In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Friday, 25 December 2009

Muja's communication progress




Masha Allah, Muja is really good at her communication now. She uses her PODD book more often to tell me anything like when she thought the nurses at PMH were helpful when she stayed in the hospital. She is very honest about everything for example she does not like her baby because she is noisy. She has a good sense of humour when she told me that she likes her uncle... NOT and gave him a big cheeky smile.


++++++++++

I want to tell you something
I want to show you something
It’s in
activities
something to eat or drink
drink
water

With the PODD communication book she told me that she wanted to tell and show an activity that goes in, which was drinking water through her mouth using a water bottle.

Masha Allah, as you know Muja does not drink or eat orally. When I put water bottle in her mouth and gently squeezed some water in her mouth. She swallows it. She even asked for some more water using her voice and when she finished she turn her head away. I told her that it was cleaver for her to show me that. Alhamdulillah, may be she is ready to drink using her mouth.


++++++++++

I am telling you something
It's about now
activities
watch TV
watch
TV show
turn TV off

I told Muja to watch TV, but she wanted the TV off. Instead of turning the TV off, her sister who was watching, turn it down. As her sister didn't want to turn it off I turned Muja's wheelchair facing the wall.

I like it
cleaver

She told me that I was cleaver by turning her face away from the TV.

something wrong
angry, grumpy, mad
and she looked at her sister Neefa

Muja told me that she was angry, grumpy and mad at her sister for not turning the TV off.

Tuesday, 22 December 2009

Helps is just around the corner

A month before Muje had her hips surgery, about end of October , I called a few charity organizations to ask funding for air conditioner. After some calls, Southcare Inc was willing to assist me lodge the application. There are a few things needed for submition, like a letter from medical practitioner stating Muja's condition, quotation from two places and income statements. The paper works took a bit of time especially letter from the doctor. Once the application ready, it is a matter of waiting.

Alhamdulillah last week I received a good news that the application is accepted. It took almost two and half month. The day I received the cheque I can't believe my eyes it was for real. Alhamdulillah, although the air conditioner is a little bit late, at least for the rest of this summer Muja will be comfortable with an air conditioner in her own room. I can't wait until January when the installation will take place. For now is another waiting game and I hope the temperature won't go any higher than 35.

Muja needs the air conditioner because she could not regulate her body temperature as she is physically not moving. When she is not comfortable she cries which will make her body sweaty and warm. Sometime it is tricky to understand her because she could not tell. Alhamdulillah, now she uses PODD communication book, a book with pictures and symbols to speak. Masha Allah, she is good at turning her head for "no" and for "yes" she tries moving her lips or blinking her eyes or smile.

I would like to thank the financial consultant at Southcare for her help. I really appreciate her good work of helping people in needs. Masha Allah there are a lot of government funding to approve non-government organisations to help them meet the needs of individuals who have a disability in perth so just ask around or start here or here.

Sunday, 13 December 2009

Award Ceremony Day

Ok. It's been a long time since I updated my blog. I have been so busy lately. There are so many things I wanted to write about but I don't know which one to start with.

Oh! It's summer holiday in Perth NOW! Alhamdulillah, it is good in a way that I don't have to race every morning like the V8 Supercar racers even though I never won anything. I just beat my own time once in a while.

On the other side, I have to entertain the kids at home who keep coming to me with bored faces. Especially our one and only Taz. She just asked me if she can sleep over at her aunt's and I said no. Then she went ballistic which I don't want to hear. Same old story. It's not fair this and that. Bla bla bla. I ended up playing marbles with her on my new king size bed. It was fun though. She was not happy to be a loser and tried to cheat. A good opportunity for me to teach her about being honest and cheating.

On Friday Muja and I went to her school for her Award Ceremony. Masha Allah her speech and language specialist, Yvette, awarded her the Communication Award for developing a clear method of indicating "Yes and No" through her PODD communication book. She also received two books which are called "This is my Book by Mick Inkpen" and "The Rainbow Fish by Marcus Pfister" and a pink castle photo frame.





Muja did not go to school since she had her hips operation. So everyone at her school was excited to see her. Muja was happy too and she was proud of the award, when everyone came to congratulate her. They gave her a "get well soon" card which they made. I think Muja appreciated it and it was so thoughtful. Shona her teacher/conductor said her cast comes with a build in grasp bar which is good for her to practice grasping.

On Muja's last day of school before the surgery her teacher suggested a special party for her. As you all know Muja cannot speak so she is using a PODD communication book to communicate. Muja said it was a good idea and that she had a idea. She wanted to invite her family but not her baby sister. They told her that the baby can't be left at home alone, so she was ok for the baby to come but she said keep the baby in the corner. She is VERY jealous and has a good sense of humour, right?

One last thing, my very special daughter, Kay, received three trophies for top student in Maths, SOSE and Islamic Studies. My other special girl Nifah got a certificate of appreciate for excellent Qur'an memorization. Sadly, Taz didn't get anything. Though she usualy gets something during her schooling life. The most recent one she got was for excellent work habits and excellent progress in iqraa & behavior.

Masha Allah at the end of the day my children really made me proud of them, even if they were not recognized with anything I will still be proud of them. They are so special to me and I love them all very much, that includes you Mamat.

Friday, 27 November 2009

Eid ul Adha Mubarak 1430 H

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Assalamualaikum Brothers and Sisters in Islam.

May I take this opportunity to wish each and every one of you a joyous Eid and may Allah accept all our deeds, ameen.

Wasalam
lightnur and family

Wednesday, 25 November 2009

Muja is in the hospital for her hips surgery

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Here we were again in PMH for Muja's third surgery but this time it is to correct her hips dislocation. Alhamdulillah after a long three hours of waiting in the Friendship Room, we were told that Muja was in the recovery room. Her father went in because I was feeding Fana, Muja's new baby.



Half an hour later Muja's father came and took us to an orthopedic ward 6A. I heard Muja's scream while I was walking down the ward hallway. As I entered the room her scream was louder and it broke my heart. Am I to be blame for sending her to the surgery? If only I can swap her pain, I am more than willing to do. Her spasm was stronger than ever. Her tears, I can't bear to watch. At that time I said la hawla wala quwata illah billah which translated as there is no strength nor power except Allah.



I asked Allah, the Almighty, Lord of Magnificent Throne, to give Muja a speedy recovery, give the best outcome from this surgery, give us patience with her, give her caring nurses to care her in the hospital, protect her from harmful medications and its side effects, protect her hips from dislocating again, make her affairs ease and to take her spasm away. O Allah give us what is good. Ameen.



As tomorrow is the day of Arafah, please remember Muja and us in your dua. Jazak Allahu khairan.

Monday, 16 November 2009

Prepare for the first 10 days of Dhul Hijjah

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته


Saturday, 14 November 2009

Summer is here and Muja needs an air conditioner to regulate her body heat.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Spring is towards it's end, but the humidity is increasing not like it was years before. It is getting warmer and Muja's body is sticky with her sweat when she wakes up in the morning. Her body and especially her checks becomes pink or reddish in the afternoon when the direct sun heats our living room. The heat makes her body warmer and more sweaty. If she cries her body heat increase. Usually I get a wet cloth and wipe her face and body to reduce the heat and refresh her. Sometime I spray her face with the Aromatic Mist I made using Neroli floral water and Neroli essential oil.

At night, her body gets hot again as the heat that absorb in our house during the day slowly radiates it's way back into the house. Like any other night, once she starts crying she can last at least an hour. It makes her body warm again and not able to fall asleep.

This summer, we have to live with the heat wave, unlike last year when we went away for holiday. This summer holiday will be different with new baby and looking after Muja post-surgery.

Muja needs an air conditioner because she cannot regulate her body temperature. I remember once her check got burnt because she rubbed it against the sofa one summer. If she is able to move, that won't happen.

I heard that there is a Disability Equipment Grant Program (DEG) that funding children with permanant disabilities who can't afford equipments such as vehicle modification (maximum grant $7500), assistive technology for with a vision impairment (maximum grant $5000), assistive technology for people with a communication impairment (maximum grant $5,000) an acconditioners (maximum grant $1,500). Who is eligible for the grant is in the information package here. while its application form is here.

