In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Wednesday, 31 October 2007

Short History of Hajj

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

11/8/2006 - Religious - Article Ref: IC0301-1834
Number of comments: 56
By: Invitation to Islam
IslamiCity* -

Hajj literally means 'to set out for a place'. Islamically however it refers to the annual pilgrimage that Muslims make to Makkah with the intention of performing certain religious rites in accordance with the method prescribed by the Prophet Muhammad .

Hajj and its rites were first ordained by Allah in the time of the Prophet lbrahim [Abraham] and he was the one who was entrusted by Allah to build the Kaba - the House of Allah - along with his son Ismail [Ishmael] at Makkah. Allah described the Kaba and its building as follows:

"And remember when We showed Ibrahim the site of the [Sacred] House [saying]: Associate not anything [in worship with Me and purify My House for those who circumambulate it [i.e. perform tawaaf] and those who stand up for prayer and those who bow down and make prostration [in prayer etc.]."
[Surah Al-Hajj 22:26]

After building the Kaba, Prophet Ibrahim would come to Makkah to perform Hajj every year, and after his death, this practice was continued by his son. However, gradually with the passage of time, both the form and the goal of the Hajj rites were changed. As idolatry spread throughout Arabia, the Kaba lost its purity and idols were placed inside it. Its walls became covered with poems and paintings, including one of Jesus and his mother Maryam and eventually over 360 idols came to be placed around the Kaba.

During the Hajj period itself, the atmosphere around the sacred precincts of the Kaba was like a circus. Men and women would go round the Kaba naked, arguing that they should present themselves before Allah in the same condition they were born. Their prayer became devoid of all sincere remembrance of Allah and was instead reduced to a series of hand clapping, whistling and the blowing of horns. Even the talbiah [1] was distorted by them with the following additions: 'No one is Your partner except one who is permitted by you. You are his Master and the Master of what he possesses'.

Sacrifices were also made in the name of God. However, the blood of the sacrificed animals was poured onto the walls of the Kaba and the flesh was hung from pillars around the Kaba, in the belief that Allah demanded the flesh and blood of these animals.

Singing, drinking, adultery and other acts of immorality was rife amongst the pilgrims and the poetry competitions, which were held, were a major part of the whole Hajj event. In these competitions, poets would praise the bravery and splendor of their own tribesmen and tell exaggerated tales of the cowardice and miserliness of other tribes. Competitions in generosity were also staged where the chief of each tribe would set up huge cauldrons and feed the pilgrims, only so that they could become well-known for their extreme generosity.

Thus the people had totally abandoned the teachings of their forefather and leader Prophet Ibrahim. The House that he had made pure for the worship of Allah alone, had been totally desecrated by the pagans and the rites which he had established were completely distorted by them. This sad state of affairs continued for nearly two and a half thousand years. But then after this long period, the time came for the supplication of Prophet Ibrahim to be answered:

"Our Lord! Send amongst them a Messenger of their own, who shall recite unto them your aayaat (verses) and instruct them in the book and the Wisdom and sanctify them. Verily you are the 'Azeezul-Hakeem [the All-Mighty, the All-Wise]."
[Surah Al-Baqarah 2:129]

Sure enough, a man by the name of Muhammad ibn 'Abdullaah was born in the very city that Prophet Ibrahim had made this supplication centuries earlier. For twenty-three years, Prophet Muhammad spread the message of Tawheed [true monotheism] - the same message that Prophet Ibrahim and all the other Prophets came with - and established the law of Allah upon the land. He expended every effort into making the word of Allah supreme and his victory over falsehood culminated in the smashing of the idols inside the Kaba which once again became the universal center for the worshippers of the one True God.

