For 21 years, Allah has chosen me to walk a path that tests my patience, strength, and love, all while reminding me of my own smallness and need for His mercy.
Raising my daughter with cerebral palsy, epilepsy, and complex needs has been a journey through places only Allah truly knows. I have whispered du‘a in dark hospital rooms, rested in exhaustion, and clung to tawakkul, trusting in His wisdom when I cannot see the way forward. Often, my heart seeks closeness to His mercy, especially in the moments of hardship and isolation.
Every seizure, every sleepless night, every worry has brought me nearer to the One who knows the weight of every tear I shed. I’ve come to realise that hardship does not mean Allah’s barakah is absent, sometimes, it is through hardship that His barakah is manifest.
Each day, between feeding tubes and quiet prayers, Allah sends reminders, a small smile, a gentle laugh, milestones measured in breaths and heartbeats. These are my ayat, signs that even in pain, there is light. Even in stillness, there is a journey taking me closer to Jannah, inshaAllah.
I don’t share this for pity or praise. Rather, I hope to honour the unseen efforts of mothers whose sacrifices are witnessed only by Allah, the Most Aware.
Lessons from This Path
True strength is silent: It sits beside a hospital bed, steadies a trembling hand, or fills yet another prescription. It does not seek applause, knowing that Allah sees every effort, big or small.
Love is patient endurance: Some days, my strength comes only from Allah. Even when exhausted, a mother’s love persists quietly, a reflection of the endurance He bestows.
Invisible labour is honoured: Most of what I do is unseen by people, but I trust that every moment is illuminated in Allah’s sight, Who misses nothing.
Faith is an ongoing journey: Faith does not always look like certainty. Sometimes it is a broken-hearted du‘a, sometimes it’s simply showing up once more. This, too, is part of worship.
There is beauty in hardship: Even in the hardest days, there are small moments of joy—proof that Allah’s mercy can be found even in testing times.
We are never alone: Vulnerability has allowed me to connect with others on similar paths. Our struggles can become sources of comfort for ourselves and for those who come after us.
To those on a similar journey: May Allah grant you patience and ease. He sees you, and your reward is with Him, never lost.
“And your Lord has not forsaken you, nor has He forgotten.”
(Ad-Duhaa, 93:3)
If you find yourself relating to any of these words, whether whispered in hospital corridors or held quietly in your home, know that this space is for you. May it bring comfort to your heart. Please share your light and story if you wish, or simply let these words be a gentle companion in your own sacred struggle.
May Allah keep us steadfast and grant us ease.
Muji’s mum,
Nur
#MujisLight #YouAreNotAlone #SabrAndStrength #MedicalMama #CerebralPalsyAwareness #EpilepsyWarrior #ComplexCareFamilies #Tawakkul #DivineMercy #SacredStruggle
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