The Government of Western Australia also gives Thermoregulatory Dysfunction Subsidy Scheme to assist the electrictity costs of operating heater or air conditioner equipments at home. Get the information sheet here and application form here. The subsidy is $424 per annum (rate is current as from 1 July 2009).

There is also a Life Support Equipment Electricity Subsidy if you need an uninterrupted power supply to run critical medical equipment. The subsidy rate depend on the equipments that range from as little as $30 for Nebuliser to $774 for Oxygen Concentrators. The rate are annually. The information phamplet and who can apply is here. To apply for the subsidy the application form is here while to apply for Life Support Identification is here.

I hope these information can help you in any ways. For now, I am off to shop for an air conditioner. Which one should I buy? The split system? Inverters? What size? Let me ask the expert at Harvey Norman.

Thursday, 12 November 2009

Japanese Research: Second Life

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Source: http://www.disabilityfirststop.asn.au/publications/

People with severe paralysis could find new opportunities from shopping to doing business or making new friends in the virtual world of Second Life by just thinking about it, if experiments being conducted by a Japanese university bear fruit.

In a recent demonstration, Junichi Ushiba, an associate professor at Keio University and head of the project, showed how electrodes attached to the scalp can pick up the electrical changes associated with brain activity.

The data can be interpreted by a computer, allowing a user to manipulate his or her online persona, or avatar, around the streets of Second Life without using a keyboard or mouse.


"When people are paralysed, of course their lives become restricted," Dr Ushiba said, as a graduate student took a virtual stroll through the historic streets of Kyoto City, Japan's ancient capital, without moving a muscle.

"But with this technology we can interpret their intention to move, allowing them to go shopping in Second Life or even set up a business."

San Francisco-based Linden Lab says about 500,000 people regularly visit Second Life, where commercial transactions can be carried out in Linden dollars, convertible to US dollars.

Dr Ushiba, who spends part of his time working at a medical rehabilitation centre, hopes to have people with paralysis try the system next year.

The project is still in its early days, and the students experimenting with the system must practice for a while and find the best spots on their scalps for the electrodes before they can stroll smoothly around.

Staying focused

"The important thing is to concentrate. You can't really think about anything else," 23-year-old Yasunari Hashimoto said after demonstrating the system.

Loss of focus can result in an inadvertent dive off a virtual cliff or into the sea.

Brain control of computers is already the subject of experiments in other countries, including the US BrainGate system, which enables users with an implant to open email and move objects such as wheelchairs.

"We have a lot of members who can no longer move at all," said Yoshiko Umeda, a volunteer nurse with an organisation representing some of the 7,500 sufferers from motor neurone disease, a progressive disorder that causes paralysis.

"I think they would very much welcome a system operated by the brain."

Dr Ushiba hopes the random element of Second Life will change the lives of patients immobilised by illness or injury, in a way that clicking buttons to send emails cannot.

"In ordinary life you go shopping and you might just happen to see a jacket you like and buy it," he said. "Or the cover of a book might catch your eye. Sometimes you chat with people you just happen to run into.

"This kind of chance encounter could enrich people's lives."

Tuesday, 3 November 2009

Because I love you.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته




"You are not fair, mama", said Tazz, my eight years old girl.

Why don't you let me stayed up late?
Because I love you.

Why don't you let me have an iPhone?
Because I love you.

Why don't you let me sleep over?
Because I love you.

Why don't you let me watch that movie?
Because I love you.

Why don't you let me say such and such word?
Because I love you.

Why do I have to eat my breakfast?
Because I love you.

This list can go on and on.

Am I over protective? NO, I don't think so. I am just setting boundaries for her to give her security. I want her to know what is acceptable and what is not in our house. I also want to make her realize how far she can go, when we have clear lines.

It is very important that we explain to the child why it is set. As the child grows older we can introduce more boundaries to ensure she is safe.

Instead of saying no to the children setting boundaries is a way to make it sound positive.
Alhamdulillah, Tazz is satisfied and secure when I say "because I love you" when she ask why I set those limits.

Tuesday, 27 October 2009

Ciater Hot Spring in Bandung

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ



I went to Ciater Hot Springs in Bandung last summer holiday with my family. The hot springs come from Mount Tangkuban Perahu's active crater and is piped into the private pool in the private bungalow where we stayed.

After a hot sweaty weather from Jakarta, I appreciate the cool weather in Ciater. It feels like Autumn or Spring in Perth. I can still remember breathing it's cool mountain air. It was so refreshing and the air is pure.

How can I forget the views from the bungalow? Subhana Allah, it is picturesque all around. I can just sit at the veranda watching the green with tea plantation climbing over the hills. There is a beautiful masjid over the hill far away from my sight.



The bungalow we stayed at was designed with woods, river stones and bricks. The wooden floor in the top make sound
when people walk on. This double story bungalow has 2 rooms with double beds, hot and cold shower and en-suite bathroom. It also has fire wall feature with river stones in the living room, entertainment room with International TV channel and karaoke; dining room and a bar with refrigerator, coffee, tea and mineral water. There is a fish pond in the front of the house and all around it has veranda. The house can accomodate up to 12 people comfortablly.



The best part of this private bungalow is it has a private hot spring water pool. This sulfuric water temperature is between 400 C - 450 C. When the water reach the eyes, it's sting.

They call this water healing water. It is said that this water cure various disease like paralysis, remathism, nerve and bone diseases and other skin diseases. I say it is good to loosen Muja muscles and to make it less tight. The important thing is she was happy and just enjoyed herself being in the water. Alhamdulillah, she benefit from nature and I believe nature can cure.

The water also did good to my skin as I suffer psoriasis. I notice that I stopped scratcing my skin and I didn't get itchy from mosquito bite.

There are few resorts and spas near where we stayed. We all went horseback riding to the go-kart before we were lead to arung jeram. The arung jeram is the best adventure activity I have done since I was in school age. This will be in its own entry, insha Allah later. There is a lot of activities for children as well.



When I think back it was so calm and peace there. I felt less tense and it soothe my soul. I don't mind to stay there for the rest of my life. It was so pitiful that I have to leave such a restful and still place. I hope I can return there just to have a quiet and relax holiday, next time - insha Allah.

Sunday, 25 October 2009

Spa treatment at Muja's school.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

I remember three years ago Muja's father attended a massage course because he wanted to learn how to massage the right way for Muja. Masha Allah he likes to give Muja a massage and Muja usually enjoy her father's touch.

Muja has vision and hearing impairment. For that reason she responds well to touching. I know she like soft touches. Every time I touch her she gives me her lovely smile. She stops crying when I hold her hand. She wants patting before she falls asleep. She loves cuddle.

Recently after Muja came back from school, I looked at her communication or diary book to read what she did on that day at school. On one day it wrote "Muja had spa today". Instead of hydro therapy alternately she has spa every Monday and Thursday. She loves being in the water. She finds it relaxing and tries hard to move her legs in the pool. Masha Allah. I have to say that the swimming instructors in her school are number ONE.

This week for the first time I read, "Muja had a massage today" and the next day it says "Muja had a reflexology today". WOW it is great. I always support alternative medicine. I think it is wonderful that her the school now also go towards it. Way to go Carson Street School.

The massage benefit Muja in many ways. It releases her pain and stress. It also reduces her spasm.

Therapeutic massage involves the soft tissue release of the muscles, tendons and ligaments which enables the patient to realize greater flexibility. When passive stretching is included in a session, the receiver will experience a further release and improved range of motion.

An experienced massage therapist employs a variety of strokes and methods of palpation during the session that help to open up the body’s many nerve pathways and muscles that surround the nerve network. Tight muscles lack blood and thus cannot function properly until this condition is reversed. The nerve network, the muscles, and soft tissue are nourished with oxygen during the massage as more blood is entering these areas.

[...]


I am so thankful for Conductive Education Program at Carson Street School. With this excellence program I hope Muja will make more progress. Again I say way to go Carson Street School.

I just wanted to thank you all(The Conductors, Teachers, Education assistence and Nurses) for your patience this year. I know Muja isn't an easy child to manage and I've recognize the time you've spent working with her. It would be easier for you to label her a troublemaker and walk away but instead you deal with issues as they arise directly and fairly, and I appreciate that.

They have no idea that I am so happy that Muja is enjoying pre-school. The activities they plan, the room they decorate, the friendships they help foster, it's all incredible, and it's helping Muja (and us!) believe that school is fun, which is incredibly important.