Not only did the Prophet rid the Kaba of all its impurities, but he also reinstated all the rites of Hajj which were established by Allah's Permission, in the time of Prophet Ibrahim. Specific injunctions in the Quran were revealed in order to eliminate all the false rites which had become rampant in the pre-Islamic period. All indecent and shameful acts were strictly banned in Allah's statement:

"There is to be no lewdness nor wrangles during Hajj."
[Surah al-Baqarah 2:197]

Competitions among poets in the exaltations of their forefathers and their tribesmen's achievements were all stopped. Instead, Allah told them:

"And when you have completed your rites [of Hajj] then remember Allah as you remember your forefathers; nay with a more vigorous remembrance."
[Surah al-Baqarah 2:200]

Competitions in generosity were also prohibited. Of course, the feeding of the poor pilgrims was still encouraged as this was done during the time of Prophet Ibrahim but Allah commanded that the slaughtering of the animals which was done for this purpose should be done seeking the pleasure of Allah rather than fame and the praise of the people. He said:

"So mention the name of Allah over these animals when they are drawn up in lines. Then, when they are drawn on their sides [after the slaughter], eat thereof and feed the beggar who does not ask, and the beggar who asks."
[Surah al-Hajj 22:36]

As for the deplorable practice of spattering blood of the sacrificed animals on the walls of the Kaba and hanging their flesh on alters, then Allah clearly informed them that:

"It is neither their meat nor their blood that reaches Allah, but it is Taqwaa (piety) from you that reaches Him."
[Surah al-Hajj 22:37]

The Prophet also put a stop to the practice of circling the Kaba in a state of nudity and the argument that the pagans put forward to justify this ritual was sharply rebutted in Allah's question:

"Say: Who has forbidden the adornment [i.e. clothes] given by Allah which He has produced for His Slaves?"
[Surah al-A'raaf 7:32]

Another custom which was prohibited through the Quran was that of setting off for Hajj without taking any provisions for the journey. In the pre-Islamic period, some people who claimed to be mutawakkiloon (those having complete trust in Allah) would travel to perform Hajj begging for food through the whole journey. They considered this form of behavior a sign of piety and an indication of how much faith they had in Allah. However Allah told mankind that to have sufficient provisions for the journey was one of the preconditions for making Hajj. He said:

"And take a provision [with you] for the journey, but the best provision is at-Taqwaa (piety)."
[Surah al-Baqarah 2:197]

In this way, all the pre-Islamic practices, which were based on ignorance, were abolished and Hajj was once more made a model of piety, fear of Allah, purity, simplicity and austerity. Now, when the pilgrims reach the Kaba, they no longer find the carnivals and the frolic and frivolity that had once occupied the minds of the pilgrims there before. Now, there is the remembrance of Allah at every step and every action and every sacrifice was devoted to Him alone. It was this kind of Hajj that was worthy of the reward of paradise, as the Prophet said: "The reward for an accepted Hajj is nothing less than paradise."

May Allah grant us all the ability to visit His House and perform the Hajj in the manner of the Prophet Muhammad . Aameen.

Footnotes

1 Labbaik Allahumma labbaik... (Here I am present, O' God, I am present...) This is the chant which the pilgrims say when they are traveling for pilgrimage.

Source: Invitation to Islam, Issue 1, May 1997

Wednesday, 24 October 2007

Assessment Day at Carson Street School.

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Alhamdulillah, we decided to enrolled Muja at Carson Street School for kindy next year on Conductive Education. Today we went there for an assessment. Alhamdullillah, she was in her best mood. Although she looked tired, she done well in the assessment.

The staffs at that school was very friendly. I was touched seeing how caring people can be to the special needs children. I think carer is doing an amazing unselfish work to other who is in needs. I saw two other girls who we meet at TCCP attending the class that Muja is going to.

The assessment was also video recorded on the following:

1 Sitting herself on the floor without support. Legs straight and arms support herself.
2 Laying down on her back. Turning her head from left to right. She didn't turn head when a musical instrument was shaking on her other side of the head. Holding rattle on her hand and change hand with help.
3 Rolling from side to side and rest on her tummy with her head up with help.
4 Crawling with the arm wraps. She was doing it really well with the help of the arm wraps. She pushes her leg forward without help. She hold her body weight and her head was up.
5 Sitting on a stool on 5 counts. She tends to fall to her side.
6 Standing with the help of wallbars.
7 Walking using the wallbars. Once she grap it, she push it forward and try to take a step. Masha Allah I believe one day she will walk, Insha Allah. With Allah help everything is posible.
8 Sitting on the stool while holding on a the sides of stool.
9 Playing with toys while sitting and looking herself in the mirror.

Masha Allah I did not realised how clever she is and she has huge improved on her ability to learn. Subhana Allah, on the assessment day I was a proud mother of my Muja, who has cerebral palsy and in special needs. Alhamdulillah, she is the best gift from Allah for me and our family.

