As a family we do things together. We live, play and pray together. It's not only to keep us close but it's also to keep us care for and love each other. Alhamdulillah we're so grateful that Allah give us love, mercy and tranquility between us.
As a precious gift from our Lord, having Mujhee is not a burden at all for us but it's rather an endless mercy. We learn challenges and do things differently. There are times when it's easy for Mujhee to participate in recreation and social activities with us, like going to the playground that has a Liberty swing. Alhmdulillah, we have a transportation that can transfer Mujhee in her wheelchair so we can take her out often. But most of the time that is not the situation, and that makes us feel frustrated and isolated.
Mujhee teach us patience and to make true sacrifice. For example, we've given up going fishing and camping after we have her. For her sake we surrender our planning on going for trip around Australia in an RV,because with our big family of 7 we can't, as most RVs only have space for 6 and has no wheelchair access. Sometime Mujhee will be left out, when all the children go cycling around the neighbourhood. Even Farhana is starting to be interested in following her big sisters.
There are particular periods when we just don't have time to spend together especially when Mujhee is not well and hospitalised. When Mujhee has sleeping difficulty at night, it makes it hard for us to participate in day activities because she will sleep the whole day through. Sometime we're just tired mentally and physically as having a child like Mujhee demands a lot of commitments for all her medicals and therapies.
We just found out about the Community Living and Participant Grant, http://www.clpg.org.au/ With this funding, insha Allah, I'm hoping we can do something together, with Mujhee.
O Allah, for your mercy I hope, so do not leave in charge of my affairs even for the blink of an eye: rectify all my affairs. There is no God except You. Ameen.
Thursday, 24 November 2011
Sunday, 13 November 2011
Hips and spine reviews.
Last month, during the Spring school holiday, Mujhee had her hips review at PMH. She had her Botox on July but after three months, its already showing its sign of wearing off as she is getting stiffer and curves her body like a fetus. From the review, her hips status is at risk for another hips surgery. What happened was her leg muscles are pulling her hips and cause her pain. This can also lead to bone deformity and dislocated joints.
Alhamduillah, her next Botox will be in three month from now, on February 2012. So, it will be another long wait. I'm just worried that during this time it will make her hips worse. I'm looking at other alternative. Subhana Allah, insha I will try to have patience. That reminds me of verses that teachs us that human beings are certainly in loss except for those who have patience. Subhana Allah, Allah reminds us through the Qur'an, as we human being always forget and are in need of a reminder, and that one of the formula for success is patience. May Allah give us the patience of Ayyub alaihi salam, ameen.
Verily Man is in loss, Except those who believe (in Islamic Monotheism) and do righteous good deeds, and recommend one another to the truth [i.e. order one another to perform all kinds of good deeds (Al-Ma'ruf) which Allah has ordained, and abstain from all kinds of sins and evil deeds (Al-Munkar which Allah has forbidden], and recommend one another to patience (for the sufferings, harms, and injuries which one may encounter in Allah's Cause during preaching His religion of Islamic Monotheism or Jihad). ~Al Quran, Al Asr: 2-3
At the hips review, Mujhee's paediatrician also discussed the result of Mujhee last spine x-ray. It shows abnormal curves of 15 %. I am sure her custom made insert and the second skin certainly help her posture from becoming abnormal other wise she could be a lot more worse. Mean while, I am taking Mujhee to a Chiropractor for correcting her spine and hopefully her hips as well, so insha Allah she will not need of scoliosis surgery in the future.
Because of the pain on Mujhee's hips she can't go to sleep at night. She sleeps most of the day even at school. They try everything to wake her up, but she just stay asleep for the whole day. Sometime she misses school.
Subhana Allah, I was reading verses of the Quran, explaining the Power of Allah in the following ayahs:
And We have made your sleep as a thing for rest. And We have made the night as a covering (through its darkness), And We have made the day for livelihood. Al Quran, An-Naba 11-13.
I humbly accept that without His Power we human beings have nothing. I can't even make my daughter go to sleep at night for her to rest. It is impossible for me to wake her during the day for her livelihood. I ask Him who is able to do all things, to make Mujhee sleep at night as a thing for rest and to make her day for livelihood, ameen. O Allah, accept our dua!
At Mujhee hips review, her paediatrician suggested to stop Clonbazam, gradually, as this medication does not control her seizure. Alhamdulillah now she is off that medicine and she is on Keppra and Clonazapam for her seizure. At the moment this medication does not control her seizure completely. I am grateful to learn first hand that not all medication can cure as it claims to. Subhana Allah, I understand that it is beyond medications that Mujhee seizure can be controled.
And when I am ill, it is He who cures. Al Quran, Ash Shu'ara:80
This ayah teach us a beautiful lesson about oneness of Allah and how it it fit for us as human being to be humble to our Creator or Master, as He is the one who create all disease and cure.
