M Sleeping Management

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



M is sleeping on a pillow made by the Symmetrisleep. I forgot what material is filled in it when the Sleeping Management Team from The Center for Cerebral Palsy told me in the beginning of this year when they came to manage her sleeping problem. This pillow will hold her head so that when she moves she won't get stuck under the pillow and suffocate. She has brackets on both of her sides to keep her body in symmetry. This is important so she will lay straight on her back to keep her back bone nice and straight.



She likes to bend her knees. If she keep on doing this her bones and joints can deform. Sometime she can become very stiff and cross her legs like scissors. This could dislocate her hips. So she need a foam to keep her legs apart. This would decrease the need of orthopedic surgery in future, Insha Allah. Alhamdulillah, since she received the botox injections for her hamstring and abduction muscles, her legs are way too relax.



Masha Allah, if you look at her hands, she opens her fingers quite well. Sometimes she clenches her hands too hard until its look swallow. She likes it if you hold her hands and give her a little massage.

Alhamdulillah, things get easy nowadays in the term of her sleeping time. She still sleeps late, but that is her pattern. She did not annoyed anyone except me who rather stay up to be with her.

Forgive Me by Ahmad Bukhatir

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Forgive Me

My Wish List, Ameen

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu




I saw this wizzy buggy in Thingamababy. When you have a daughter who is 3 years old who can't walk, crawl or run, this could be your dream to see the possibilities it can create, to go wherever you want, whenever you want.

It is designed and developed by Bath Institute of Medical Engineering, UK for people with disabilities and cerebral palsy. It cost around $5000 to $6000 Australian dollar. But I don't know if it is available in Australia.
Edit: I am not sure the exact price but it was about US$4000 and 2000 pound.

Subhana Allah if I have millions of dollar I would make sure not only my daughter have one but all children with cerebral palsy have it. Not only that I would make sure that they all get the opportunity for what so ever treatment available. Be it behavioral therapy, counseling, braces, medicines, mechanical aids, physical therapy, occupational therapy, play therapy, speech & language therapy and surgery including specialists such as audiologists, developmental pediatricians, neurologists, nutritionists, occupational therapists, orthopedic surgeons, and speech pathologists including alternative interventions for examples acupuncture, massage, homeopathy, herbalism, osteopathy, reflexology aromatherapy, kinesiology, spiritual healing, and yoga.

Alhamdulillah, even if my daughter didn't get any of this treatment, I would love and care for her unconditionally. Alhamdulillah, Allah give me ability to understand disability and for that I count my blessing and would never thank Him enough. Alhamdulillah, Allah show me to live with the possibilities. Alhamdulillah. Alhamdulillah. Alhamdulillah. All praise be to Allah.

If you would like to give a gift or spare some change for my daughter, click here!

Walking Training

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



This is M's walking frame. The Center for Cerebral Palsy lent it to us, Alhamdulillah. T, M's sister, loves pushing her along the hallway in our house. Sometime M moves her feet while T pushes her. Subhana ALlah, when T stopped pushing her, she made sounds. I assumed that she was thanking T for pushing her around. Then she made more sounds as she was asking for more pushing. T pushed her more. T enjoys riding on it while pushing it. Again when T stopped the pushing, M will thank her and ask for more by making noises and smiles. Masha Allah, may Allah reward T for training her sister walking and making her happy.




What I like about this walking frame is that it has a holding bar on it, Alhamdulillah. This bar helps M to hold onto it, so she can practising to balance herself. But once she lost her grip on the bar her body would fall to her side and lose her balance. This would remind me that the frame is only benefit for training her to walk, but not to leave herself on it after the training done. May Allah give M opportunities to walk one day even though Allah knows what's best for her.

Masha Allah M is showing her learning behaviour. For instance, when I stop after I sing with actions to her, she would ask for more by moving her mouth like she wants to ask for more. Masha Allah, occasionally she would make "mmm" voices. Subhana Allah,once she did that, I would Praise Allah for creating possibilities for her.