Friday, 19 October 2007

Two Treatments in a Day

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Muja has her cranio osteopathy appointment yesterday at The Healing Point with Illana. The treatment took about 45 minutes on a massage table where she is touch or manipulate gently around the head, backbone and tight. She enjoyed her treatment by Illana and gave her a few smiles and communicate with her by making some sounds.

I was really sleepy because I stayed awake with Muja last night since 3 am. I was hoping that I could have a little nap to charge me up! But...Alhadulillah, May Allah give me strength, Ameen.

In the afternoon I took Muja to PMH for her 3rd Botox Injection on her tight muscles. When we arrived there the nurse did general check up and weight her. She weight 12.25 kg, Masha Allah. She has to be weight so that they can calculate out how much pain relief medicine to give to her. Last time they gave her something that made Muje scream, stiff and having seizures. Alhamdulillah they change into a different medicine and she was asleep with open eyes and hardly felt any pains.

I gave her Arnica to calm her and myself and Cuprum for her seizure. Before the injection the nurses put some cream on her inside tights and the back of her tights. A few minutes after the pain relief was given to her she felt asleep with open eyes. It was only after an hour we enter the treatment room where she received about 8 injections and only felt a bit of the pain. Alhamdulillah.


Cream on back of Muja tight before the Botox injections.



The cream is apply inside her tight before the Botox injections is given.


Last time we have to wait in an uncomfortable TV room. This time we were in a room in ward 5A where there are 6 beds in it. There were 4 more children came for the same injection but for different reason, but most of them or three of them because they are walking tip toe. The nurse made a mistake by putting cream on a wrong leg on one of the girl and I could hear the poor little girl screams from the treatment room. It sound scary to me. How could they make a mistake and the parents didn't realised it? They were so angry. I don't blame them.

After the injection Muja paediatrician discuss with me her MRI test result which showed some mild seizure which not to be worried. The test was done in April, 2007, and I was surprised they didn't contact me to discuss about the result sooner. She would discuss about any medication options went we see her in a month time.

Her paediatrician said that she won't be on Phenobarbiton this time as she was on it before since she was born until she was about 9 months. For nine months we had the worst nightmare in our life. Continues crying, spasm and awaking night. She was in her own world seperated from us. Her reflux was getting worst until we decided to stop the reflux medication with the help from our family doctor. Suddently her reflux gone!

With the help from our family doctor again, who said that Muja was a drug addict at that time, we stop the medicine. She only has couple of seizures since we stop. One when she had tummy infestions and one when we went for her 2nd botox injection.

We decided to do alternative treatment for many reasons which I am not going to discuss here yet. We went to homeopath to treat her seizure since Muja was 9 months old. At that time I remember she also had very bad urine infention and not to forget her reflux. We also used the homeopathic remedies for them and alhamdulillah she was better. Alhamdulillah the remedies really control her seizures as well. To me that was approved by her recent MRI test showing that she only has mild seizures activities. Alhamdulillah.

It was a long day for us from 9:30 am leaving the house to Healing Point. Got home, feed Muja. Had my lunch and pray Dzuhr then went to PMH. We arrived at the hospital at 12:50 pm and left it at 4:00 pm.



Muja was asleep when we leave the hospital. The medicine really make her sleepy. She was still asleep until 10 pm that night. She even asleep during our dinner time at Batavia Corner. Alhamdulillah, at least she has time for sleep.

Botox beats cerebal palsy symptoms

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

The 7:30 Report Transcript

Reporter: Natasha Johnson

KERRY O'BRIEN: Botulinum toxin is one of the most poisonous substances on the planet, but its potential as a biological weapon hasn't stopped it becoming one of the most popular cosmetic treatments for wrinkles.

Vanity and weapons aside, the toxin, more commonly known as Botox, is playing an important role in treating cerebral palsy.

So far it's only approved for treatment of children whose cerebral palsy causes them to walk on their toes.

But Melbourne researchers are experimenting with a combination of botox and intensive physiotherapy to treat affected arms.

And the testing produced a surprising discovery that children's brains could actually reorganise to improve their motor skills.

Natasha Johnson reports.

NATASHA JOHNSON: Amelia Frame likes to think of herself as just like any other eight-year-old.