Before I end this post, I would like to share with you the tradition of our Messenger salallahu alaihi wasalam and that would also be my dua to finish. Insha Allah, say ameen together after you read this dua.
Ayesha (R.A.) stated that when anyone among them had an illness, Prophet Mohammad (SAW.) used to rub the area of the pain reciting the following dua:
أَذْهِبِ الْبَأْسَ رَبَّ النَّاسِ وَاشْفِ أَنْتَ الشَّافِي لَا شِفَاءَ إِلَّا شِفَاؤُكَ شِفَاءٌ لَا يُغَادِرُ سَقَمَا
"O Lord of the people, remove this pain and cure it, You are the one who cures and there is no one besides You who can cure, grant such a cure that no illness remains".
"Ayesha (R.A.) stated that when Prophet Mohammad (SAW.) was ill, he used to recite the four Quls, blow on his hands and pass them over on the back and front. He also recited these surahs, blew on his hands and passed them over his body during his fatal illness".
(Bukhari, Muslim)
Ameen.
Alhamduillah, her next Botox will be in three month from now, on February 2012. So, it will be another long wait. I'm just worried that during this time it will make her hips worse. I'm looking at other alternative. Subhana Allah, insha I will try to have patience. That reminds me of verses that teachs us that human beings are certainly in loss except for those who have patience. Subhana Allah, Allah reminds us through the Qur'an, as we human being always forget and are in need of a reminder, and that one of the formula for success is patience. May Allah give us the patience of Ayyub alaihi salam, ameen.
Verily Man is in loss, Except those who believe (in Islamic Monotheism) and do righteous good deeds, and recommend one another to the truth [i.e. order one another to perform all kinds of good deeds (Al-Ma'ruf) which Allah has ordained, and abstain from all kinds of sins and evil deeds (Al-Munkar which Allah has forbidden], and recommend one another to patience (for the sufferings, harms, and injuries which one may encounter in Allah's Cause during preaching His religion of Islamic Monotheism or Jihad). ~Al Quran, Al Asr: 2-3
At the hips review, Mujhee's paediatrician also discussed the result of Mujhee last spine x-ray. It shows abnormal curves of 15 %. I am sure her custom made insert and the second skin certainly help her posture from becoming abnormal other wise she could be a lot more worse. Mean while, I am taking Mujhee to a Chiropractor for correcting her spine and hopefully her hips as well, so insha Allah she will not need of scoliosis surgery in the future.
Because of the pain on Mujhee's hips she can't go to sleep at night. She sleeps most of the day even at school. They try everything to wake her up, but she just stay asleep for the whole day. Sometime she misses school.
Subhana Allah, I was reading verses of the Quran, explaining the Power of Allah in the following ayahs:
And We have made your sleep as a thing for rest. And We have made the night as a covering (through its darkness), And We have made the day for livelihood. Al Quran, An-Naba 11-13.
I humbly accept that without His Power we human beings have nothing. I can't even make my daughter go to sleep at night for her to rest. It is impossible for me to wake her during the day for her livelihood. I ask Him who is able to do all things, to make Mujhee sleep at night as a thing for rest and to make her day for livelihood, ameen. O Allah, accept our dua!
At Mujhee hips review, her paediatrician suggested to stop Clonbazam, gradually, as this medication does not control her seizure. Alhamdulillah now she is off that medicine and she is on Keppra and Clonazapam for her seizure. At the moment this medication does not control her seizure completely. I am grateful to learn first hand that not all medication can cure as it claims to. Subhana Allah, I understand that it is beyond medications that Mujhee seizure can be controled.
And when I am ill, it is He who cures. Al Quran, Ash Shu'ara:80
This ayah teach us a beautiful lesson about oneness of Allah and how it it fit for us as human being to be humble to our Creator or Master, as He is the one who create all disease and cure.
Before I end this post, I would like to share with you the tradition of our Messenger salallahu alaihi wasalam and that would also be my dua to finish. Insha Allah, say ameen together after you read this dua.
Ayesha (R.A.) stated that when anyone among them had an illness, Prophet Mohammad (SAW.) used to rub the area of the pain reciting the following dua:
أَذْهِبِ الْبَأْسَ رَبَّ النَّاسِ وَاشْفِ أَنْتَ الشَّافِي لَا شِفَاءَ إِلَّا شِفَاؤُكَ شِفَاءٌ لَا يُغَادِرُ سَقَمَا
"O Lord of the people, remove this pain and cure it, You are the one who cures and there is no one besides You who can cure, grant such a cure that no illness remains".
"Ayesha (R.A.) stated that when Prophet Mohammad (SAW.) was ill, he used to recite the four Quls, blow on his hands and pass them over on the back and front. He also recited these surahs, blew on his hands and passed them over his body during his fatal illness".
(Bukhari, Muslim)
Ameen.
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