In the name of Allah; the entirely merciful; the especially merciful - بِسْمِ اللَّهِ الرَّحْمَـٰنِ الرَّحِيمِ

Friday, 25 December 2009

Muja's communication progress

Masha Allah, Muja is really good at her communication now. She uses her PODD book more often to tell me anything like when she thought the nurses at PMH were helpful when she stayed in the hospital. She is very honest about everything for example she does not like her baby because she is noisy. She has a good sense of humour when she told me that she likes her uncle... NOT and gave him a big cheeky smile.


I want to tell you something
I want to show you something
It’s in
something to eat or drink

With the PODD communication book she told me that she wanted to tell and show an activity that goes in, which was drinking water through her mouth using a water bottle.

Masha Allah, as you know Muja does not drink or eat orally. When I put water bottle in her mouth and gently squeezed some water in her mouth. She swallows it. She even asked for some more water using her voice and when she finished she turn her head away. I told her that it was cleaver for her to show me that. Alhamdulillah, may be she is ready to drink using her mouth.


I am telling you something
It's about now
watch TV
TV show
turn TV off

I told Muja to watch TV, but she wanted the TV off. Instead of turning the TV off, her sister who was watching, turn it down. As her sister didn't want to turn it off I turned Muja's wheelchair facing the wall.

I like it

She told me that I was cleaver by turning her face away from the TV.

something wrong
angry, grumpy, mad
and she looked at her sister Neefa

Muja told me that she was angry, grumpy and mad at her sister for not turning the TV off.

Tuesday, 22 December 2009

Helps is just around the corner

A month before Muje had her hips surgery, about end of October , I called a few charity organizations to ask funding for air conditioner. After some calls, Southcare Inc was willing to assist me lodge the application. There are a few things needed for submition, like a letter from medical practitioner stating Muja's condition, quotation from two places and income statements. The paper works took a bit of time especially letter from the doctor. Once the application ready, it is a matter of waiting.

Alhamdulillah last week I received a good news that the application is accepted. It took almost two and half month. The day I received the cheque I can't believe my eyes it was for real. Alhamdulillah, although the air conditioner is a little bit late, at least for the rest of this summer Muja will be comfortable with an air conditioner in her own room. I can't wait until January when the installation will take place. For now is another waiting game and I hope the temperature won't go any higher than 35.

Muja needs the air conditioner because she could not regulate her body temperature as she is physically not moving. When she is not comfortable she cries which will make her body sweaty and warm. Sometime it is tricky to understand her because she could not tell. Alhamdulillah, now she uses PODD communication book, a book with pictures and symbols to speak. Masha Allah, she is good at turning her head for "no" and for "yes" she tries moving her lips or blinking her eyes or smile.

I would like to thank the financial consultant at Southcare for her help. I really appreciate her good work of helping people in needs. Masha Allah there are a lot of government funding to approve non-government organisations to help them meet the needs of individuals who have a disability in perth so just ask around or start here or here.

Sunday, 13 December 2009

Award Ceremony Day

Ok. It's been a long time since I updated my blog. I have been so busy lately. There are so many things I wanted to write about but I don't know which one to start with.

Oh! It's summer holiday in Perth NOW! Alhamdulillah, it is good in a way that I don't have to race every morning like the V8 Supercar racers even though I never won anything. I just beat my own time once in a while.

On the other side, I have to entertain the kids at home who keep coming to me with bored faces. Especially our one and only Taz. She just asked me if she can sleep over at her aunt's and I said no. Then she went ballistic which I don't want to hear. Same old story. It's not fair this and that. Bla bla bla. I ended up playing marbles with her on my new king size bed. It was fun though. She was not happy to be a loser and tried to cheat. A good opportunity for me to teach her about being honest and cheating.

On Friday Muja and I went to her school for her Award Ceremony. Masha Allah her speech and language specialist, Yvette, awarded her the Communication Award for developing a clear method of indicating "Yes and No" through her PODD communication book. She also received two books which are called "This is my Book by Mick Inkpen" and "The Rainbow Fish by Marcus Pfister" and a pink castle photo frame.

Muja did not go to school since she had her hips operation. So everyone at her school was excited to see her. Muja was happy too and she was proud of the award, when everyone came to congratulate her. They gave her a "get well soon" card which they made. I think Muja appreciated it and it was so thoughtful. Shona her teacher/conductor said her cast comes with a build in grasp bar which is good for her to practice grasping.

On Muja's last day of school before the surgery her teacher suggested a special party for her. As you all know Muja cannot speak so she is using a PODD communication book to communicate. Muja said it was a good idea and that she had a idea. She wanted to invite her family but not her baby sister. They told her that the baby can't be left at home alone, so she was ok for the baby to come but she said keep the baby in the corner. She is VERY jealous and has a good sense of humour, right?

One last thing, my very special daughter, Kay, received three trophies for top student in Maths, SOSE and Islamic Studies. My other special girl Nifah got a certificate of appreciate for excellent Qur'an memorization. Sadly, Taz didn't get anything. Though she usualy gets something during her schooling life. The most recent one she got was for excellent work habits and excellent progress in iqraa & behavior.

Masha Allah at the end of the day my children really made me proud of them, even if they were not recognized with anything I will still be proud of them. They are so special to me and I love them all very much, that includes you Mamat.