I am thankful that there are people like you in our system. Muja will thank you one day herself, I am sure of it.

Sunday, 18 October 2009

Muja's scheduled hearing review.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

It is the first week of school here after two weeks of Spring school holiday. Muja went back to school on Tuesday. She felt really tired after she came back from school. On Wednesday she did not go to school because she had her hearing review at Australian Hearing. She is wearing the Cielo 2P behind the ear hearing aids for both ear. She has moderate to severe sensorineural hearing loss at birth caused by lack of oxygen.

Sensorineural hearing loss

Sensorineural hearing loss can be acquired or congenital and is caused by damage to, or malfunction of, the cochlea (sensory part) or the hearing nerve (neural part).

Sensorineural hearing loss leads to a loss of loudness as well as a lack of clarity. The quantity and the quality of sound are affected and sometimes may limit the benefit of a hearing aid.

Causes of acquired sensorineural hearing loss include:

* the ageing process
* excessive noise exposure
* diseases such as meningitis and Meniere's disease
* viruses, such as mumps and measles
* drugs which can damage the hearing system
* head injuries.

In Australia, 20 children per 10,000 live births will be born with a congenital sensorineural hearing impairment. Causes include:

* inherited hearing loss
* premature birth, lack of oxygen at birth or other birth traumas
* damage to the unborn baby from a virus such as rubella
* jaundice.


At the clinic she was testing in the soundfield with bone conduction using the VROA testing. She respone to 65dB input. The audiologist, Katherine, changed the maximum output of Muja's hearing aids to 80 dB input when I complain about her being uncomfortable to loud noise. She also made her a new ear moulds with softer material to help it stick better and reduce whistling. Alhamdulillah there is no infection in her middle ears.

After the appointment we had morning tea at Croissant Express while feeding Muja through her PEG. When we arrived at the parking, Muja's little sister cried because she had a dirty nappy and hungry. Masha Allah she was sleeping since we left the house in the morning and woke up just on time that is three hours after her last feeding.

Monday, 12 October 2009

Muja's orthopaedic surgery pre operative meeting

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

A week ago Muja, her father and me went to PMH for orthopaedic surgery pre operative meeting with the PMH Orthopaedic Team (Cerebral Palsy Liaison Officer, Physiotherapist, Clinical Nurse Manager, Occupational Therapist, Social Worker and Orthotist).

Insha Allah, the date for soft tissues surgery has been scheduled for 27 October to releases her tight muscles that has pulled her hips out of its socket. Early this year Muja's right hips migration was 37% and last month's hip surveillance showed 39%.

Muja was very nervous that day. Her father was still thinking that she does not need this surgery. He was very consent about how uncomfortable she will be in the "broom stick cast" for six weeks.

It is not easy for me too. Sending her for another surgery, hospital stay and post surgery stress, these all make me uneasy. I only can put my trust in Allah The All mighty and remember the dua made by the people in the cave, "Our Lord! bestow on us Mercy from Thyself, and dispose of our affair for us in the right way!"

The outline that we discussed at the meeting:

  • surgical date - 27/10/2009
  • description of proposed surgical technique - lengthening of hip adductors +/- hip flexors and +/- hamstrings (knee flexors)
  • pain relieving medication - epidural
  • description/demonstration of splinting/plaster casts used post-operatively - plaster on both legs for about 6 weeks
  • seating and any possible wheelchair modifications that may be necessary - legboard on wheelchair
  • transfers - hoist and sling
  • toileting, bathing and general nursing care - sponge bath (keep plaster dry)
  • transport - in wheelchair in van with legboard bolted to wheelchair
  • return to home - about one week
  • return to school - usually about one month depending on her recovery
  • additional community support which may be required during this time - contact Local Area Coordinator for respite
May Allah helps us, ameen.

Muja's "cocktail" recipe.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

This recipe is for reference to Muja's carer, especially to her loving and caring big sisters Hani and Kayy. May Allah reward them with good abundantly for their unconditioned love.


60 ml Sunraysia prune juice
4 scoops Rafferty's Garden multigrain breakfast
1 teaspoon Abu Ibrahim's honey
1/4 teaspoon cinnamon
1/4 teaspoon Lawrance's chinese herbal
2.5 ml Katie's mix herb
1 ml Metagenics zinc drink
1/4 teaspoon Ultra Muscleze with Magnesium
1/4 teaspoon Ultra Potent-C High Doce Vitamin C


Mix all ingredients with H2O to make 250 ml. Feed Muja through her PEG. Flush with 10 ml of H2O.

Sunday, 11 October 2009

To remove or not to remove Muja's tonsils?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah, last Tuesday Muja's father and me took her to Natureco to see a Naturopath, Katie. We told her that we are not seeing any progress since she prescribed the herb mix especially her tonsil.

When the tonsils and adenoids is inflame, it is a sign that the body is fighting an infection. The tonsils become inflamed due to exposure to infection-causing bacteria or virus. Many herbs and foods can help fight the infection and soothe the inflammation of tonsillitis.

After listening to what we said, she prescribed her a new herb mix and vitamin C which can help fight the infection and soothe the inflammation of tonsillitis. When I said that I was worried that the herb mix trigger epilepsy to Muja as she make chewing and muscle spasm, she told me that she put echinacea which give a tingle in her mouth. In the new herb she took echinacea out.

She also increases her magnesium and zinc.

Masha Allah, the next morning I lay her little sister on her lap she used her left leg to touch her. At night her sister put a ball near her legs. She kicked the ball with both legs. It is too soon for improvement or it is just a coincidence. I don't believe in a coincidence but I believe it is meant to be a great sign for her improvement.

As for her sleeping alhamdulillah it is getting better. She still needs time to settle before sleep between one to two hours. Occasionally she takes up to three hours until she falls asleep. When she wakes up in the middle of the night, she needs repositioning and will go back to sleep. She is still snoring when sleep. Unlike a few weeks ago she will stay up until morning because she could not get back to sleep. By mid afternoon she will be too tired and become very grumpy and unsettled. When she is unsettled, she cries and has spasm.

Alhamdulillah, she open her bowel almost every day now, compare to three to five days a few months ago. Thanks to the prune juice and her PEG that is big enough for some real foods.

Alhamdulillah, something just happen by the Will of Allah. One day Muja had a big yawn and her father saw her tonsil. Since than he said about removing her tonsil immediately.

Sometime I feel like my husband is still on denial. He thought that there is nothing wrong with her girl and the doctors are making things up. It puts me in a difficult situation. For me any decision must be mutual. So if he says no to anything I have to go with him, so we're both accountable for the decision. I know this is not right. I should be more firm in making decision and be accountable for it. Although I hate to be blame if it is does not turn out to be what I expected.

Wow! It is so hard to be parent sometime. You always want what is best for your children but you can also be wrong. Am I making sense?

I need to make istikharah - ask Allah to guide me in making decision and make me satisfy with whatever He has decided.

Monday, 28 September 2009

Muja's little sister is home.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah my little one has been discharged last Wednesday, since she was in the Neonatal Intensive Care Unit for 10 days at KEMH and FH. She was born seven days before Eid-ul-Fitr through emergency ceasarian section at 36 gestation weeks because I had a placenta abruction. I lost a lot of blood but alhamdulillah I don't have to have a blood transfusion like previously when I had Muja. I am feeling dizzy sometime and the c-section is still in pain.

A day before she was allowed home, she had a brain scan to make sure it has no abnormality. The scan reminded me of Muja's MRI scan. It was devastating when the doctor said that she has severe brain injuries. I remember I cried and I still cry when I recall that. No mother would wish to hear such news.

A few days ago was the hardest thing for me, waiting for the result.

Yesterday my husband and me brought our little one to the hospital for a review and to discuss her brain scan she had last Wednesday. Alhamdulillah, the good news is her brain is normal. My husband and me are so relieved. Alhamdulillah. The doctor said that she is doing well and the scan was great. Her weight went up to 2550 g from 2430 g and her head circumference increase to 33 from 32cm. Masha Allah, she is growing and sucking really well.

Taking her home is like taking her to five mothers. Masha Allah, my girls just could not let her down. She was been held by her sisters one after another.

