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Muji's Light. The Silent Path

Muji's Light. The Silent Path

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Showing posts with the label Faith & Gratitude

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Accessible Travel Made Possible: How Starlight Granted Muji’s Dream

on May 09, 2025

Accessible Travel & Exploration +1 Faith & Gratitude Family & Caregiving Muji's Story

Accessible Travel & Exploration Faith & Gratitude Family & Caregiving Muji's Story

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10 Inspirational Quotes from Famous Individuals with Disabilities – Including Insights from Islam

on April 23, 2025

Faith & Gratitude +0 Quotes & Reflections

Faith & Gratitude Quotes & Reflections

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We're Back! Lighting the Path Anew

on April 09, 2025

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

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Epilepsy Day: Shining A Light On A World We Navigate With Love

on March 26, 2025

Advocacy & Resilience Faith & Gratitude + Muji's Story

Advocacy & Resilience Faith & Gratitude Muji's Story

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The Blessings of Ramadan: Caring for My Daughter with Complex Needs

on March 19, 2025

Faith & Gratitude Family & Caregiving + Muji's Story

Faith & Gratitude Family & Caregiving Muji's Story

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Living with Disability: My NDIS Story.

on February 21, 2025

Advocacy & Resilience Faith & Gratitude Family & Caregiving + Muji's Story

Advocacy & Resilience Faith & Gratitude Family & Caregiving Muji's Story

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Overcoming Disability Stigma in Muslim Culture

on March 13, 2024

Advocacy & Resilience Faith & Gratitude + Resources & Tools

Advocacy & Resilience Faith & Gratitude Resources & Tools

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Eid al Fitr Mubarak - 1 Shawal 1444

on April 23, 2023

Faith & Gratitude +0 Family & Caregiving

Faith & Gratitude Family & Caregiving

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Navigating Ramadan with Disabilities: Tips and Strategies

on April 06, 2023

Advocacy & Resilience +0 Faith & Gratitude

Advocacy & Resilience Faith & Gratitude

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How to accept the challange of disability?

on June 13, 2020

Advocacy & Resilience +0 Faith & Gratitude

Advocacy & Resilience Faith & Gratitude

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What children with special needs are here to teach us?

on March 09, 2018

Faith & Gratitude +0 Quotes & Reflections

Faith & Gratitude Quotes & Reflections

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Remembering my day of Arafah while at the dental surgery.

on September 08, 2017

Advocacy & Resilience Faith & Gratitude + Muji's Story

Advocacy & Resilience Faith & Gratitude Muji's Story

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How a Muslim mother of a child with disabilities struggles through grief?

on May 25, 2014

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

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Garden Blitz: May Allah grant us Jannah.

on January 16, 2014

Advocacy & Right alternative medicine Faith & Gratitude + Family & Caregiving

Advocacy & Right alternative medicine Faith & Gratitude Family & Caregiving

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Muji's 2025 Guiding Lights

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Daily walk for 30 minutes.
Hydrotherapy session weekly.

Discover Our Journey

Kalimatan - Two words that are dear to Allah SWT

كَلِمَتَانِ حَبِيْبَتَانِ إِلىَ الرَّحْمن ، خَفِيْفَتَانِ عَلىَ اللِّسَانِ، ثَقِيْلَتَانِ فِي المِيْزَانِ سُبْحَانَ الله وَبِحَمْدِهِ، سُبْحَانَ اللهِ الْعَظِيْمِ There are two phrases which are beloved of the Most Merciful, light on the tongue, yet heavy on the scales (of reward): Glory be to Allah and all praise to Him, glory be to Allah, the Mighty. This nasheed is based on the following hadith: Abu Hurairah reported that the Prophet, peace be upon him, said, "There are two phrases that are light on the tongue but heavy on the scale of rewards and are dear to (Allah) the Gracious One. These are, subhanallahi wa bi-hamdihi (All Glory is to Allah and all Praise to Him), and subhanallah al-azim (Glorified is Allah, the Great).'' (Muslim, Bukhari, and Tirmizhi) Note: For memoir I post the nasheed here because this is one of Muja coping mechanism other than recitation of the Qur'an especially after seizure activity to help her calming. Rea...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

The Silent Path

Muji woke up, it was the typical start to her day. She felt trapped - her mind alert, her senses wide awake, but her body… unresponsive. Her limbs was replaced by stillness. Her body no longer obeyed her. She couldn’t move, couldn’t speak. The world outside her was as it always had been, vibrant and full of life, but she was caught in a cage she could neither see nor touch.

Overcoming Disability Stigma in Muslim Culture

People with disabilities often face unfair treatment in different cultures, including within Muslim communities. Despite the teachings of Islam promoting kindness and fairness, misconceptions and stereotypes about disabilities still exist. It is important to challenge these unfair beliefs and include people with disabilities in Muslim society.

Muja needs soft tissue surgery for her dislocated hips.

On Wednesday I took Muja to PMH to see an orthopedic to review her dislocating hips as a result of her tight and stiff muscles. Previously in the hips surveillance clinic she attended on March showed that her right hip migrated to 38%, while her left hip was stable at 28%. Alhamdulillah ala kulli hal - Praise be to Allah in all circumstances. The muscles of people with Cerebral Plasy like Muja can be so stiff or tight. Muja has Spastic cerebral palsy. Spasticity means stiffness or tightness of muscles. The muscles are stiff because the message to the muscles is sent incorrectly through the damaged part of the brain. When people without cerebral palsy perform a movement, some groups of muscles become tighter and some groups of muscles relax. In people with spastic cerebral palsy, both groups of muscles may become tighter. This makes movement difficult or even impossible and also pull her femur away from its hips sockets. Muja receives Botox injection which is a therapeutic muscle-relax...

Breaking Barriers: Wheelchair Quotes That Challenge Stereotypes

Disability stereotype is making negative assumptions about people with disability for instance assuming a wheelchair user cannot understand or communicate without a support person. There are several challenging stereotypes associated with wheelchair users that are bias, prejudice, and discrimination. It is important to challenge these stereotypes because they can be damaging and limiting as it leads to discrimination, exclusion, and inequality. Some of these stereotypes include: Helpless: One of the most common stereotypes about wheelchair users is that they are helpless and unable to do things on their own. Dependent: Another common stereotype is that wheelchair users are dependent on others for help and cannot live independently. Sick or Diseased: Wheelchair users are sometimes viewed as being sick or diseased, rather than simply having a physical disability. Pitiful: Some people assume that wheelchair users lead sad or pitiful lives, and therefore should be pitied. ...

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