ، سُبْحَانَ اللهِ الْعَظِيْمِ There are two phrases which are beloved of the Most Merciful, light on the tongue, yet heavy on the scales (of reward): Glory be to Allah and all praise to Him, glory be to Allah, the Mighty. This nasheed is based on the following hadith: Abu Hurairah reported that the Prophet, peace be upon him, said, "There are two phrases that are light on the tongue but heavy on the scale of rewards and are dear to (Allah) the Gracious One. These are, subhanallahi wa bi-hamdihi (All Glory is to Allah and all Praise to Him), and subhanallah al-azim (Glorified is Allah, the Great).'' (Muslim, Bukhari, and Tirmizhi) Note: For memoir I post the nasheed here because this is one of Muja coping mechanism other than recitation of the Qur'an especially after seizure activity to help her calming. Rea...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

The Silent Path

Muji woke up, it was the typical start to her day. She felt trapped - her mind alert, her senses wide awake, but her body… unresponsive. Her limbs was replaced by stillness. Her body no longer obeyed her. She couldn’t move, couldn’t speak. The world outside her was as it always had been, vibrant and full of life, but she was caught in a cage she could neither see nor touch.

Overcoming Disability Stigma in Muslim Culture

People with disabilities often face unfair treatment in different cultures, including within Muslim communities. Despite the teachings of Islam promoting kindness and fairness, misconceptions and stereotypes about disabilities still exist. It is important to challenge these unfair beliefs and include people with disabilities in Muslim society.

Muja needs soft tissue surgery for her dislocated hips.

On Wednesday I took Muja to PMH to see an orthopedic to review her dislocating hips as a result of her tight and stiff muscles. Previously in the hips surveillance clinic she attended on March showed that her right hip migrated to 38%, while her left hip was stable at 28%. Alhamdulillah ala kulli hal - Praise be to Allah in all circumstances. The muscles of people with Cerebral Plasy like Muja can be so stiff or tight. Muja has Spastic cerebral palsy. Spasticity means stiffness or tightness of muscles. The muscles are stiff because the message to the muscles is sent incorrectly through the damaged part of the brain. When people without cerebral palsy perform a movement, some groups of muscles become tighter and some groups of muscles relax. In people with spastic cerebral palsy, both groups of muscles may become tighter. This makes movement difficult or even impossible and also pull her femur away from its hips sockets. Muja receives Botox injection which is a therapeutic muscle-relax...

How a Muslim mother of a child with disabilities struggles through grief?

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caes...

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