But, until recently, she struggled to perform the kinds of tasks most of her friends take for granted, like tying up shoelaces.

She has cerebral palsy, which is caused by brain damage suffered around the time of birth, which affects motor skills.

Its severity can vary widely but, in Amelia's case, it affects her right side only, impeding use of her right arm and leg.

MARIA FRAME: When she was first diagnosed, they weren't sure whether she was going to be able to walk.

They thought her right arm, which has being affected, was actually going to end up being a paperweight.

She was fairly dependent on Malcolm and myself helping her dress and also with some of her -- at meal times, cutting up her food, if she was at school, just catching a ball, that sort of thing.

She's had problems with coordination.

NATASHA JOHNSON: From six months of age, Amelia Frame has undergone intensive therapies to help her overcome her disability.

One of the most successful has been injections of the deadly nerve agent Botulinum toxin to treat walking on her toes, a common problem for children with cerebral palsy.

The toxin, commonly known as botox, is a popular cosmetic treatment for ironing out wrinkles.

But it's also effective in relieving muscle spasms and spasticity caused by cerebral palsy.

ROSLYN BOYD, MURDOCH CHILDREN'S RESEARCH INSTITUTE: It is quite ironic when you say to parents, "This is a deadly toxin and we would like to inject small quantities."

But we know we can do that safely.

NATASHA JOHNSON: After successfully being treated with botox to improve her walking, Amelia Frame happily volunteered for a research project trialling Botulinum toxin injected into her arm, combined with intensive physio and occupational therapy.

Researchers from Melbourne's Brain Research Institute and the Murdoch Children's Research Institute then tested the effectiveness of the therapy by scanning her brain while she tapped her affected finger.

She was scanned and tested performing various tasks before treatment, three weeks later and then a further three months after treatment.

MARIA ROSLYN BOYD: Amelia had a lot of difficulty with very fine movements and she had a lot of difficulty lifting her wrist up and turning her hand over and being able to grasp her thumb and finger together, and now she can do those activities much more easily.

NATASHA JOHNSON: While delighted to see her movements improving, what excited researchers even more was what the scan showed had happened to her brain in the three months of treatment.

The green on Amelia's first scan indicates the limited ability she has on one side of her brain to move her affected finger.

Three weeks later, the yellow indicates greater activity on both sides of her brain to move her finger.

Her third scan shows an unexpected switch in activity to the opposite side of the brain.

PROFESSOR GRAEME JACKSON, BRAIN RESEARCH INSTITUTE: Twelve weeks later is the most dramatic of these.

She's now got a classic pattern of activity that we would see in you or I, except it's on the opposite side of the brain.

It's gone from the normal side in the first scan to a normal pattern on the opposite side after three months.

And that's really quite extraordinary.

NATASHA JOHNSON: In fact, researchers say the part of Amelia's brain that has now taken over operating her affected right finger is the same part of her brain that already operates her unaffected left finger.

PROFESSOR GRAEME JACKSON: This is the part of her brain that was being used to control, in this case, her left hand and now it's being used to control both her left and her right hand.

It seems that what she's done is she's learned to suppress the bad bit of her brain and reinforce the pathways that are there that attach that finger to the good bit of her brain.

NATASHA JOHNSON: What this means, the researchers believe, is that the brain can reorganise itself, challenging previously held beliefs that the brain wasn't flexible beyond the early years of childhood.

PROFESSOR GRAEME JACKSON: Neurologists have always thought that, if you then damage a bit, you can't reorganise the brain after a certain critical period of age.

This suggests that that age may be most of our life or even may be a fundamental mechanism of the brain.

Now, that might not have surprised some fundamental scientists in a lab somewhere but in clinical medicine that's a really fairly radical concept.

NATASHA JOHNSON: The researchers scanned 10 children for the study.

All showed some brain changes but three experienced the dramatic reorganisation displayed by Amelia Frame.

They now need to expand the study, with the next step to identify exactly which therapies and how much of them trigger brain change.

ROSLYN BOYD: Is more therapy going to be even more effective or would that be too much?

Should we be doing that in short bursts or over a longer period?

So we can start to look and examine exactly how the brain adapts.

NATASHA JOHNSON: While this study has focused on cerebral palsy, researchers are using the scanning technology to test for brain reorganisation in other conditions like epilepsy, schizophrenia and stroke.