Du'a or Supplication

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Assalamu alaikum warahmatullahi wabarakatuhu

Ahmed Saud Du'a



Mishary Rashid Du'a with translation



Supplication And Its Manners, Times, Conditions and Mistakes

Fortification of the Muslim (Hisnul Muslim). through remembrance and supplication from the Qur'an and Sunnah. This site is an electronic rendition of the "little du'a book".

Fortress of the Muslim Invocations from the Quran and the Sunnah An E-book on du'a.

Carers and elderly get $1000 handout

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

News.com.au

June 20, 2007 02:48am
Article from: AAP

THE Federal Government will start distributing some of its Budget largesse today as seniors and carers begin receiving payments of up to $1000.

The one-off, non-taxable payments will be handed out to about two million Australians in the next 10 days at a cost of about $1.7 billion to the Commonwealth.

More than two million elderly Australians and carers will receive the payments, which were just some of the numerous pre-election sweeteners delivered in the May budget.

An extra $1000 will be paid to recipients of the carers' payment, Department of Veterans' Affairs (DVA) carer service pension and carer allowance recipients who also receive the wife pension or the DVA partner service pension.

Recipients of the carers' allowance will be paid $600 for each eligible person in their care.

And $500 will go to seniors receiving the utilities allowance and those eligible for the senior concessions allowance.

Pray While You Sick

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

It has been two days she stayed in bed. She had temperature and her face was red. Her runny nose has turned light green. I saw a rubbish bin full filled with used tissues in her room. She complaint to me that she was not feeling good. I suggested that she should stay in bed. She went to her bed straight away.

When my husband said adzan for Dhuhur, my daughters H and K rushed to get their prayer cloth on. T, who was sick told me that she could not pray. I said to her that she can pray while laying down on the bed. She asked me how to pray. I explained to her that she could make sign for her ruqu' and sujud. Then H, reminded her to face the qiblah. When we were praying, I heard her said Ameen from her room at the same time we said it after my husband finished reading al fatihah.

Masha Allah, may Allah give you shifa and made you steadfast for practising His deen.

Cartoon Stories of the Prophets

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Assalamu alaikum warahmatullahi wabarakatuhu

Cartoon Stories of the Prophets in Arabic with English subtitles.

Story of Adam 'alayhi salam

Story of Ayoub 'alayhi salam

Story of Dawud 'alayhi salam

Story of Musa 'alayhi salam

Story of Nuh 'alayhi salam

Story of Shu'aib 'alayhi salam

Story of Sulaiman alayhi salam (Part1)

Story of Sulaiman 'alayhi salam (Part2)

Story of Yunus 'alayhi salam

Story of Uzayer 'alayhi salam

Story of Yusuf 'alayhi salam

Story of Yahya 'alayhi salam & Zakariah 'alayhi salam

For more please visit World Of Islam Portal.

Homeschooling Popular Quotation

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Assalamu alaikum warahmatullahi wabarakatuhu

My job is not to teach at all, but to find the opportunities for my kids to learn. NOT knowing something can be an advantage, as it reminds me of the wealth of resources out there in the community and world, if only we are willing to go look for them.

-David Albert, in "And the Skylark Sings with Me"

More

The Seven Habits of Highly Effective Parents Raising Children with Special Needs

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

The Seven Habits of Highly Effective Parents Raising Children with Special Needs by Sharon Gabison (modified from Stephen Covey's The Seven Habits of Highly Effective People)

