Skip to main content

Muji's Light. The Silent Path

Muji's Light. The Silent Path

Search This Blog

Start Here
About Nur & Muji
Muji's Light: The Silent Path

Start Here
About Nur & Muji
Muji's Light: The Silent Path

Start Here
About Nur & Muji
Muji's Light: The Silent Path

Showing posts with the label Family & Caregiving

Posts

Accessible Travel Made Possible: How Starlight Granted Muji’s Dream

on May 09, 2025

Accessible Travel & Exploration +1 Faith & Gratitude Family & Caregiving Muji's Story

Accessible Travel & Exploration Faith & Gratitude Family & Caregiving Muji's Story

Get link
Facebook
X
Pinterest
Email
Other Apps

We're Back! Lighting the Path Anew

on April 09, 2025

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

Get link
Facebook
X
Pinterest
Email
Other Apps

The Blessings of Ramadan: Caring for My Daughter with Complex Needs

on March 19, 2025

Faith & Gratitude Family & Caregiving Muji's Story + Nutrition & Feeding

Faith & Gratitude Family & Caregiving Muji's Story Nutrition & Feeding

Get link
Facebook
X
Pinterest
Email
Other Apps

Explaining Cerebral Palsy to Kids? Get Your FREE Printable Infographic Here!

on March 10, 2025

Advocacy & Right Family & Caregiving + Resources & Tools

Advocacy & Right Family & Caregiving Resources & Tools

Get link
Facebook
X
Pinterest
Email
Other Apps

Living with Disability: My NDIS Story.

on February 21, 2025

Advocacy & Right Faith & Gratitude Family & Caregiving + Muji's Story

Advocacy & Right Faith & Gratitude Family & Caregiving Muji's Story

Get link
Facebook
X
Pinterest
Email
Other Apps

Eid al Fitr Mubarak - 1 Shawal 1444

on April 23, 2023

Faith & Gratitude +0 Family & Caregiving

Faith & Gratitude Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

Special needs with gut dysmotility

on September 04, 2017

Family & Caregiving Medical & Healthcare Muji's Story + Nutrition & Feeding

Family & Caregiving Medical & Healthcare Muji's Story Nutrition & Feeding

Get link
Facebook
X
Pinterest
Email
Other Apps

Wheels for Hope: Can never thanks enough.

on June 03, 2014

Accessible Travel & Exploration + Family & Caregiving

Accessible Travel & Exploration Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

How a Muslim mother of a child with disabilities struggles through grief?

on May 25, 2014

Faith & Gratitude Family & Caregiving Muji's Story + Quotes & Reflections

Faith & Gratitude Family & Caregiving Muji's Story Quotes & Reflections

Get link
Facebook
X
Pinterest
Email
Other Apps

Garden Blitz: May Allah grant us Jannah.

on January 16, 2014

Advocacy & Right alternative medicine Faith & Gratitude + Family & Caregiving

Advocacy & Right alternative medicine Faith & Gratitude Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

Our family favourite Eid cookies.

on August 16, 2013

+0 Family & Caregiving

Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

Everyday should be a Mother's Day.

on June 21, 2012

Family & Caregiving +0 Quotes & Reflections

Family & Caregiving Quotes & Reflections

Get link
Facebook
X
Pinterest
Email
Other Apps

The return of grief: the hearing test result.

on April 29, 2012

Equipment & Accessibility Services Family & Caregiving + Muji's Story

Equipment & Accessibility Services Family & Caregiving Muji's Story

Get link
Facebook
X
Pinterest
Email
Other Apps

A precious gift and endless mercy for our entire family.

on November 24, 2011

Advocacy & Right +0 Family & Caregiving

Advocacy & Right Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

Mujhee choose black for her new Eid shoe.

on September 05, 2011

Communication Therapy & AAC Devices +1 Family & Caregiving Non-Verbal Advocacy Resources & Tools

Communication Therapy & AAC Devices Family & Caregiving Non-Verbal Advocacy Resources & Tools

Get link
Facebook
X
Pinterest
Email
Other Apps

Ramadan is just around the corner.

on July 26, 2011

Communication Therapy & AAC Devices +1 Family & Caregiving Muji's Story Non-Verbal Advocacy

Communication Therapy & AAC Devices Family & Caregiving Muji's Story Non-Verbal Advocacy

Get link
Facebook
X
Pinterest
Email
Other Apps

The feeling of losing her

on May 15, 2011

Advocacy & Resilience Education & Learning Family & Caregiving + Medical & Healthcare

Advocacy & Resilience Education & Learning Family & Caregiving Medical & Healthcare

Get link
Facebook
X
Pinterest
Email
Other Apps

Ciater Hot Spring in Bandung

on October 27, 2009

Accessible Travel & Exploration Advocacy & Resilience + Family & Caregiving

Accessible Travel & Exploration Advocacy & Resilience Family & Caregiving

Get link
Facebook
X
Pinterest
Email
Other Apps

To remove or not to remove Muja's tonsils?

on October 11, 2009

Family & Caregiving Medical & Healthcare +1 Nutrition & Feeding Sleeping Management & Monitoring

Family & Caregiving Medical & Healthcare Nutrition & Feeding Sleeping Management & Monitoring

Get link
Facebook
X
Pinterest
Email
Other Apps

site stats

Categories Menu

Accessible Travel & Exploration Advocacy & Right Communication Therapy & AAC Devices Education & Learning Equipment & Accessibility Services Faith & Gratitude Family & Caregiving Medical & Healthcare Muji's Story Non-Verbal Advocacy

Nutrition & Feeding Quotes & Reflections Resources & Tools Sleeping Management & Monitoring Supporting Muji's Voice Therapies & Rehabilitation alternative medicine cerebral palsy

Show more Show less

Translate

My Creative Compass

Login Blog
Facebook
Instagram
Canva

Muji's 2025 Guiding Lights

Go camping
Family Holiday
Listen to an audiobook daily.
Helping other in need.
Post 100 photo on IG.
Play games to promote language.
Daily walk for 30 minutes.
Hydrotherapy session weekly.