Such discoveries may arouse excitement amongst medical professionals, but it's not even close to that felt by Amelia Frame and her family.

MARIA FRAME: It makes us extremely happy -- peace of mind that we know that she's going to be able to cope as she gets older.

Something as simple as tying up a shoelace, for us, was just a huge thing.

It was just great.


Transcripts on this website are created by an independent transcription service. The ABC does not warrant the accuracy of the transcripts.

Thursday, 18 October 2007

Colin Farrell's son has cerebral palsy

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

October 17, 2007 08:18am

Article from The Daily Telegraf, Taken from news.com.au

HOLLWOOD hellraiser Colin Farrell has revealed that his young son struggles to walk, speak and learn because he suffers from a form of cerebral palsy.

Four-year-old James was diagnosed with the rare condition Angelman Syndrome before he reached his first birthday.

Reformed wildman Farrell has now chosen to speak out about his son's condition in the hope that it will give inspiration to other parents.

Farrell said: "With my son the only time I'm reminded that there is something different about him - that he has some deviation of what is perceived to be normal - is when I see him with other four-year-olds.

"Then I go, 'Oh yeah', and it comes back to me. But from day one I felt that he's the way he's meant to be.

He also says that he feels incredibly blessed to have his son in his life.

"There is no heartbreak about it, it's not a sad story. I'm incredibly blessed to have him in my life," he told Britain's Daily Mail.

'He has enriched my life incredibly and I wouldn't have it any other way."

And Farrell was eager to praise the efforts of little James in coping with his disorder, a form of cerebral palsy which is usually characterised by developmental delay, speech impediment and seizures.

"He took his first steps about six weeks ago and it was four years in the making. All the work is his - he's worked his a**e off for four years and when he took the steps it was incredible. There wasn't a dry eye in the house.

"He's broken that barrier and it's about building on that now."

James was born in September 2003 and Farrell and his ex-girlfriend Kim Bordenave - an American model - discovered that he had Angelman Syndrome when he was just seven months old.

- with BANG Showbi

Tuesday, 16 October 2007

Sleep Solutions

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Sue, from "Sleep Solutions' team at TCCP, came today for Muja sleep review. She came with Muja OT, Emma and a student. From the sleep dairy that I have been recorded we found out that the constipation disturb her sleeping apart from teething and not being well. Needs to refer Muja to the dietician for constipation and paediatrician for sleeping medication.

Sue reviews Muja sleeping position by putting few pillows next to her legs and in between legs. Muja bed needs to be raise on head side for better breathing and I will get the bed raisers from River Abilities in Bentley. The funds will take six months of waiting list so it is better for me to buy it myself.

Other solutions for Muje sleep problems which we already implement including a calming routine before sleep like a warm bath and reading and supplications. We make the night boring and off the light in her room. She has supporting posture which we got from TCCP about 6 moths ago. She also takes melatonin before sleep.





Research has shown that at Muja age of 3 years and 4 months she needs 11 hours of sleep. According to the brochure I received from TCCP about Sleep Solutions for babies and children with Cerebral Palsy, children with cerebral palsy need a good night sleep for:

  • growth and development
  • general health
  • energy for daily activities
  • mood and well being
  • social and family interaction
  • memory and learning
  • attention and concentration.


Children with cerebral palsy have sleep disturbance because they have

  • pain and discomfort due to muscle spasm, abnormal postures, temperature/perspiration, reflux, intestinal problems and breathing difficulties
  • behavioural and learning difficulties related to intellectual disability, autism, AHAD, epilepsy, sensory impairment and health issues
  • difficulty managing their sleep environment such as adjusting bedding, lights or changing position in bed

Monday, 15 October 2007

Damba Cinta-Mu by Raihan

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu


Tuhanku ampunkanlah segala dosaku
Tuhanku maafkanlah kejahilan hamba-Mu

Ku sering melanggar larangan-Mu
Dalam sedar ataupun tidak
Ku sering meninggalkan suruhan-Mu
Walau sedar aku milik-Mu

Bilakah diri inikan kembali
Kepada fitrah sebenar
Pagiku ingat petang kualpa
Begitulah silih berganti