Sunday, 27 September 2009

Is she jealous of her little sister?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah, last Friday Muja's father took her to the PMH for ENT appointment. Masha Allah, this is the second time he brought her for an appointment alone without me. He wanted me to come but my c-section was still in pain and felt so weak to go around.

Since she is due for her soft tissues surgery next month, there is not much that can be done to her tonsil. Her tonsil will be reviewed in the next six months.

On the other hand we haven't decide whether to remove her tonsil or not. Poor thing. She is due for so many surgeries. Alhamdulillah, only her right tonsil is big but not swollen. Her sleeping is better but occasionally she wakes up in the middle of the night and can't go back to sleep until morning. Her breathing is still a concern though it's not as bad as before where she can hardly sleep at night.

Last time Muja's father took her to Naturopath for her tonsil. She prescribed her a herbal mix. I don't think that herbal is doing anything to her tonsil. I believe she needs a review. She is still taking Ant Tart 30 homeopathic remedy for wheezy breathing.

Alhamdulillah, her constipation got well with prune juice and cereal but before and after she open her bowel her tummy hurt. Alhamdulillah she is not taking the Movicol-half anymore since the prune juice works for her.

Guess who puts Muja to bed now? It is her father. Masha Allah, since Ramadan her father puts her sleep. He is doing a great job. She is having homeopathic remedies Arnica 30 for pain and Chamomilla 30 to calm her before sleep.

I suppose Muja kind of misses me. She can definitely sense that there is someone else taking her place from me. On Eid day when she visited her little sister for the first time at the hospital, she turn her face away from her little sister when I showed her to Muja. Is she jealous? I bet she is.

Wednesday, 23 September 2009

Conductive Education Center of Western Australia Newsletter

I am just posting a link to Conductive Education Center of Western Australia recent Newsletter that is available to download here. There are few great news in it. Alhamdulillah, a new sponsorship from Realmark Real Estate and there will be a new Teacher/ Conductor for next term (big HOORAY). I am glad because it open the door for more children that need the CE program here in Perth.

I am off to hospital to see my little one. Please remember us in your prayer.

Tuesday, 22 September 2009

I put my faith in Allah.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Muja's little sister is 1 week and 3 days old today. After droping Muja to school today, I went to Fremantle Hospital to visit her. She was due for her feed. As I enter the nusery she was crying. I changed her dirty nappy and breast feed her right away. Masha Allah, she sucked really well, unliked Muja when she was a baby and still at the hospital intensive care unit. Muja was tube fed the whole time.

After feeding her the nurse and I took her to the Radiology to scan her brain. It was so hard for me, watching it. My breast felt hard to breath. Verily all power and strength belong to Allah. While watching her brain scan, I felt so weak and not be able to do any thing accept keep making supplications to Allah that everything will get better. All through out the scanning I made duas that there is no any abnormality in her brain, ameen.

Now is the hardest part which is waiting for the result. Please Allah make me patience and protect me from any negative thought, ameen. I put my trust in You.

I left the hospital because I had to pick up Muja from school. May Allah protect her.

Alhamdulillah, Muja was happy when I picked her up. I felt unwell. I had a headache in my left eye, sore throat and ear ache. My c-section feel pain as well. I lay down the whole afternoon in bed. Although I am tired now I can't go to sleep.

Despite Anti-Vitamin D Bias, CDC Stumbles on Deficiency Link to H1N1 Deaths

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته


Posted by: Dr. Mercola
September 22 2009 | 14,891 views

vitamin D, flu, swine flu, flu vaccine, swine flu vaccineSo far, Swine flu, H1N1, has killed thirty-six children in U.S. and analysis of CDC data indicates Vitamin D deficient children at higher risk of death.

The CDC did not realize they discovered this. However, anyone familiar with the Vitamin D literature will recognize it.

Almost two-thirds of the dead children had epilepsy, cerebral palsy, or other neurodevelopmental conditions like mental retardation.

All of these neurological conditions are associated with childhood Vitamin D deficiency. Exacerbating the problem further, many of these kids take anticonvulsant drugs, which lower Vitamin D levels.

58 million American children are Vitamin D deficient; 7.6 million are severely deficient.

When researchers looked at more than 6,000 American kids (age one to 21) who were carefully selected to be representative of the average American child. 9 percent of the kids had 25(OH)D levels less than 15 ng/mL and 70 percent had levels less than 30 ng/mL.

Sources:

GaryMoller.com September 6, 2009

Vitamin D Newsletter May 2009

CDC September 4, 2009

Sunday, 20 September 2009

Eid-ul-Fitr Mubarak 1430

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Alhamdulillah we are so blessed with our newborn baby girl during the blessed month of Ramadan, although she is still in the special nursery care in Fremantle Hospital. I ask Allah to give everything good for her and us, ameen. Masha Allah, we can't wait to bring her home but may Allah give us patience.

I would like to greet all Muslims and lightnur readers especially Eid-ul-Fitr Mubarak and May Allah accept the fasting and all the worships from us and you during the month of Ramadan, ameen. Please forgive me if I have made any mistake or wrong doing to you in this blog or in my actions.

May Allah reward you with goodness.

Friday, 18 September 2009

It's a girl, masha Allah.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

I was about to get ready to go to my parents house for iftar, when I had bleeding while having shower. Quickly I called my husband and he hurried me to go to the hospital. By the time I got my things packed the bleeding continued. I was sure I lost quite a lot of blood. I felt the the baby is getting harder, but I calmly told my husband who was driving that my tummy is cramp. Then he started drive like a formula one racer. He looked panic and rushed me to enter the hospital when he saw blood all over the seat after I got out of the car.

The admission was quick in the emergency ward, before I was took to the monitoring assessment room. While we were waiting for the wheelchair my husband showed his impatience again. I know at this moment time is precious. The same thing happen at the reception of assessment room. But once I was in the bed in that room everything seem in a flash. My baby heart beat getting weaker. There is no contraction but my tummy started pain. Doctors rushed in and decided to go to the theater. I have no time to think because they pushed me as soon the doctor decided. I held my husband's hand and told him I can barely feel anything. I run out off my breath by the time I was pushed to the theater.

"How is your pain?", I heard a midwife asked me when I realised that I was in the recovery room.

"What happen?", I asked her. She said that my baby placenta was bleeding and came out of my uterus wall. Then my husband came in and told me the baby is alright but taken to the Special Care Neonatal. Subhana Allah, I felt like it was my second dream. This is what happen to me five years ago with Muja and it happen again but slightly different. Alhamdulillah.

Alhamdulillah, Muja's little sister was born 4 week earlier last Sunday, 23 of Ramadhan at 2:53 pm. She was 2430g and 47 cm long, masha Allah. Alhamdulillah is is recovering well in the Special Care Nursery. Insha Allah, I was hoping to take her home before Eid.

Please say masha Allah when you see her pictures.

Thursday, 10 September 2009

Hip Surveillance for Children with Cerebral Palsy

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Today I went to PMH with Muja for her Hip Surveillance appointment. It was raining when I left the house. Alhamdulillah I got a handy disabled parking behind Hay Street Building. One of the mother told me last time when I came for Muja Botox injections. Alhamdulillah when we arrived there the rain stop, so I got Muja out quickly before it started to rain again.

Alhamdulillah, we waited for a while until a physiotherapist called us in. She welcomed us warmly as usual and asked me about fasting and weather it is too early to greet me Eid Mubarak. Masha Allah it is only 10 day until Ramadan will end. It feels so fast.

Before she did some measurements on Muja's hips, she sent Muja for an x-ray. After the x-ray we went back to see the physiotherapist. Alhamdulillah the good news is her hips has stayed the same since six months ago. Alhamdulillah it did not get worse.

Last March when Muja had her hip surveillance an x-ray showed that her right hip migrated 39 %. She was referred to Orthopedic Surgeon who then recommended for her soft tissue surgery. Now Muja is in waiting list for the surgery.

Muja has been attending the Hip surveillance since she was two years old, after she had her first Botox injection. There will be a following up at the Rehabilitation Clinic after the hip surveillance to see the Rehabilitation Paediatrician for pre-Botox injection. If there is hip dislocation or if it is at risk the Hip surveillance will refer to the Orthopedic Surgeon.

