In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Monday, 28 September 2009

Muja's little sister is home.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah my little one has been discharged last Wednesday, since she was in the Neonatal Intensive Care Unit for 10 days at KEMH and FH. She was born seven days before Eid-ul-Fitr through emergency ceasarian section at 36 gestation weeks because I had a placenta abruction. I lost a lot of blood but alhamdulillah I don't have to have a blood transfusion like previously when I had Muja. I am feeling dizzy sometime and the c-section is still in pain.

A day before she was allowed home, she had a brain scan to make sure it has no abnormality. The scan reminded me of Muja's MRI scan. It was devastating when the doctor said that she has severe brain injuries. I remember I cried and I still cry when I recall that. No mother would wish to hear such news.

A few days ago was the hardest thing for me, waiting for the result.

Yesterday my husband and me brought our little one to the hospital for a review and to discuss her brain scan she had last Wednesday. Alhamdulillah, the good news is her brain is normal. My husband and me are so relieved. Alhamdulillah. The doctor said that she is doing well and the scan was great. Her weight went up to 2550 g from 2430 g and her head circumference increase to 33 from 32cm. Masha Allah, she is growing and sucking really well.

Taking her home is like taking her to five mothers. Masha Allah, my girls just could not let her down. She was been held by her sisters one after another.

Sunday, 27 September 2009

Is she jealous of her little sister?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah, last Friday Muja's father took her to the PMH for ENT appointment. Masha Allah, this is the second time he brought her for an appointment alone without me. He wanted me to come but my c-section was still in pain and felt so weak to go around.

Since she is due for her soft tissues surgery next month, there is not much that can be done to her tonsil. Her tonsil will be reviewed in the next six months.

On the other hand we haven't decide whether to remove her tonsil or not. Poor thing. She is due for so many surgeries. Alhamdulillah, only her right tonsil is big but not swollen. Her sleeping is better but occasionally she wakes up in the middle of the night and can't go back to sleep until morning. Her breathing is still a concern though it's not as bad as before where she can hardly sleep at night.

Last time Muja's father took her to Naturopath for her tonsil. She prescribed her a herbal mix. I don't think that herbal is doing anything to her tonsil. I believe she needs a review. She is still taking Ant Tart 30 homeopathic remedy for wheezy breathing.

Alhamdulillah, her constipation got well with prune juice and cereal but before and after she open her bowel her tummy hurt. Alhamdulillah she is not taking the Movicol-half anymore since the prune juice works for her.

Guess who puts Muja to bed now? It is her father. Masha Allah, since Ramadan her father puts her sleep. He is doing a great job. She is having homeopathic remedies Arnica 30 for pain and Chamomilla 30 to calm her before sleep.

I suppose Muja kind of misses me. She can definitely sense that there is someone else taking her place from me. On Eid day when she visited her little sister for the first time at the hospital, she turn her face away from her little sister when I showed her to Muja. Is she jealous? I bet she is.

Wednesday, 23 September 2009

Conductive Education Center of Western Australia Newsletter

I am just posting a link to Conductive Education Center of Western Australia recent Newsletter that is available to download here. There are few great news in it. Alhamdulillah, a new sponsorship from Realmark Real Estate and there will be a new Teacher/ Conductor for next term (big HOORAY). I am glad because it open the door for more children that need the CE program here in Perth.

I am off to hospital to see my little one. Please remember us in your prayer.

Tuesday, 22 September 2009

I put my faith in Allah.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Muja's little sister is 1 week and 3 days old today. After droping Muja to school today, I went to Fremantle Hospital to visit her. She was due for her feed. As I enter the nusery she was crying. I changed her dirty nappy and breast feed her right away. Masha Allah, she sucked really well, unliked Muja when she was a baby and still at the hospital intensive care unit. Muja was tube fed the whole time.

After feeding her the nurse and I took her to the Radiology to scan her brain. It was so hard for me, watching it. My breast felt hard to breath. Verily all power and strength belong to Allah. While watching her brain scan, I felt so weak and not be able to do any thing accept keep making supplications to Allah that everything will get better. All through out the scanning I made duas that there is no any abnormality in her brain, ameen.

Now is the hardest part which is waiting for the result. Please Allah make me patience and protect me from any negative thought, ameen. I put my trust in You.

I left the hospital because I had to pick up Muja from school. May Allah protect her.

Alhamdulillah, Muja was happy when I picked her up. I felt unwell. I had a headache in my left eye, sore throat and ear ache. My c-section feel pain as well. I lay down the whole afternoon in bed. Although I am tired now I can't go to sleep.