Oh Tuhanku Kau pimpinlah diri ini
Yang mendamba cinta-Mu
Aku lemah aku jahil
Tanpa pimpinan dari-Mu

Kusering berjanji depan-Mu
Sering juaku memungkiri
Kupernah menangis kerana-Mu
Kemudian ketawa semula

Kau Pengasih Kau Penyayang Kau Pengampun
Kepada hamba-hamba-Mu
Selangkahku kepada-Mu
Seribu langkah Kau padaku

Tuhan diri ini tidak layak ke syurga-Mu
Tapi tidak pula aku sanggup ke neraka-Mu
Kutakut kepada-Mu
Kuharap jua pada-Mu
Mogaku kan selamat dunia akhirat
Seperti rasul dan sahabat

Saturday, 13 October 2007

Eid Outfits

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu



Hani





Khai



Tas


Muja

Thursday, 11 October 2007

Eid-ul-Fitr Mubarak

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Takbir



Taqabal Allahu minna wa minkum


Wednesday, 10 October 2007

Huge increase in Howard Government funding for People with Disability and their Families

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Media Releases

Huge increase in Howard Government funding for People with Disability and their Families

28/06/2007

A $1.8 billion package for people with disability and their families will help reduce the critical level of unmet need for disability services and positively impact on the lives of people with disability.

Minister for Families, Community Services and Indigenous Affairs, Mal Brough today said as part of this package, $962 million would be provided to help older carers and their families.

"With some services available in 2007-08 and increasing each year thereafter, this will translate into around 1750 new supported accommodation places and 800 new respite places to be available by 2012, and additional in-home support and respite to assist older carers continue their caring role," Mr Brough said.

"At a total cost of $721.2 million, carers of around 130,000 children with disability under the age of 16 years will receive $1000 each year, with the first payment in October 2007, to assist with the purchase of necessary support, such as a wheelchairs, communication aids, therapy and respite.

"The Howard Government will commit $23.6 million over five years to enable several services for children with disability to continue providing much-needed respite, early intervention and other services for children in their local area.

An increased investment in employment services for people with disability, will include

* $21.6 million over five years for an extra 500 supported employment places in business services;
* $31 million to continue targeted support to people with disability who cannot benefit from supported employment;
* $21.8 million in viability support to assist business services in temporary crisis; and
* $26.5 million in increased funding for disability services.


"As with the recent initiatives for Mental Health and Younger People in Residential Aged Care, the Howard Government is responding to crisis in an area of State and Territory responsibility - specifically the provision of supported accommodation, respite and early intervention services.

"I will continue to work with the States and Territories toward a new Commonwealth State Territory Disability Agreement, and maintain the Howard Government's offer of $3.3 billion to assist states deliver services in their areas of responsibility.

"I urge the States and Territories to match the Howard Government contribution, by increasing funding to deliver more services in areas of critical need, to further improve the lives of people with disability,' Mr Brough said.

Customers who are interested in getting more information can call 1800 101 888 or visit the FaCSIA website.

Tuesday, 9 October 2007

UK Mother wants hysterectomy for disabled daughter

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Source: Reuters

Mon Oct 8, 2007 12:48pm EDT

LONDON (Reuters Life!) - A British mother's desire for her teenage daughter, who has severe cerebral palsy, to have a hysterectomy is being opposed by a leading disability organization which says it is unethical.

Alison Thorpe, from Essex in southern England, wants her 15-year-old daughter Katie to have the operation to prevent her suffering the long-term discomfort of periods.

She told television's Sky News that her daughter should have the operation to protect her from the "pain, discomfort and indignity" of periods.

"It's not a decision we took lightly," she said.

Katie cannot walk or talk and understands little of what is said to her, making it difficult for her to give consent to the operation.

But Scope, an organization that supports people who have cerebral palsy, caused by damage to the motor control centers of the young developing brain, said the operation was not necessary and would be traumatic.

Executive Director Andy Rickell said he recognized the difficulty for parents.

But he added: "It is very difficult to see how this kind of invasive surgery, which is not medically necessary and which will be very painful and traumatic, can be in Katie's best interests.

"This case raises fundamental ethical issues about the way our society treats disabled people and the respect we have for disabled people's human and reproductive rights.

"Scope is concerned that doctors are supporting parents in this case," he added in a statement.