Here is a documentation about Hip Surveillance for Children with Cerebral Palsy.



Since her right hip did not get worse, I just wonder if it is better not to proceed the soft tissues surgery, since she is not in a lot of pain lately, at least after her last Botox. What do you think?

Mean while I know that I need to do Istikharah.

Wednesday, 9 September 2009

Stiff and tight muscles.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Last week Muja's physiotherapist, Tanya, came to our house to teach me how to stretch Muja's stiff and tight muscles.

Muja has Quadriplegia Spastic Cerebral Palsy which means she can't control her body movement and muscle co-ordination. It affected all her four limbs. Her muscles are tight and stiff, and have increased resistance to being stretched.

Usually Tanya goes to Muja's school to do the treatment but this time she came to teach me how to do the stretching. She showed me first then I practised after her. First she did on her legs then her arms. She also made Muja lay on her tummy to stretch her upper back legs and help to control her head. Slow stretching often brings relief to muscle spasm.

A few day before I had a meeting with Muja's teacher to set her goals for the next six months. One of the goal is how to manage Muja's stiff and tight muscles. Natalie told me about a traditional sage bath practise in Hungry Conductive Education and would like to try it for Muja. She said that sage should not be used by persons suffering from epilepsy but we can try anyway since Muja hardly get her epilepsy recently. I think it is a great idea and can't wait to see its outcome.

Currently Muja is attending Hips Surveillance Clinic and Orthopaedic Clinic at Princes Margarate Hospital to manage her muscle spasms. She receives Botox injections every six months to relax her upper legs muscles.

I take Muja to alternative medicine to treat her muscle pain with accupunture and homeopathic remedy. Her Naturalpath prescribe Magnesium to ease her muscles.

I use aromatherapy arnica massage oil which I made using essential oils of lavender, marjoram, rosemary and eucalyptus. You can also use the same essential oil in epsom and sea salts bath. A bath soak with salts can have amazing health benefits like easing stiff and sore muscles.

I would try add sage essential oil when I mix her massage oil next time, insha Allah. Sage is anti spasmodic: This property of Sage Essential Oil can ease stiff muscles and eases trembling and palsy.

Tuesday, 8 September 2009

How can I fight urinary tract infections naturally?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah I have urine infection and it is so painful and irritating. Last week, I had a urine test and it was contaminated. So yesterday when I went to Natureco for Muja's acupuncture appointment, I asked them how can I fight urinary tract infections naturally without antibiotic.

They actually recommended me to take cranberry extract capsules but then the one they have contain something which could induce pregnancy. I was given Mediherb Echinacea instead and was also recommended to drink cranberry juice. Echinacea is said to boost our immune system so we can better fight off infectious bacteria and viruses. I have taken the capsule for two days now but it is still painful when I passed my urine. I guess I will get cranberry juice tomorrow, insha Allah. Cranberry helps clean up the urinary tract.

Urinary tract infection (UTI) occurs when the urinary tract is irritated and inflamed due to bacterial infection. Urine contains salts, fluids and waste products. But it normally doesn't contain bacteria, this harmful bacteria that causes the infection. When the bacteria sticks onto the bladder, it multiplies and develops into a urinary tract infection.

It's easy to tell when you got urinary tract infection. A number of symptoms include a burning sensation while urinating, a frequent desire to urinate even when little to nothing comes out, and bladder spasms. Other symptoms include foul-smelling urine and a mild fever.

I remember when Muja was about 1 year old. She had UTI as well, but it was treated with homeopathic remedy cantharis. Masha Allah the remedy worked for her UTI but not me. Alhamdulillah it never come back to her. Now I can imagine how she felt that time. She was irritated and restless. I can imagine the pain she has gone through. It was very painful, especially when you pass the urine.

I pray that it will go away soon as it is so uncomfortable, ameen.

Alright, now about Muja accupuncture. She was doing really well yesterday when Lawrance inserted the needles in her head, neck, hands and legs, alhamdulillah. She showed him how well she can hold her head. Most of the time she stared at the picture of bamboo hanging in the treatment room. As usual Lawrance gave her Chinese herbal.

Wednesday, 26 August 2009

Fasting For The Pregnant or Breastfeeding Woman

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته


Question:

Regarding the pregnant woman and the breastfeeding woman; if they fear for themselves or upon the child during the month of Ramadhaan – such that they eat, what then is due upon them? Should they eat and feed others (i.e. to the poor) and make up the fasts or should they eat and make up the fasts and not feed others or should they eat and feed others not make up for them? What is correct from these three?


Answer:

If the pregnant woman fears for herself or for her baby for the reason of fasting during Ramadhaan; then she should eat and upon her is to make up for them only. Her state in that is similar to the state of the one who is sick and is unable to find strength to fast – or that he fears some harm upon himself.

Allaah The Most High says:

((And whosoever is sick or is upon a journey; then the period is made up from other days…)) [Soorah Al-Baqarah: 185]

Likewise is the case for the breastfeeding woman if she fears for herself when she breastfeeds her child during Ramadhaan. Or that she fears upon her child if she were to fast and not breastfeed him – then she is to eat and upon her is to make up for them only.

Permanent Committee for Research and Verdicts
Shaykh `Abdul-`Azeez Bin Baz
Shaykh `Abdullah bin Ghudayaan
Shaykh `Abdur-Razzaaq al-`Afeefee
Fataawaa Al-Lajnah ad-daa'imah vol. 10 page 220 question two of fatwa number 1453
Translated by Aboo Haatim Muhammad Farooq

Takan from here.

Tuesday, 25 August 2009

Beautiful Dhikr: A collection of various Dhikr from the Sunnah.


Taken from here http://www.sunniforum.com/forum/showthread.php?t=2865

Make Dhikr, Not Bicker

"A collection of various dhikrs from the sunnah."

[Something very easy to do, but many of us forget it...or fail to grasp the reward of it...let us practice the following, simple dhikr, read this e-mail, print it..and also tell others of it... Such simple, easy to remember and easy to recite dhikr, why should we not take advantage of it?.... It may be hard for us to learn the many sciences of islam, and other topics, due to our circumstances, but the following are simple, easy couplets that can be implemented from now, from today...and carried on through our lifes. We can also tell others of it too... lets not lose this opporunity.... Read, Have Islam in your life, Remember Allah, and let us be sucessful.... (from a brother)...]


سُبْحَانَ اللّهِ وَ بِحَمْدِهِ SubhanAllahi wa biHamdihi (Glory be to Allah and I Praise Him)

Whoever says (the above) at morning and evening time, one hundred times, none shall come on the Day of Resurrection with anything better except someone who has said the same or more
[Muslim; 4:42071]


سُبْحَانَ اللّهِ وَ بِحَمْدِهِ SubhanAllah wa biHamdihi (Glory be to Allah and I Praise Him)

a hundred times during the day, his sins are wiped away, even if they are like the foam of the sea
[Sahih al-Bukhari; 7:168, Muslim; 4:2071]


سُبْحَانَ اللّهِ وَ بِحَمْدِهِ SubhanAllahi wa biHamdihi
(Glory be to Allah and I Praise Him)

Abu Dharr reported that the Prophet (salAllahu alayhi wasalam) said, "Shall I tell you the words that Allah loves the most?" I said: "Yes, tell me, O Messenger of Allah." He said: "The words dearest to Allah are: subhanAllah wa bihamdihi
[Muslim and at-Tirmidhi]


سُبْحَانَ اللّهِ الْعَظِيمِ وَ بِحَمْدِهِ SubhanAllahil adheem wa biHamdihi (Glory be to Allah, The Supreme, and I Praise Him)

a palm tree is planted for him in Paradise
[at-Tirmidhi; 5:511, al-Hakim]


سُبْحَانَ اللّهِ وَ بِحَمْدِهِ ، سُبْحَانَ اللّهِ الْعَظِيمِ SubhanAllahi wa biHamdihi, SubhanAllahil adheem (Glory be to Allah, and Praise, Glory be to Allah, the Supreme)

Muhammad (salAllahu alayhi wasalam) said: "Two words are light on the tongue, weigh heavily in the balance, they are loved by the Most Merciful One"
[Sahih al-Bukhari; 7:67, Muslim; 4:2071]