1. Be Proactive. You will end up becoming your child's best specialist and your child's best advocate. To be your child's best advocate, you need to learn what it is you need to advocate for. Educate Yourself.
2. Begin with the end in mind. The "end" can reflect the next 10-minutes, the end of the day, or 20 years down the road. Regardless of where the "end" is, plan. You would never venture out on a road trip without a map. A map is a plan. The future, whether immediate or long term is a ride that needs a plan. Your child's roadmap to the future is your plan.
3. Put First Things First. Try to maintain a sense of "normalcy" as best as possible. Your life does not have to be completely defined by your child's disorder. You are still a family. Don't forget other family members. Don't forget the "others" in your life.
4. Think Win/Win. Learn how to get what your child needs by helping others understand how helping your child will help them. If others understand how they will benefit by helping your child, then they may be more apt to help.
5. Seek first to understand then to be understood. You can't expect others to understand and help you or your child if they don't understand the disorder. You may need to educate other parents/family members and those interacting with our children on a day to day basis.
6. Synergize. Connect with Other Parents/Families. The whole is greater than the sum of the parts.
7. Sharpen the Saw. Take care of yourself. Look after yourself spiritually, mentally, physically and socially.

Take Time To Enjoy Your Family

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

My sister who came to visit us is leaving soon. Last night we were having a farewell party for her and a family get together at the same time. Subhana Allah the time is going like a flash.

Alhamdulillah my sister and my daughters helped me preparing the foods. It was such a blessed time spending together. We talked while doing the tasks and we laughed a lot. We cooked the traditional Indonesian food called 'Baso' which is Noodles Soup with Meat Balls. We also made Barbequed Chicken served with Mashed Potatoes and Gravy. My daughter H, baked Chocolate Cake, Mini Blueberry Muffins and Cup Cakes. My nieces helped decorating the cakes.



After we had our dinner, we played games together. At the same time the men were having their dinner in the dinning room. I tried to avoid win and loss game because it can create stress and competition among the family member. We played pass the parcel using I look, I Look, I See song by Yusuf Islam.


Then we played, "Baby, if you love me won't you smile at me." In this game we must say the phrase without laughing and answer, "Baby, I love you but I can't cracked a smile or laughing. " Insha Allah, I was hoping that this game will encourage us to express our love to each other.



All of them won a book that night because they were playing together nicely. My sister who were not used to read to their children said that I made her to read to their children. Alhamdulillah, my intention was to encourage the love of reading to our children, our future generation.

After laughing a lot, we played Pinata by hitting it with a stick. The children learnt to aim, take turn and work together breaking it. Again the game is not about competition but cooperation. At the end the children were treated with sweets when they broke the pinata. It was fun seeing the children rushing to pick up the sweets.



Finally we played Sparkles. I like sparkles. That remind me of my childhood. Before they leave, we ate the cake.

Alhamdulillah, Allah bless our family by being together. Take time to enjoy your family. Spend quality time with them. Play and pray with them.

Seeking Allah’s Forgiveness.

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

On the authority of Shaddad ibn Aws, may Allah be pleased with him, the Prophet, Sallallahu Alayhi Wa Sallam, said, “The most superior way of asking for forgiveness from Allah is:



O Allah! You are my Cherisher. There is no deity except You. You have created me and I am Your servant and as far as possible, I abide by my solemn promise and covenant (which I made to You). I seek Your protection against the consequences of my wrongdoings. I fully acknowledge the grace You have bestowed upon me and I confess my faults. So pardon me my sins as none besides You can pardon sins.

The Prophet, Sallallahu Alayhi Wa Sallam, added, “If somebody recites it during the day with firm faith in it, and dies on the same day before the evening, he will be from the people of Paradise; and if somebody recites it at night with firm faith in it, and dies before the morning, he will be from the people of Paradise.”

Sahih Al-Bukhari, Volume 8, Book 75, Number 318

Nur Syahadah by Far East

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Tika terbuka hari
Cahaya yang cerah
Menerangi hatimu
Mulus terbias di wajah

Kau sambut dengan redha
Hadirnya hidayah
Nekad pendirian terungkai kalimah

c/o
Nur Syahadah menyinar kalbu
Murni seharum namamu
Hadirnya dicelahan
Kekalutan kalbumu itu

Nur Syahadah telah tertulis
Pada waktu dan juga takdir
Di antara seribu engkau yang terpilih

Sejernih embun pagi
Sebersih dirimu
Tanpa dicemari walaupun sebutir debu
Kekallah oh dirimu di dalam rahmat-Nya
Iringan doaku moga kau bahagia