It opposes attempts by Thorpe to seek medical consent for the operation and is considering what action to take.

Rickell called on the government to provide the funding and support needed for parents "so they do not feel pressured to resort to such drastic measures".

He also called on the government to introduce additional legal safeguards, including the right to an independent advocate for any child in such a situation.

"We want to see a clear framework put in place for dealing with ethical decisions of this complexity, which places the rights, and best interests, of disabled children at the heart of any decision," he said.

Thorpe has requested a referral by her doctor to have the operation carried out at a local hospital in Essex.

Mid Essex Hospital Services said in a statement it had received a referral but that no decision had been made on any treatment.

Monday, 8 October 2007

10th Hyperbaric Oxygen Therapy

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Today we went for Muja 10th session of Hyperbaric Oxygen Therapy (HBO) at the Oasis Hyperbaric Therapy. Insha Allah we aim for 40 sessions, then we will having a break before continue again. We have cancelled two sessions two weeks ago because she has cough and sinus. Alhamdulillah she is better.



In the chamber I hold her in a sitting position. I have to bent my head before it is fully pressurised. Once we get into it, it will be zipped twice. Then it starts pressurised. When the pressure rise my ear feel discomfort as pressure building in my ears like experienced when landing in an aeroplane. It would take about 5 to 10 minutes for it to be fully pressurised, then the oxygen starts coming in the chamber.

Alhamdulillah, Muja has not showing discomfort on most of the therapy sessions except when she was not feeling well last time where we decided to stop the therapy.



We were in for one hour. When the oxygen starts coming in I lay down with Muja next to me. I tried to get some sleep if I can and relax. There a re few times Muja felt asleep in it. When the therapy finished, the pressure in chamber is decreased. I hold Muja in the sitting position. At this time I would feel my ears pops. We went out only after the chamber if fully decompress.

Tuesday, 2 October 2007

China stem cell hopes for cerebral palsy girl

Bismillahir Rahmanir Rahim
Assalamu alaikum warahmatullahi wabarakatuhu

Telegraph.co.uk

Last Updated: 1:44am BST 15/05/2007

A British couple are hoping to send their eight-year-old daughter to China for revolutionary treatment for cerebral palsy, they said yesterday.

Kishor Tahiliani and his wife, Priti, plan to raise £18,000 for stem cell injections that they believe will give their daughter, Vaishnavi, known as Shonia, a more normal life.

The treatment is not yet available in the UK but a hospital in China has made a breakthrough in treating cerebral palsy. The procedure involves injecting stem cells into the spinal cord fluid. The stem cells then flow directly into the brain.

The treatment at Tiantan Puhua Neurosurgical Hospital in Beijing has already helped 19-year-old Gabor Bocskai from Hungary to walk, sit up, swim, concentrate for longer, see better and speak.

Mr Tahiliani, 34, who works in hotel management, said: "This is the best treatment for her. There are cerebral palsy children who were totally blind and now they can see, that's in Mexico.

"My wife spoke to an American woman. They were crying on the phone. Her child is able to do what a normal child does. He used to get fits before, all the epilepsy fits have gone. He was unable to walk and he is walking now.

"There are so many children who have improved. It's amazing really."

Until recently there has been no medical treatment for cerebral palsy, which is caused by poor oxygen supply to the brain before, during or immediately after birth.

The two-month treatment in China uses stem cells taken from the umbilical cords of healthy babies. These develop into new nerve cells and repair some of the brain damage.

Shonia will need physiotherapy and speech therapy to help her learn how to hold her neck, sit or stand alone and speak. Mr Tahiliani and his wife, a 34-year-old care assistant, discovered the breakthrough after a year-and-a-half of internet research.

He added: "I think many parents are still not aware of this revolutionary treatment and what it's doing for others."

He said: "China are quite advanced in this field.

"The UK has fallen behind at the moment. Research is still in its early stages here, it will be 2010 before it comes into action.

"I think it will open so many doors for children."

Shonia cannot speak but understands English and Hindi, she cannot sit or walk by herself and is confined to a wheelchair. When she was born, doctors had given up hope and told her parents, who live in Bournemouth, Dorset, that, if she lived, she would never walk or talk.

But her parents say she can smile, show happiness and respond to them and she is trying to formulate words.

Monday, 1 October 2007

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