سُبْحَانَ اللّهِ SubhanAllah (Glory be to Allah)

one Hundred times, a thousand good deeds are recorded for him or a thousand bad deeds are wiped away
[Muslim; 4:2073]


لا حَوْلَ وَ لا قُوَّةَ اِلَّا بِاللّهِ La Hawla wa la Quwatta illa Billah (There is no Might or Power except with Allah)

mentioned in hadith as "a treasure from the treasures of Paradise"
[Sahih al-Bukhari; al-Fath al-Bari; 11:213, Muslim; 4:2076]


سُبْحَانَ اللّهِ ، والْحَمْدُللّهِ ، وَ لا اِلهَ اِلَّا اللّهُ ، وَ اللّهُ اَكْبَرُ SubhanAllah, walHamdulilah, wa La illaha ilAllahu, waAllahu Akbar (Glory be to Allah, All Praise is for Allah, There is No God but Allah, Allah is the Greatest)

- The above are mentioned as the four most beloved words to Allah. It doesnt matter which of them is begun with
[Muslim; 3:1685]

Abu Saiid reported that the Prophet (salAllahu alayhi wasalam) said, "Perform the enduring goods deeds (al-baqiyat al-salihat) more frequently." They asked, "What are these enduring good deeds?" The Prophet replied: Takbir [Allahu Akbar], Tahlil [la ilaha illallah], Tasbih [Subhan'Allah], alhamdu lillah, and la hawla wa la quwwata illa billah.
[an-Nasa'i and Hakim, who said its chain is sahih]


سُبْحَانَ اللّهِ ، والْحَمْدُللّهِ ، وَ لا اِلهَ اِلَّا اللّهُ ، وَ اللّهُ اَكْبَرُ SubhanAllah, walHamdulilah, wa La illaha ilAllahu, waAllahu Akbar (Glory be to Allah, All Praise is for Allah, There is No God but Allah, Allah is the Greatest)

- Muhammad (salAllahu alayhi wasalam) said: 'For me to say (the above) is dearer to me and all that the sun rises upon (ie the whole world)
[Muslim; 4:2072]


سُبْحَانَ اللّهِ ، والْحَمْدُللّهِ ، وَ لا اِلهَ اِلَّا اللّهُ ، وَ اللّهُ اَكْبَرُ ، وَ لا حَوْلَ وَ لا قُوَّةَ اِلَّا بِاللّهِ SubhanAllah, walHamdulilah, wa La illaha ilAllahu, waAllahu Akbar, wa la Hawla wa la quwwata illa billah (Glory be to Allah, All Praise is for Allah, There is No God but Allah, Allah is the Greatest, There is no might or any power Except with Allah)

- The good deeds which endure are (the above)


سُبْحَانَ اللّهِ ، والْحَمْدُللّهِ ، وَ لا اِلهَ اِلَّا اللّهُ ، وَ اللّهُ اَكْبَرُ ، وَ لا حَوْلَ وَ لا قُوَّةَ اِلَّا بِاللّهِ SubhanAllah, walHamdulilah, wa La illaha ilAllahu, waAllahu Akbar, wa la Hawla wa la quwwata illa billah (Glory be to Allah, All Praise is for Allah, There is No God but Allah, Allah is the Greatest, There is no might or any power Except with Allah)

- AbdAllah ibn Mas'ud reported that the Prophet said: "During the Night Journey I met Ibrahim (alayhis salam) who said to me: O Muhammad, convey my greetings to your Community, and tell them that the Paradise is of pure land, its water is sweet, and its expanse is vast, spacious and even. And its seedlings are SubhanAllah, walhamdulilah, wa la ilaha ilAllah, waAllahu Akbar (the above)
[at-Tirmidhi and Tabarani whose version adds: "There is no power nor strength save through Allah"]


الْحَمْدُللّهِ Alhamdulilah (All Praise is for Allah)

- Verily the best supplication is (above).
[Muslim; 4:2073]


لا اِلهَ اِلَّا اللّهُ La illaha ilAllah(u) (There is No God But Allah)

- The best form of remembrance is (above).
[Muslim; 4:2073]


لا اِلهَ اِلَّا اللّهُ La illaha ilAllah(u) (There is No God But Allah)

- Abu Huraira (radiAllahu anhu) reported that the Prophet (salAllahu alayhi wasalam) said:

"When a servant of Allah utters the words la ilaha illallah (there is no God except Allah) sincerely, the doors of heaven open up for these words until they reach the Throne of Allah, so long as its utterer keeps away from the major sins.
[at-Tirmidhi, who says it is hasan gharib. al-Mundhiri included in al-Targhib 2:414]


لا اِلهَ اِلَّا اللّهُ La illaha ilAllah(u) (There is No God But Allah)

- Abu Huraira (radiAllahu anhu) reported that the Prophet (salAllahu alayhi wasalam) said, "Renew your faith." "How can we renew our faith?" they asked. The Prophet replied:
"Say always: la ilaha illallah."
[Ahmad with a fair chain of authorities]


لا اِلهَ اِلَّا اللّهُ وَحْدَهُ لا شَرِيكَ لَهُ ، لَهُ الْمُلْكُ وَ لَهُ الْحَمْدُ وَ هُوَ عَلَى كُلِّ شَيْءٍ قَدِيرٌ La illaha ilAllahu, waHdahu la shareeka lahu, lahul Mulku, wa lahul Hamd, wa Huwa ala kulli shaiy'in Qadeer (There is No God But Allah Alone, who has no partner. His is the dominion and His is the raise, and He is ABle to do all things)

- whoever says the above ten times, will have the reward for freeing four slaves from the Children of Isma'il (alayhis salam)
[Sahih al-Bukhari; 7:67, Muslim; 4:2071]


لا اِلهَ اِلَّا اللّهُ وَحْدَهُ لا شَرِيكَ لَهُ ، لَهُ الْمُلْكُ وَ لَهُ الْحَمْدُ وَ هُوَ عَلَى كُلِّ شَيْءٍ قَدِيرٌ La illaha ilAllahu, waHdahu la shareeka lahu, lahul Mulku, wa lahul Hamd, wa Huwa ala kulli shaiy'in Qadeer (There is No God But Allah Alone, who has no partner. His is the dominion and His is the raise, and He is ABle to do all things)

- whoever says the above one Hundred times, has the reward of freeing ten slaves, a hundred good deeds are recorded for him and a hundred bad deeds are wiped away and he has gained refuge from the devil that day until evening and none shall come with anything better except someone who has done more.
[Sahih al-Bukhari; 4:95, Muslim; 4:2071]


لَآ اِلهَ اِلاَّ اللّهُ وَاحِدًا اَحَدًا صَمَدًا لَّمْ يَتَّخِذْ صَاحِبَةً وَّ لاَ وَلَدًا وَّ لَمْ يَكُنْ لَّوْ كُفُوًا اَحَدٌ La illaha ilAllahu, Wahidda(n), Ahada(n), Samada(n), lam yatakhidh sahiba(n). Wa la walada, wa la yak(n)ul-lahu kufuwan Ahad
(There is no God except Allah, the One and Only, the Eternal, Who has not taken a partner nor a son. And there is none like unto Him)

Whoever says the words above ten times, then 40,000 (forty thousand) good deeds will be recorded for him
[Ahmad]


أَسْتَغْفِرُ اللَّهَ الْعَظِيمَ الَّذِي لاَ إِلَهَ إِلاَّ هُوَ الْحَيُّ الْْقَيُّومُ وَ أَتُوبُ إِلَيْهِ Astaghfirullah al-'Adheemal-ladhi la ilaha illa Huwal-Hayyul-Qayyum wa atubu ilai (I seek the forgiveness of Allah the Mighty, Whom there is none worthy except Him, the Living, The Eternal, and I repent unto Him)

Whoever says the above words, Allah will forgive him even if he deserted the army's ranks

[Abu Dawud 2/85, at-Tirmithi 5/569, Al-Hakim who declared it authentic and ath-Thahabi agreed with him 1/511]


اللَّهُمَّ أَنْتَ رَبِّى لاَ إِلهَ إِلاَ أَنْتَ ، خَلَقْتَنِى وَ أنَا عَبْدُكَ وَ أنَا عَلَى عَهْدِكَ ما اسْتَطَعْتُ ، أعُوذُ بِكَ مِنْ شَرِ مَا صَنَعْت ، أَبُوءُ لَكَ بِنِعْمَتِكَ عَلَىَّ وَ أبُوءُ بِذَنْبى فَاغْفِرْ لِى فإِنَّهُ لاَ يَغْفِرُ الذُّنُوبَ إِلَّا أَنْتَ Allahumma anta Rabbi la ilaha illa anta, Anta Khalaqtani wa ana abduka, wa ana 'ala ahdika wa wa'dika mastata'tu, A'udhu bika min Sharri ma sana'tu, abu'u Laka bini'matika 'alaiya, wa Abu Laka bidhanbi faghfirli innahu la yaghfiru adhdhunuba illa anta (O Allah! You are my Lord! None has the right to be worshipped but You. You created me and I am Your slave, and I am faithful to my covenant and my promise as much as I can. I seek refuge with You from all the evil I have done. I acknowledge before You all the blessings You have bestowed upon me, and I confess to You all my sins. So I entreat You to forgive my sins, for nobody can forgive sins except You.)