Despite Anti-Vitamin D Bias, CDC Stumbles on Deficiency Link to H1N1 Deaths

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته


Posted by: Dr. Mercola
September 22 2009 | 14,891 views

vitamin D, flu, swine flu, flu vaccine, swine flu vaccineSo far, Swine flu, H1N1, has killed thirty-six children in U.S. and analysis of CDC data indicates Vitamin D deficient children at higher risk of death.

The CDC did not realize they discovered this. However, anyone familiar with the Vitamin D literature will recognize it.

Almost two-thirds of the dead children had epilepsy, cerebral palsy, or other neurodevelopmental conditions like mental retardation.

All of these neurological conditions are associated with childhood Vitamin D deficiency. Exacerbating the problem further, many of these kids take anticonvulsant drugs, which lower Vitamin D levels.

58 million American children are Vitamin D deficient; 7.6 million are severely deficient.

When researchers looked at more than 6,000 American kids (age one to 21) who were carefully selected to be representative of the average American child. 9 percent of the kids had 25(OH)D levels less than 15 ng/mL and 70 percent had levels less than 30 ng/mL.

Sources:

GaryMoller.com September 6, 2009

Vitamin D Newsletter May 2009

CDC September 4, 2009

Sunday, 20 September 2009

Eid-ul-Fitr Mubarak 1430

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Alhamdulillah we are so blessed with our newborn baby girl during the blessed month of Ramadan, although she is still in the special nursery care in Fremantle Hospital. I ask Allah to give everything good for her and us, ameen. Masha Allah, we can't wait to bring her home but may Allah give us patience.

I would like to greet all Muslims and lightnur readers especially Eid-ul-Fitr Mubarak and May Allah accept the fasting and all the worships from us and you during the month of Ramadan, ameen. Please forgive me if I have made any mistake or wrong doing to you in this blog or in my actions.

May Allah reward you with goodness.

Friday, 18 September 2009

It's a girl, masha Allah.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

I was about to get ready to go to my parents house for iftar, when I had bleeding while having shower. Quickly I called my husband and he hurried me to go to the hospital. By the time I got my things packed the bleeding continued. I was sure I lost quite a lot of blood. I felt the the baby is getting harder, but I calmly told my husband who was driving that my tummy is cramp. Then he started drive like a formula one racer. He looked panic and rushed me to enter the hospital when he saw blood all over the seat after I got out of the car.

The admission was quick in the emergency ward, before I was took to the monitoring assessment room. While we were waiting for the wheelchair my husband showed his impatience again. I know at this moment time is precious. The same thing happen at the reception of assessment room. But once I was in the bed in that room everything seem in a flash. My baby heart beat getting weaker. There is no contraction but my tummy started pain. Doctors rushed in and decided to go to the theater. I have no time to think because they pushed me as soon the doctor decided. I held my husband's hand and told him I can barely feel anything. I run out off my breath by the time I was pushed to the theater.

"How is your pain?", I heard a midwife asked me when I realised that I was in the recovery room.

"What happen?", I asked her. She said that my baby placenta was bleeding and came out of my uterus wall. Then my husband came in and told me the baby is alright but taken to the Special Care Neonatal. Subhana Allah, I felt like it was my second dream. This is what happen to me five years ago with Muja and it happen again but slightly different. Alhamdulillah.

Alhamdulillah, Muja's little sister was born 4 week earlier last Sunday, 23 of Ramadhan at 2:53 pm. She was 2430g and 47 cm long, masha Allah. Alhamdulillah is is recovering well in the Special Care Nursery. Insha Allah, I was hoping to take her home before Eid.

Please say masha Allah when you see her pictures.

Thursday, 10 September 2009

Hip Surveillance for Children with Cerebral Palsy

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Today I went to PMH with Muja for her Hip Surveillance appointment. It was raining when I left the house. Alhamdulillah I got a handy disabled parking behind Hay Street Building. One of the mother told me last time when I came for Muja Botox injections. Alhamdulillah when we arrived there the rain stop, so I got Muja out quickly before it started to rain again.

Alhamdulillah, we waited for a while until a physiotherapist called us in. She welcomed us warmly as usual and asked me about fasting and weather it is too early to greet me Eid Mubarak. Masha Allah it is only 10 day until Ramadan will end. It feels so fast.

Before she did some measurements on Muja's hips, she sent Muja for an x-ray. After the x-ray we went back to see the physiotherapist. Alhamdulillah the good news is her hips has stayed the same since six months ago. Alhamdulillah it did not get worse.

