In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Friday, 27 November 2009

Eid ul Adha Mubarak 1430 H

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Assalamualaikum Brothers and Sisters in Islam.

May I take this opportunity to wish each and every one of you a joyous Eid and may Allah accept all our deeds, ameen.

Wasalam
lightnur and family

Wednesday, 25 November 2009

Muja is in the hospital for her hips surgery

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته



Here we were again in PMH for Muja's third surgery but this time it is to correct her hips dislocation. Alhamdulillah after a long three hours of waiting in the Friendship Room, we were told that Muja was in the recovery room. Her father went in because I was feeding Fana, Muja's new baby.



Half an hour later Muja's father came and took us to an orthopedic ward 6A. I heard Muja's scream while I was walking down the ward hallway. As I entered the room her scream was louder and it broke my heart. Am I to be blame for sending her to the surgery? If only I can swap her pain, I am more than willing to do. Her spasm was stronger than ever. Her tears, I can't bear to watch. At that time I said la hawla wala quwata illah billah which translated as there is no strength nor power except Allah.



I asked Allah, the Almighty, Lord of Magnificent Throne, to give Muja a speedy recovery, give the best outcome from this surgery, give us patience with her, give her caring nurses to care her in the hospital, protect her from harmful medications and its side effects, protect her hips from dislocating again, make her affairs ease and to take her spasm away. O Allah give us what is good. Ameen.



As tomorrow is the day of Arafah, please remember Muja and us in your dua. Jazak Allahu khairan.

Monday, 16 November 2009

Prepare for the first 10 days of Dhul Hijjah

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته


Saturday, 14 November 2009

Summer is here and Muja needs an air conditioner to regulate her body heat.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Spring is towards it's end, but the humidity is increasing not like it was years before. It is getting warmer and Muja's body is sticky with her sweat when she wakes up in the morning. Her body and especially her checks becomes pink or reddish in the afternoon when the direct sun heats our living room. The heat makes her body warmer and more sweaty. If she cries her body heat increase. Usually I get a wet cloth and wipe her face and body to reduce the heat and refresh her. Sometime I spray her face with the Aromatic Mist I made using Neroli floral water and Neroli essential oil.

At night, her body gets hot again as the heat that absorb in our house during the day slowly radiates it's way back into the house. Like any other night, once she starts crying she can last at least an hour. It makes her body warm again and not able to fall asleep.

This summer, we have to live with the heat wave, unlike last year when we went away for holiday. This summer holiday will be different with new baby and looking after Muja post-surgery.

Muja needs an air conditioner because she cannot regulate her body temperature. I remember once her check got burnt because she rubbed it against the sofa one summer. If she is able to move, that won't happen.

I heard that there is a Disability Equipment Grant Program (DEG) that funding children with permanant disabilities who can't afford equipments such as vehicle modification (maximum grant $7500), assistive technology for with a vision impairment (maximum grant $5000), assistive technology for people with a communication impairment (maximum grant $5,000) an acconditioners (maximum grant $1,500). Who is eligible for the grant is in the information package here. while its application form is here.

The Government of Western Australia also gives Thermoregulatory Dysfunction Subsidy Scheme to assist the electrictity costs of operating heater or air conditioner equipments at home. Get the information sheet here and application form here. The subsidy is $424 per annum (rate is current as from 1 July 2009).

There is also a Life Support Equipment Electricity Subsidy if you need an uninterrupted power supply to run critical medical equipment. The subsidy rate depend on the equipments that range from as little as $30 for Nebuliser to $774 for Oxygen Concentrators. The rate are annually. The information phamplet and who can apply is here. To apply for the subsidy the application form is here while to apply for Life Support Identification is here.

I hope these information can help you in any ways. For now, I am off to shop for an air conditioner. Which one should I buy? The split system? Inverters? What size? Let me ask the expert at Harvey Norman.

Thursday, 12 November 2009

Japanese Research: Second Life

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته

Source: http://www.disabilityfirststop.asn.au/publications/

People with severe paralysis could find new opportunities from shopping to doing business or making new friends in the virtual world of Second Life by just thinking about it, if experiments being conducted by a Japanese university bear fruit.

In a recent demonstration, Junichi Ushiba, an associate professor at Keio University and head of the project, showed how electrodes attached to the scalp can pick up the electrical changes associated with brain activity.

The data can be interpreted by a computer, allowing a user to manipulate his or her online persona, or avatar, around the streets of Second Life without using a keyboard or mouse.


"When people are paralysed, of course their lives become restricted," Dr Ushiba said, as a graduate student took a virtual stroll through the historic streets of Kyoto City, Japan's ancient capital, without moving a muscle.

"But with this technology we can interpret their intention to move, allowing them to go shopping in Second Life or even set up a business."

San Francisco-based Linden Lab says about 500,000 people regularly visit Second Life, where commercial transactions can be carried out in Linden dollars, convertible to US dollars.

Dr Ushiba, who spends part of his time working at a medical rehabilitation centre, hopes to have people with paralysis try the system next year.

The project is still in its early days, and the students experimenting with the system must practice for a while and find the best spots on their scalps for the electrodes before they can stroll smoothly around.

Staying focused

"The important thing is to concentrate. You can't really think about anything else," 23-year-old Yasunari Hashimoto said after demonstrating the system.

Loss of focus can result in an inadvertent dive off a virtual cliff or into the sea.

Brain control of computers is already the subject of experiments in other countries, including the US BrainGate system, which enables users with an implant to open email and move objects such as wheelchairs.

"We have a lot of members who can no longer move at all," said Yoshiko Umeda, a volunteer nurse with an organisation representing some of the 7,500 sufferers from motor neurone disease, a progressive disorder that causes paralysis.

"I think they would very much welcome a system operated by the brain."

Dr Ushiba hopes the random element of Second Life will change the lives of patients immobilised by illness or injury, in a way that clicking buttons to send emails cannot.

"In ordinary life you go shopping and you might just happen to see a jacket you like and buy it," he said. "Or the cover of a book might catch your eye. Sometimes you chat with people you just happen to run into.

"This kind of chance encounter could enrich people's lives."

Tuesday, 3 November 2009

Because I love you.

In the name of Allah; the Merciful; the Compassionate - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ
May the peace, mercy, and blessings of Allah be with you - السلام عليكم ورحمة الله وبركاته




"You are not fair, mama", said Tazz, my eight years old girl.

Why don't you let me stayed up late?
Because I love you.

Why don't you let me have an iPhone?
Because I love you.

Why don't you let me sleep over?
Because I love you.

Why don't you let me watch that movie?
Because I love you.

Why don't you let me say such and such word?
Because I love you.

Why do I have to eat my breakfast?
Because I love you.

This list can go on and on.

Am I over protective? NO, I don't think so. I am just setting boundaries for her to give her security. I want her to know what is acceptable and what is not in our house. I also want to make her realize how far she can go, when we have clear lines.

It is very important that we explain to the child why it is set. As the child grows older we can introduce more boundaries to ensure she is safe.

Instead of saying no to the children setting boundaries is a way to make it sound positive.
Alhamdulillah, Tazz is satisfied and secure when I say "because I love you" when she ask why I set those limits.