Bridge
Akan ku bimbingmu
Sekadar yang ku termampu
Menyemai iman dan menuai takwa
Biar tak bertemu di gerbang mahligai cinta
Cukuplah sekadar teman yang biasa

Nur Syahadah menyinar kalbu
Murni seharum namamu
Hadirnya dicelahan
Kekalutan kalbumu itu

Nur Syahadah telah tertulis
Pada waktu dan juga takdir
Di antara seribu engkau yang terpilih

Bersatu Nur Syahadah di dalam syahdu…

I made this MySpace Music Player at MyFlashFetish.com.

Hearing Appointment

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



When M was 1 month old we found out that she lost her hearing moderately. But her left ear is severe lost. Masha Allah, she can hear very high pitch sound. Alhamdulillah since she was one and half years old, she is wearing the hearing aids to help her hear better.

Yesterday, M, F and me went to the Australian Hearing for reviewing M hearing. Usually the reviewing takes every 6 months. On the hearing test Masha Allah M tend to respond on some of the sound. Sometimes she moved her head to the sound but sometimes she blinked her eyes. Towards the end of the testing she did not respond well. May be she was tired.

Alhamdulillah, her right ear was clear and good, but her left one has some wax and negative pressure because she has a cold. Her audiologist, Michael, suggested to make her new mould as a back up. Here current one is a little bit loose. Masha Allah she is growing. Masha Allah she was so relaxed which made the assessments easy. We got some batteries for the hearing aids and made the next appointment. Her hearing aid is cleaned before we leave the place.

If you would like to make a sadaqah or gift for my daughter, click here!

Excursion Day

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



Last Wednesday, my sister U, who came for a holiday from Tanjung Malim, and my nieces P and C came to our house. I picked them up from my mother house. My girls were looking forward for their sleep over. Especially Tazzie. I cooked lagsane for dinner while Honey made chocolate cake for dessert.

U and me were talking about what had happened when we were young, that night. We laughed a lot. There were so much memories that we shared together. Alhamdulillah, I am so glad she is here. Subhana Allah, with only one word, memories came and suddenly I remember like a movie being play in front of me.



On Thursday, we went to the Wester Australia State Library because my niece who is studying education at UPSI really like to go there. I loves this library. Sixteen years ago when I was a student, here is my hiding place. We also saw photograph display at the foyer of the library. Insha Allah it would inspire and motivate Honey who likes photography.

We went to the Art Gallery of Western Australia after that. Masha Allah, the current exhibition is Raised by Wolves, an alternative theme, views of today's family. The message was really effected to me.

By 12:30 we all feel starving. We headed to Insan Cafe for lunch. It was crowded with many working people who were rushed at their lunch time. I hate lunch time in the city. But we were too hungry. Alhamdulillah, the foods is great at Insan.



After lunch, we visited the Western Australia Museum. My girls like the Discovery Center because there they can open and close the drawers,look and touch some of the display. They also enjoyed looking at the embalmed animals and skeletons.

When we arrived home I was too tired and tried to have a nap. But I can't, because the girls were making a loud noises while playing the soccer table. I ended joining them play then we played outside. We played treasure hunt, hide and seek and "belonacar".

Alhamdulillah, we had such a wonderful time.

Weekend with Family

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



Last weekend we went to Mandurah for a picnic. I prepared Mee Siam Goreng on that morning. I got my children ready by 10. We were going together with my parents and sisters' family. Also were my sister U who came from Tanjung Malim with her two daughters P and C.

We arrived there at 12 noon. First, I ate Nasi Lemak which my older sister I, cooked. Masha Allah it was nice Nasi Lemak as she always cooked it. She did not used to cook when she lived in KL. When I visited her in KL about 6 years ago I was surprised looking at her kitchen. It was so clean like the display kitchen in the shop. Compared to my sister U, who cooked most of the day when I stayed at her place at Setapak. Masha Allah, she is a great cook.