Last March when Muja had her hip surveillance an x-ray showed that her right hip migrated 39 %. She was referred to Orthopedic Surgeon who then recommended for her soft tissue surgery. Now Muja is in waiting list for the surgery.

Muja has been attending the Hip surveillance since she was two years old, after she had her first Botox injection. There will be a following up at the Rehabilitation Clinic after the hip surveillance to see the Rehabilitation Paediatrician for pre-Botox injection. If there is hip dislocation or if it is at risk the Hip surveillance will refer to the Orthopedic Surgeon.

Here is a documentation about Hip Surveillance for Children with Cerebral Palsy.



Since her right hip did not get worse, I just wonder if it is better not to proceed the soft tissues surgery, since she is not in a lot of pain lately, at least after her last Botox. What do you think?

Mean while I know that I need to do Istikharah.

Wednesday, 9 September 2009

Stiff and tight muscles.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Last week Muja's physiotherapist, Tanya, came to our house to teach me how to stretch Muja's stiff and tight muscles.

Muja has Quadriplegia Spastic Cerebral Palsy which means she can't control her body movement and muscle co-ordination. It affected all her four limbs. Her muscles are tight and stiff, and have increased resistance to being stretched.

Usually Tanya goes to Muja's school to do the treatment but this time she came to teach me how to do the stretching. She showed me first then I practised after her. First she did on her legs then her arms. She also made Muja lay on her tummy to stretch her upper back legs and help to control her head. Slow stretching often brings relief to muscle spasm.

A few day before I had a meeting with Muja's teacher to set her goals for the next six months. One of the goal is how to manage Muja's stiff and tight muscles. Natalie told me about a traditional sage bath practise in Hungry Conductive Education and would like to try it for Muja. She said that sage should not be used by persons suffering from epilepsy but we can try anyway since Muja hardly get her epilepsy recently. I think it is a great idea and can't wait to see its outcome.

Currently Muja is attending Hips Surveillance Clinic and Orthopaedic Clinic at Princes Margarate Hospital to manage her muscle spasms. She receives Botox injections every six months to relax her upper legs muscles.

I take Muja to alternative medicine to treat her muscle pain with accupunture and homeopathic remedy. Her Naturalpath prescribe Magnesium to ease her muscles.

I use aromatherapy arnica massage oil which I made using essential oils of lavender, marjoram, rosemary and eucalyptus. You can also use the same essential oil in epsom and sea salts bath. A bath soak with salts can have amazing health benefits like easing stiff and sore muscles.

I would try add sage essential oil when I mix her massage oil next time, insha Allah. Sage is anti spasmodic: This property of Sage Essential Oil can ease stiff muscles and eases trembling and palsy.

Tuesday, 8 September 2009

How can I fight urinary tract infections naturally?

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Alhamdulillah I have urine infection and it is so painful and irritating. Last week, I had a urine test and it was contaminated. So yesterday when I went to Natureco for Muja's acupuncture appointment, I asked them how can I fight urinary tract infections naturally without antibiotic.

They actually recommended me to take cranberry extract capsules but then the one they have contain something which could induce pregnancy. I was given Mediherb Echinacea instead and was also recommended to drink cranberry juice. Echinacea is said to boost our immune system so we can better fight off infectious bacteria and viruses. I have taken the capsule for two days now but it is still painful when I passed my urine. I guess I will get cranberry juice tomorrow, insha Allah. Cranberry helps clean up the urinary tract.

Urinary tract infection (UTI) occurs when the urinary tract is irritated and inflamed due to bacterial infection. Urine contains salts, fluids and waste products. But it normally doesn't contain bacteria, this harmful bacteria that causes the infection. When the bacteria sticks onto the bladder, it multiplies and develops into a urinary tract infection.

It's easy to tell when you got urinary tract infection. A number of symptoms include a burning sensation while urinating, a frequent desire to urinate even when little to nothing comes out, and bladder spasms. Other symptoms include foul-smelling urine and a mild fever.

I remember when Muja was about 1 year old. She had UTI as well, but it was treated with homeopathic remedy cantharis. Masha Allah the remedy worked for her UTI but not me. Alhamdulillah it never come back to her. Now I can imagine how she felt that time. She was irritated and restless. I can imagine the pain she has gone through. It was very painful, especially when you pass the urine.

I pray that it will go away soon as it is so uncomfortable, ameen.

Alright, now about Muja accupuncture. She was doing really well yesterday when Lawrance inserted the needles in her head, neck, hands and legs, alhamdulillah. She showed him how well she can hold her head. Most of the time she stared at the picture of bamboo hanging in the treatment room. As usual Lawrance gave her Chinese herbal.