Discover Our Journey

Kalimatan - Two words that are dear to Allah SWT

كَلِمَتَانِ حَبِيْبَتَانِ إِلىَ الرَّحْمن ، خَفِيْفَتَانِ عَلىَ اللِّسَانِ، ثَقِيْلَتَانِ فِي المِيْزَانِ سُبْحَانَ الله وَبِحَمْدِهِ، سُبْحَانَ اللهِ الْعَظِيْمِ There are two phrases which are beloved of the Most Merciful, light on the tongue, yet heavy on the scales (of reward): Glory be to Allah and all praise to Him, glory be to Allah, the Mighty. This nasheed is based on the following hadith: Abu Hurairah reported that the Prophet, peace be upon him, said, "There are two phrases that are light on the tongue but heavy on the scale of rewards and are dear to (Allah) the Gracious One. These are, subhanallahi wa bi-hamdihi (All Glory is to Allah and all Praise to Him), and subhanallah al-azim (Glorified is Allah, the Great).'' (Muslim, Bukhari, and Tirmizhi) Note: For memoir I post the nasheed here because this is one of Muja coping mechanism other than recitation of the Qur'an especially after seizure activity to help her calming. Rea...

Fifth Inset: Custom made wheelchair seat.

Mujhee has a new inset every 2 years. This would be her fifth insert. If every insert cost more then $4000, so up to now we could have been spending more than $20 K in her 10 years of life. That's only to custom made her seat only. I have not included her purple wheelchair yet which was about $5000, when we got it six years ago. This year, it began in the middle of the year when Mujhee, her therapist from Therapy Focus and me went to go to CP Tech to see it's physiotherapist for the custom made wheelchair seat quote. That day we discuss what support she need. After we got the quote, Mujhee's therapist apply the funding. It took almost two months until we got the funding, alhamdulillah, then we went for the second appointment for measurement. The process of making the inset can get very long hard work. When you have to go up to seven appointments, it feel likes it's never end. After the quote and measurement, we have five more appointments to work on and try it ...

The Silent Path

Muji woke up, it was the typical start to her day. She felt trapped - her mind alert, her senses wide awake, but her body… unresponsive. Her limbs was replaced by stillness. Her body no longer obeyed her. She couldn’t move, couldn’t speak. The world outside her was as it always had been, vibrant and full of life, but she was caught in a cage she could neither see nor touch.

Overcoming Disability Stigma in Muslim Culture

People with disabilities often face unfair treatment in different cultures, including within Muslim communities. Despite the teachings of Islam promoting kindness and fairness, misconceptions and stereotypes about disabilities still exist. It is important to challenge these unfair beliefs and include people with disabilities in Muslim society.

Muja needs soft tissue surgery for her dislocated hips.

On Wednesday I took Muja to PMH to see an orthopedic to review her dislocating hips as a result of her tight and stiff muscles. Previously in the hips surveillance clinic she attended on March showed that her right hip migrated to 38%, while her left hip was stable at 28%. Alhamdulillah ala kulli hal - Praise be to Allah in all circumstances. The muscles of people with Cerebral Plasy like Muja can be so stiff or tight. Muja has Spastic cerebral palsy. Spasticity means stiffness or tightness of muscles. The muscles are stiff because the message to the muscles is sent incorrectly through the damaged part of the brain. When people without cerebral palsy perform a movement, some groups of muscles become tighter and some groups of muscles relax. In people with spastic cerebral palsy, both groups of muscles may become tighter. This makes movement difficult or even impossible and also pull her femur away from its hips sockets. Muja receives Botox injection which is a therapeutic muscle-relax...

How a Muslim mother of a child with disabilities struggles through grief?

I’m a mother. I’m blessed with six precious children. I’m an average Muslim striving to do my best to earn Allah’s Pleasure. Allah has prepared me for unimaginable hardship as He guided me through grief. The day I met my fifth child I saw a miracle. It was the day when my life changed. That day I received a gift from Allah, the Giver of Gifts, as He gave me a chance to get closer to Him and to earn His blessing, mercy and guidance. It was 2 o’clock in the morning when I was woken by pain in my tummy. I woke my husband up and began packing up my bag. I was 36 weeks pregnant with my fifth baby. At 3 am my tummy started feeling so tight and hard. I remember warm tears coming from my eyes as I tried so hard to bear the pain. By 3:15 am we were at the hospital. When the midwife checked my baby, she said that her heart beat was weakening. Immediately, I felt worried when she said, “Quick, we have to save the baby!” as we were rushed to the theatre to do an emergency caes...

Powered by Blogger

Copyright © lightnur.blogspot.com 2007-2023. All rights reserved.