The above du'a is known as the Sayyid al-Istighfar and is the most superior way of asking for forgiveness from Allah.

Whoever says it during the day with firm faith in it, and dies on the same day before the evening, he will be from the people of Paradise; and if somebody recites it at night with firm faith in it, and dies before the morning, he will be from the people of Paradise.
[Sahih al-Bukhari 8, 75 #318]


If someone implements ten verses of the Qur'an, He/She will not be considerate amongst the negligent on the Day of Judgment
[Abu Dawud, Ibn Hibban - sahih]

Monday, 24 August 2009

Heart wheel Journal

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Insha Allah I want to start and finish Ramadan strong.

Alhamdulillah I am doing Heart Wheel Journal online during this Ramadan to help plan and prepare for Ramadan so that I can focus on my ibadah and come closer to Allah. If you want to maximise your Ramadan you can register at Heart Wheel Journal - Online Software, insha Allah.

You can also buy the journal here or download it at Islam Channel TV and print it yourself to plan, organise and measure your progress in Ramadhan.

Have a successful Ramadan!

Friday, 21 August 2009

My ibadah focusses during Ramadan


Allah azza wa jall says,I created not the Jinns and mankind except to worship me(Quran: 51/56)... so Insha Allah these are going to be my Ibadah (worship) focusses during Ramadhan:


1. fasting (saym)

O you who believe, I made fasting fardh on you as I made it fardh on those before you that perhaps you may have taqwa (god consciousness)

Sa'ad Ibn Sahl relates that the Holy Prophet, sallalahu alayhi wa sallam, said:
"There is a gate of Paradise called Rayyan through which only those will enter on the Day of Judgment who are regular in observing the fast and no one else. A call will go forth: Where are those who observed the fast regularly? And they will step forth and no one beside them will enter through that gate. After they shall have entered, the gate will be closed and no one else will enter thereby" (Bukhari and Muslim).

2. qiyaam ul layl (taraweeh)

3. quran (recitation)

Will they then not contemplate the Qur’an? Or are there locks upon (their) hearts?” (Surat Muhammad (47:24)

4. sadaqah

"He who feeds a fasting person will gain the same reward as he will, without decreasing from the fasting person's rewards." [Ahmad]

5. dhikr

Verily, in the remembrance of Allah, do hearts find rest [13:28]
and remember your Lord when you forget... (18:24)

The Prophet (pbuh) said, “Shall I not inform you of the best of your actions, the most pure in the sight of your Master, the one which raises your ranks highest, that which is better for you then giving gold and silver in charity, and better for you then meeting your enemies, so that you strike their necks and they strike yours?” The companions urged, “Of course, O Messenger of Allah! (inform us)” He replied, “It’s the remembrance of Allah.” (Sahih: Abu Dawud)

6. du'a



Our Lord, give us good in this world, and good in the hereafter, and save us from the torment of fire. (AL BAQARAH: 201)

Source: The Fasting and the Furious

Thursday, 20 August 2009

Ramadan Kareem.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Ramadhan Kareem to all lightnur readers. May you have successful Ramadhan!

Tuesday, 11 August 2009

Updates

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Since I am too lazy to write my post here, I am going to summarise what happened and will happen to Muja.

  1. On my last post, I wrote that Muja had runny nose, but Alhamdulillah the next day it was dry with salty water drops that I made.


  2. Muja's father took her to consult with a Naturopath, Kathy, for her tonsil on Saturday at Natureco. Her right tonsil is still big although it is not swollen. It blocks her breathing at night when she lays flat and I have to make sure she is breathing alright through out the night and sit her upright to 45 degree angle. Kathy gave her a herbal mixture.


  3. She can be very unsettled during bed time. She cries until she gets really tired before she falls asleep. She wants to sleep on my arm because she can breath better. When I pull my arm out from under her head after she falls asleep, she wakes up. Then I have to settle her down again until she sleeps. It is really anoiying!


  4. Muja went to her monthly accupunture yesterday but she cried when Lawrance insert the needles into her because he disturbed her sleep and she was really tired. I took her there after school. When she settled down, she smiled at Lawrance and he said that she was cheeky.


  5. We are looking at Muja's new standing frame as her current one is getting smaller. Her physiotherapy from Therapy Focus recommended this one, the Leckey Freestander Standing Frames. Insha Allah she will apply for funding and she will get it in six month time, so it will be early next year.


  6. After Muja's last Botox her muscles are more relaxed and less spasm as well. Occationally her legs are jerky especially when she is standing up on her standing frame and her foot touching something


  7. This term Muja's class theme is Australia. Tomorrow they are going to Carversham Wilflife Park for school excursion to see, touch and feed Australian animals.


  8. It has been 12 weeks since Muja had a PEG tube insert into her stomach. On Thursday Muja is going to PMH to change her PEG feeding tube with the mic-key button. Insha Allah I will update later. Please make dua that everything goes well.

Wednesday, 5 August 2009

Aromatherapy and home remedies for cold and flu

Muja's classmate has flu symptoms yesterday. I hope he has the common flu and I make doa that it is not the swine flu. Today she didn't go to school because the Education Assistants for her class have training today.

When she woke up this morning her body is cold and she had a runny nose. I made salty water and put a couple of drops in each of her nostrils. Alhamdulillah it made her nose dry. You can always buy Saline Spray/Drop at chemist if you don't bother to make one.

Here is the recipe to make Salt water drops if you interested to make one yourself which I took from Do Bugs Need Drugs? Parent Guide: Cold / Runny Nose. It cost you nothing.
Salt Water Drops
125 ml warm water
¼ tsp table salt

* Mix well.
* Prepare fresh every day.
* Position child so that head is slightly back.
* Use a medicine dropper to put 1 - 2 drops in each nostril.
* Repeat 4 to 5 times per day.

I made a lemonade to boost Muja with vitamin C to fight her cold and flu mixed with honey to soothe her sore throat.

Here is a recipe to make Hot Honey Lemonade

* 1 tablespoon of honey
* 1 cup boiling hot water
* 1 fresh lemon

In a mug, combine the honey and hot water and stir until the honey is dissolved. Squeeze the lemon and stir in the lemon juice.

You can also treat cold and flu with aromatherapy. Common cold is cause by viral infection so I use the essential oils that are anti-viral.

I diffuse 2 tablespoon of water with 2 drops eucalyptus, 5 drops lavender and 3 drops tea tree of essential oils using oil burner to help alleviate and disinfect dry air passages in her room.

I put a drop of lavender and tea tree in a bowl of warm water. I use the water to wash Muja with a face towel. Alhamdulillah Muja has no fever. A warm bath with 5 drops of essential oils mixed with 1/4 cup of epsom salt can help relieve fever. Peppermint, lavender, sage or rosemary are some essential oils for relieving fevers in a bath.

After her wash I applyed chest rub on her chest, throat and back with the chest rub which I made using beeswax and cocoa butter. It is also containing decongestant essential oils.

I gave her Aconite, a homeopathic remedy for cold and flu. Now she is fast asleep.

Please make dua for Muja. I ask Allah to cure her, Ameen.

Friday, 31 July 2009

Swine flu at Muja's school

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Yesterday I went to Muja's school to see the school's psychologist. She is suppose to do an IQ test for Muja but her physical disabilities, visual and hearing impairments the task seem impossible. The purpose for the test is for the school to get fund for school resources.