When we finished eating, my father stayed in the car because he cannot stand the cold weather. It was sad that his age did not permitted him to involved like he used to be. But Alhamdulillah, we are so grateful for him.

After that we did salah zuhr, before we started fishing. My mother went first. She loves fishing too much. She is very good at it too. I caught only one bream and a few blow fish. Then I decided to stop to take some photos.

I really enjoy sitting on the bench looking at the other fishing. Masha Allah, it was a nice day with mild wind. Alhamdulillah, the smell of the sea was so fresh and Subhana Allah the air was clear and pure. Occasionally the sound of the waves break the silent when boats crossing under the bridge.

We stopped fishing for Asr prayer before we continued eating. I ate Sardine sandwiches, my younger sister N made. I also ate the Mee Siam and drink hot tea.



I like looking at my children having fun and seeing them interacted with each other and their cousins in a well behaved manners, Masha Allah.

Miss Abah

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

"I want Abah.", Tazzie cried. She is missing her father dearly. I said that he will not be home until Monday. She didn't want to know. She wanted him and she wanted him now.

"Abah, I miss you, come home quickly.", She said yesterday when he called.

"Promise me you come home quickly.", She continued. She was smiling at something that her Abah saying to her. She must has been happy hearing his voices.

I didn't realise how much we are missing him until he went. Alhamdulillah, at least we are aware how loving and caring he is and the fact that his absent made us missing him. We can't wait. Come home soon!

Cerebal palsy suffers call for more financial assistance

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

ABC News

Posted Thu Sep 2, 2004 5:52am AEST

The Cerebral Palsy League is calling for the private health insurance rebate to be extended to meet the needs of people with disabilities.

Spokesman Geoff Rowe says many cerebral palsy sufferers cannot afford private health insurance and often face long waiting periods for treatment.

Mr Rowe says families need more financial assistance

"People with cerebral palsy by and large have a significant number of medical bills associated with their disability," he said.

"For a lot of the parents of young children with a disability we find that one of them has to give up full-time work to care for their son or daughter, so immediately their income is reduced."

Remove a Harmful Thing from the Way

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

I was on the way to the kitchen, I saw Kay nearly fell on the floor. Her foot tripped over the vacuum cleaner cord, which was laying on the floor. I didn't do anything about it. When I was washing the dishes, I heard some noises from the lounge room.

"Tazzie... is that you.", I asked from the kitchen. She answer yes.

"What are you doing?", I asked her again while still doing the dishes.

"I am a good girl, mama.", she said. In my mind I see trouble. She is up to something, I thought.

"I am putting the vacuum cord in so Kay won't trip over it again.", She continued.

"Good girl, Tazzie, Masha Allah, how thoughtful you are.", I said. She came to me and gave a big smile and I smiled at her back.

Masha Allah, today my five years old daughter taught me the important of safety. Subhana Allah, she also reminded me the hadith about sadaqah.

Narrated Abu Huraira: Allah's Apostle said, "There is a (compulsory) sadaqa (charity) to be given for every joint of the human body (as a sign of gratitude to Allah) everyday the sun rises. To judge justly between two persons is regarded as sadaqa, and to help a man concerning his riding animal by helping him to ride it or by lifting his luggage on to it, is also regarded as sadaqa, and (saying) a good word is also sadaqa, and every step taken on one's way to offer the compulsory prayer (in the mosque) is also sadaqa and to remove a harmful thing from the way is also sadaqa." Sahih Bukhari(Book #52, Hadith #232)

As a reminder to me esspecially are ayah from the Qur'an about charity, Allah subhanahu wa ta'ala said,

And spend (in charity) of that with which We have provided you, before death comes to one of you and he says: "My Lord! If only You would give me respite for a little while (i.e. return to the worldly life), then I should give Sadaqah (i.e. Zakat) of my wealth , and be among the righteous (i.e. perform Hajj (pilgrimage to Makkah)).
( سورة المنافقون , Al-Munafiqoon, Chapter #63, Verse #10)