After the appointment I went to Muja's class. They were doing Science concepts of what can roll and what cannot. Masha Allah they were rolling when I came in. Muja didn't joined them because she just had her feeding and her PEG is the one with a long tube that come out from her tummy. Some of the kids enjoyed the rolling.

I stayed there for a while. After the rolling Sarah, the teacher, gave the students a wooden cylinder each and asked if it can roll or nor. The Education Assistants (EA) helped by rollling it all over the students. Masha Allah Muja nodded her head for yes. Then she gave them a book and asked the same question. Guess what Muja said? She turn her head for no. Masha Allah.

I left her class at lunch time and went to Therapy Focus to see Muja's physiotherapist about her standing frame. I told her that I think the width of Muja's standing frame is narrow for her body. She asked me to bring it so she can have a look. Unfortunately she did not have time to look that afternoon. I took it back home from school so Muja can use it during weekend.

When I picked Muja up from school in the afternoon, Natalie, the teacher/conductor, informed me that one of their students in the school has positive swine flu. Masha Allah, in my heart I made du'a to ask Allah to protect us from it, ameen. So today I decided to keep Muja at home.

Thursday, 30 July 2009

Muja's sixth Botox injections at PMH.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

A couple of weeks ago Muja had her pre-Botox appointment at Paediatric Rehabilitation Department in PMH. Actually this appointment was due in April. The Paediatricians, Dr William, we saw that day apologised about the late appointment but didn't explain why we missed it.

In this appointment Dr William and a physiotherapist, Rosalin, examine how tight the muscles in Muja upper legs were. Then they decided which muscles needed Botox and how much is needed on the next appointment. The doctor suggested Botox injection in her vastus muscle to help her bend her knees.

On that day the doctor tried to get the earliest appointment. He made a call to the Botox clinic to get on that afternoon because there was a cancellation. We could not get it because only two beds is allowed in one Botox session. Muja needs a bed because she is managed by a pain relief to reduce her pain and to make her sleepy.

Alhamdulillah soon after I arrived home from PMH, Sue, a CP Liaison Nurses/Officers called about the appointment which was in a week time, which is the next Thursday.

So last Thursday, instead of going to school, Muja went to PMH for her sixth Botox injection. As usual a nurse checked her temperature, blood presure and pulse. The nurse weighed her and put cream on her hamstrings, abductor and vastus muscles to reduces needle pain during Botox administration. She was also given midazolam for pain relief.

At 2:30 Muja was called in for the injection. She looked sleepy but didn't sleep. That day Dr Langdon did the injections and with the helper, Nadine, who is Muja's first physiotherapist. When the doctor insert the needle in her abductor muscle she cried but not loud. At 3:00 we were done and left PMH half and hour after that. Muja slept in the car all the way home.

Wednesday, 29 July 2009

Hadith: How to free oneself

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Syahadah Pictures, Images and Photos

On the authority of Abu Malik al-Harith bin 'Asim al-Ash'ari, radiyallahu 'anhu, who said: The Messenger of Allah, sallallahu 'alayhi wasallam, said:

"Purification is half of iman (faith). Saying 'Al-Hamdulillah' (Praise be to Allah) fills the scales. Saying 'Subhanallah wa al-Hamdulillahi' (Exhalted be Allah and Praise be to Allah) fills the space between the heavens and the earth. Salah (prayer) is a light. Sadaqah (charity) is a proof. Sabr (patience) is a shining glory. The Qur'an is an argument either for you or against you. Everybody goes out in the morning and sell themselves, thereby setting themselves free or destroying themselves."

[Muslim]

Read the explaination of this hadith here.

Friday, 17 July 2009

Monthly accupuncture treatment.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Every month Muja goes to Natureco for accupuncture. Last Monday I took her there to treat the pain in her hips and cold. She had a blocked nose and wheezy breathing that make her unable to sleep at night.

She drools like a waterfall. I wonder what treatment is good to get rid of her drool??? Anyone???

Masha Allah, like always she didn't even cry when Lawrance, her acupuncturist, insert the needles. Alhamdulillah, now she is used to the needles. Anyway the needles are very fine so you can't feel any pain. Instead of crying she fell asleep during the session. She had needles on both her hands, legs, neck and head.

The acupuncturist also prepared a Chinese herbal medicine to treat Muja's symptoms and he showed me some exercise to reduce Muja's hips pain.





Alhamdulillah, since Muja had her needles I found her to be more settle and alert. The pain in her hips has reduced tremendously. Usually she complains when we move her around. The other day she didn't cry when I stretch her legs and did cycling exercise. She is happy too when standing on her standing frame.



Alhamdulillah.

Wednesday, 15 July 2009

Conductive Education Centre of WA website.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

This is the website of the Conductive Education Centre of Western Australia. Muja has been attending this centre since she was 3 1/2 years old for School for Parents every Friday and 2 days Conductive Education Kindy. Now she is in the full time five days Pre primary program. The centre is located in Carson Street School.

You can read about What Conductive Education ishere. There is a photo gallery in the site if you would like to see what Muja and her friends can do at the centre.

The following skills are all developed within a fully integrated programme planned by the Conductor:

* Physical skills
* Play skills
* Social, emotional and communication skills
* Academic abilities
* Self-care skills

Alhamdulillah Muja has developing most of the skills mention above in the CECWA site and Insha Allah I hope that Muja will master all the skills in no time.

Monday, 13 July 2009

Uncooked Play Dough Recipe

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



My children just love to play with playdough. When they were little (now they are 17, 15 and 12) I always made it for them because the Play-doh is not cheap.

The benefits of playdough

* Helps to strengthen little fingers, hands and wrists.
* It's fun.
* It is one of the best open ended toys I know - playdough can be anything - food, animals, bowls, shapes etc.
* It helps to foster your child's imagination.
* It helps children develop self esteem -there is no right or wrong and the child has the opportunity to gain mastery over their environment.
* It is a great release for tension or angry feelings - squeezing, punching, poking are all acceptable if done to playdough.

Since morning, Tas, Muja's sister who is turning 8 years old, beg me to make play dough. So she helped me measure all the ingredients and chuck them in the mixing bowl. She mixed it and divided each recipe into half before she add colour. She made two batches and decided to colour them red, blue, yellow and green. We use food colouring and also added fragrance to it for sensory. The fragrances we used were strawberry, orange & chocolate trifle, bubble gum and white tea & ginger.



We use the recipe behind the cream of tartar box. So here is the recipe if you would like to make one.

2 cups of plain flour
4 tablespoons of 'cream of tartar'
2 tablespoons of cooking oil
1 cup of salt
1 1/2 cups of boiling water
food colouring

Just put it all in a mixing bowl and mix. Knead until smooth. I let Tas do all the steps and she is so confidence in mixing and kneading it. Keep it in the airtight container so it won't get dry. We keep ours in the zip lock plastic bag.

Happy play doughing! It can be a calming activity and therapeutic.

Saturday, 11 July 2009

Feeding Muja through her PEG tube

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

This is a video of feeding Muja through her PEG tube. It also shows how I communicate with Muja using her PODD communication book.

Tuesday, 7 July 2009

Want to play bowling anyone?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

I am using the PODD Communication Book to ask Muja if she what to play bowling. Muja is 5 and she can't speak yet.

I show her the bowling pins in front of her.

I also show her the ball in her PODD book to emphasised to her again that we are going to play bowling.

This is how she answers with a huge smile. She is happy to play bowling. Then I go through
her PODD book and telling her what she is going to do. I told her that she is going to throw the ball and aim to hit the pins.

She is so excited and can't wait to throw the ball. She is looking at the handle where she is going to push to release the ball and hit the pins.

Once she hits the ball she looks straight at the pins.


She hits four out of six pins and is eager to hit the rest.

Using the PODD book I asked if she wants to do it again. She answer with a smile. So I told her again that she is going to throw the ball and try to aim at the pins.

She is looking at the pins before throwing the ball.

She hits the handle to release the ball and looks at where the ball goes.

She is so focused at where the ball hits.

Hooray she hits all the pins after few throws. She used her POOD book to tell me that it was a good game. Masha Allah, I was happy for her that she enjoys playing bowling.